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Pathfinder last won the day on January 16 2017

Pathfinder had the most liked content!

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About Pathfinder

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  1. Parkinson's Disease & Dementia

    Tom, I am so sorry for your lack of support. Know that others care and we are here for your journey.
  2. Parkinson's Disease & Dementia

    Maral please accept my condolences on your loss. My thoughts and prayers are with you.
  3. Dad newly diagnosed

    I agree that taking Meds is not a death sentence. My husband only takes C/L and is doing very well. Few tremors, fatigue is his biggest issue. He has multiple illnesses so that complicates things, all in all I am so grateful he is responding so well to C/L. He will have PD in March for two years, he is 78.
  4. Happy Holidays

    That was beautiful and powerful Adam. Thank you for posting.
  5. Happy Holidays

    I am grateful this season that my husband is lucid, alert, and thankful for one more Christmas together. His Gasteoparesis is not as bad for some reason, we are watching movies for the last three nights. I never have his company in the evenings, as he usually rests. I am aware that we never know what the next year will bring us, try not to let negativity creep in at quiet times. We had our 49th Anniversary this year, looking forward to that magical 50. I too hope you all can find the good.
  6. Caretaker tip

    Indeed it is lonely and life changing. I miss my husbands company very much, he is in bed most days, the exhaustion giving him no choice but to sleep. He also has Vascular dementia, and severe Gasteoparesis. When he is awake and alert I take advantage of it. I will post tips as I find out thru trial and error what works. I appreciate you all, the support really helps.
  7. Caretaker tip

    I just shopped for Cuddle Duds today, they had throws but wasn’t interested then. I will return to check them out further. Thank you!
  8. Caretaker tip

    Pressure sores cause me concern too. Hubby doesn’t have any now, but sleeps so much I am vigilant. He had MOHS surgery in January on his ear requiring cartilage removal. It didn’t fully heal until October. Cartilage is hard to heal normally, his sleeping so much contributed to slower healing. Excellent advice that I will file away if ever needed again.
  9. Good morning!!

    She wants her eggs back....🤣🤣
  10. Good morning!!

    Yes I do make gingerbread, but haven’t in a long time. i can’t do much at all as I have the flu, cough, aches, Meds make me feel just as bad sometimes as the cure! Today is day four, slightly better. The good news? So far, hubby doesn’t have it! Operation Lysol wins another one!
  11. Good morning!!

    Hey JB and everyone, I wish I were making pies but I will be doing 🍪 on Sunday to mail to the grands! I love all those delicious smells of cookies being baked. Hubby has had a rough patch lately, starting with a broken tooth, subsequent oral surgery and multiple appointments to fix everything. He hasn’t tolerated some of these things very well, but doing better at the moment. Have a good weekend everyone!
  12. When I read these replies I can really relate. Recently my husband who has PD and dementia had an episode where he made a huge mess, each time I tried to get him cleaned up he wouldn’t and couldn’t follow simple commands to stay still, move right here etc. it was maddening. It was the first time one of these episodes occurred and it really brings home the enormity of our caregiver experience. I will never be caught out unprepared again. I share your challenges ladies. Keep on knowing we are all in the same boat.
  13. Good morning!!

    Happy Thanksgiving to everyone! i am so thankful today that my husband is having a great day. He recently had a minor dental procedure that knocked him for a loop. It was a perfect storm of cascading issues we weren’t prepared for, but as his OMT doc says, now you know how to deal you will be better prepared. It took four days for him to recover. We prepared for oral surgery after that and it was smooth sailing and continues a run of doing well. What a journey PD, Dementia, and Gasteoparesis can be. Thankful also for all of your kindness and generosity of spirit!
  14. New guy here - a journey I'd like to avoid

    My husband gets awakening tremors a lot. They are real strong, lasting briefly, and a quick return to normal. He also gets them if he gets a chill before getting in the shower.
  15. Good morning!!

    I haven’t written on here for awhile, too busy caretaking and those never ending medical appointments. Ijust want to cozy up in a blanket because it’s cold here!