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About dmCwolfe

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  1. dmCwolfe

    Parkinson's Meds Info

    https://www.ncbi.nlm.nih.gov>articles. Mayo Clinic Proceedings. "Cheaper, Simpler, and Better: Tips for Treating Seniors With Parkinson's Disease" Dear favorite Pharmacist, I thought this would be a simple copy/ paste. Not So! The above web address should get you to correct page, maybe not specific article. Select/copy/paste. My "Tech Neck" is giving me so much pain that I have to shut computer down. Could you please look at my med list and tell me what you think? Topic: Low dose Zonisamide. In pain, gotta go. Thanks
  2. dmCwolfe

    Parkinson's Meds Info

    Dear Sir, Yep, I am still up, researching my favorite topic - Parkinson's Disease.. I came across an article that explains the medicines in very understandable terms. I think all PD patients should read it for their own benefit. It may be accessed at https:www.ncbi.nlm.nih.gov>articles. Mayo Clinic Proceedings. "Cheaper, Simpler, and Better: Tips for Treating Seniors With Parkinson's Disease" If this article has already been discussed, I apologize. This was my first time seeing it and thought it was lay person friendly. Once again, thanks for all you do.
  3. Hello, I just found out about your foot surgery. I hope you have recovered well. I am having extreme difficulty sleeping at night, but seem to fall into a paralytic type of sleep between 7am and noon. Is it the PD, the meds or has my circadian clock gone wild? I have Parkinson's with Dystonia. Medication Schedule: 7:00am 5mg Rasagiline Mesylate x2 (previously took 1mg,but pharmacist changed for his convenience) 100 Carbodopa-Levodopa-Entcarpone 7:30am 4mg Tizanidine 9:30am 75 C_L_E 12:00pm 75 C_L_E 2:00pm 4mg Tizanidine 2:30pm 75 C_L_E 5:00pm 100 C_L_E 7:30pm 75 C_L_E 8:30 pm .25mg Benztropine MES 10:00pm 75 C_L_E 10:30pm 25mg Zonisamide (Dr. scheduled at 7am, but I thought this contributed to deep sleep state in am. I changed time to pm. Does not help me sleep at night) I also take Alprazolam .25mg PRN and .5mg at 10:00pm. I take turmeric, Omega red, calcium and Magnesium, if I can swallow pills. The Zonisamide is a recent addition. The first two weeks were an adjustment period with severe equilibrium issues and extreme double vision, along with other visual and auditory disturbances. These issues have pretty much resolved and now I just generally feel better. Apparently, the Zonisamide , alone, does not put me in that deep paralytic sleep. I have been up for four days with a total of six hours sleep and a mild panic attack about 4am this morning. A crash should be coming soon. What is the best time to take the Zonisamide? May I have a occasional alcoholic beverage? Any suggestions? I appreciate your help. Thank you for this forum. Deb
  4. dmCwolfe

    deciding about drugs

    I thoroughly enjoy your forum. I have obtained so much knowledge by reading the various posts. It is obvious that you care. Thank you for being here for us.
  5. dmCwolfe

    Side Effect of Lorazepam?

    I just had two crowns glued in because I broke two teeth due to clenching. I have previously had two extractions because fractures went through the roots. I urge PD patients to get a bite block and where it at night.
  6. dmCwolfe

    deciding about drugs

    Hi. I waited two years before seeing a Dr. and getting on meds. I was a big believer in alternative treatments and did not want to put in my body a bunch of chemicals with side effects that would require more chemicals to counteract the effects. Once I started taking the prescription medications, my life improved. It is not always wonderful, needing vigilant observation and occasional to frequent adjustment, but the quality of life on meds is much better than the quality of life off meds. I have been dealing with PD for 15 years. I have to do my own research and figure out what is going on because most Doctors are very reluctant to give comprehensive info to the patient(in my experience). Stay on top of things, exercise frequently and be your own advocate. Good Luck.
  7. dmCwolfe

    Sinemet absorption with applesauce

    Hello! I know I'm late responding, but I hope my suggestion helps you. It works for me. I swallow a Tablespoon of raw honey immediately before swallowing a pill. The meds go down my esophagus much easier and I don't need as much water.
  8. dmCwolfe

    Pain Meds interaction w/PD Meds

    Last year I had two surgeries to repair my lumbar spine. Out of fear of addiction to opioids, I discontinued the use of prescription pain medicine the second week post surgery. I used a combination of ice packs, meditation and turmeric 1000mg. This combination was extremely effective in managing my pain. I wish you good luck.
  9. dmCwolfe

    Panic Attacks or Something Else?

    Hi, Patrick, I experienced what appeared to be a sudden onset of cardiac issues. An evaluation by a cardiologist ruled out cardiac disease. The problem lasted about two months and now happens only once in a while. My hart rate has increased and my blood pressure decreased - a side effect of PD meds. I find that I experience a greater since of anxiety in the mornings. .25 of Xanax helps me stay relaxed. Slow, deep breathing and alternate nostril breathing helps tremendously. Physical exercises are outstanding for dealing with Parkinson's. Also, be observant of how protein ingestion affects your meds; this is a big issue for me. Good Luck.
  10. dmCwolfe

    Parkinson and hand tremor

    Have your mother assessed for Dystonia. This condition is also associated with hand tremors. Dystonia may present alone or in conjunction with Parkinson's disease. Good Luck! .
  11. Hello, Thank you for any help you can give me. I am 1 month status post 2 surgeries with general anesthesia for Alif and posterior fusion of L4 and L5. Immeditely post-op, I experienced severe dystonia. Since the surgeries, my PD symptoms have worsened. I experience tremoring the majority of the day. I get about 2 - 3 hours relief after my first dose of Azilect, and Stalevo 100, both @ 7am. I get relief again after Tizanidine 4mg @ 4:30am, 10:30am, 4:30pm and 10:30pm. I take Stalevo 100 every 2.5 to 3 hours until 10pm. I no longer get relief from tremors and rigidity after the Stalevo doses. 1 dose of Pramipexole ER approxiamately 2:00pm. My Neurologist says that my brain is angry from the anesthesia and I have to wait for it to quiet down. I need relief from tremoring and rigidity now. Any suggestions?