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radmatty

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About radmatty

  • Rank
    Newbie
  • Birthday 09/09/1957

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  • Gender
    Male
  • Location
    Lake Geneva, WI
  • Interests
    Bio-Hacking to Beat Parkinson's
  1. I include this information from the British Journal of Clinical Pharmacology to stress the point that there is a gut/brain connection at work in Parkinson's. A connection that, I believe, goes much farther even than this article suggests. http://www.eurekalert.org/pub_releases/2016-05/w-teo051916.php http://onlinelibrary.wiley.com/doi/10.1111/bcp.12967/abstract
  2. What's The Forecast For A Cure?

    Your ideas are great! Watch out for environmental insults too. Water damaged buildings have mold and other biotoxins that can be very inflammatory. As a person with a construction background, I can tell you that this is much more prevalent than most people think. The Boise State research appears to demonstrate that dopaminic neurons do regenerate. If it holds up to further scrutiny it could be a real game changer. There is anecdotal evidence that altering the gut bacteria through fecal microbiota transplantation (FMT) has caused remission of symptoms in persons with Parkinson's disease. FMT can be a do-it-yourself process or it can be done in a clinical setting (just not in the USA). This seems consistent with the great number of studies establishing the close working relationship between the gut and the brain.
  3. What's The Forecast For A Cure?

    Or at least something much better than what we have now? I like to read medical research and science websites. It seems that researchers are homing in on the causes of PD. Much of the research talks about inflammation as a big causative factor. One recent study, from Boise State University, proved that dopaminic neuronal cells can regenerate. They also pointed to inflammation as the reason the cells are prevented from regenerating. Other very credible studies are looking at digestive imbalances as drivers for systemic and neuroinflammation. I can use myself as an example. I have had generalized anxiety disorder and digestive issues since day one. In midlife, I developed food and environmental sensitivities that gave me what I would call "Brain on Fire" symptoms. Then at 52, I started to have tremors, which six years later became a diagnosis of PD. Having just recently been diagnosed, much of this is new to me. It seems like mainstream medicine has really only one therapy for people with PD, that is the 60-year-old drug levodopa and some variations on that theme.
  4. 23andME PD Genetic Research

    The link does not work. Does anybody know if this offer is still available?
  5. Another New Guy

    I've only noticed one thing along those lines. After avoiding fast food for at least 15 years, I suddenly have a great craving for double bacon cheeseburgers, Whoppers, fries, and milkshakes. This is not a good thing because I have intolerances or sensitivities to grains and dairy. Today I am a basket case from having eaten such food for several days. And the Mirapex doesn't seem to be working at all. Anybody else have food or environmental sensitivities along with their PD?
  6. Another New Guy

    I am scheduled to see a movement disorders specialist in mid-August. I will be seen at Froedtert Hospital & the Medical College of Wisconsin's Neurosciences Specialty Clinic in the Parkinson’s and Movement Disorders Program.
  7. Another New Guy

    I am newly diagnosed with PD at age 58. I just had my first visit with a neurologist about four weeks ago. Time with the doctor was about 10 minutes. He asked me to walk around the room, touch my nose with my eyes closed and tested my grip in my left and right hands. I left his office with a prescription for Mirapex. Four weeks of a gradually increasing dose has left me feeling much better. I first knew something was wrong with my health in 2009. I was taking a welding class at a local tech college. I was learning a process that requires a very steady hand and excellent coordination. I noticed that I had the slightest tremor in my right hand, Something that would have been unnoticeable under normal circumstances. In a few months, I also noticed that my right arm felt uncomfortable while walking. The tremor increased gradually spreading to my right leg by 2011. By 2014, I ceased to be able to write due to a worsening of the tremor. I hadn't had any health insurance since 2009 so I was only seeing a primary care physician on a cash basis. He prescribed Primadone, which helped a little bit. In late fall of 2015, my health was taking a turn for the worse when my mother was diagnosed with pancreatic cancer. I became her primary caregiver. By the time she passed away, in January 2016, I was a wreck. I had lost a lot of weight, to the point of being emaciated and was so weak I could barely dress. Just at this time I got insurance again. Getting off the Primadone and onto Mirapex seems to have made a big difference. I've also had some help from a gastroenterologist with some digestive complaints. I'm regaining health. I am able to work part-time and to walk the dog a reasonable distance. And the best of all, I'm feeling fired up to do battle with PD.
  8. Share Your Story with NPF

    Those sentences capture my attitude perfectly.
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