helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Pathfinder

Members
  • Content count

    115
  • Joined

  • Last visited

  • Days Won

    1

Pathfinder last won the day on January 16

Pathfinder had the most liked content!

Community Reputation

55 Excellent

About Pathfinder

  • Rank
    Advanced Member

Profile Information

  • Gender
    Not Telling

Recent Profile Visitors

277 profile views
  1. Hectic Sunday for us. Lots of errands, we shall cookout tomorrow. On another awesome note, hubby hasn't slept as much today! I love it when he is awake and spends time with me. I am so fearful that this will harm his ability to walk in the future, sleeping all day so much of the time. But, today was awesome!😋
  2. My hubby takes Tradazone at a specific time, about fifteen minutes before bed. He had gone through so many sleep prescriptions, trying to find one that was a good fit it was so frustrating. Tradazone doesn't leave him groggy, and he has no other side effect from it. His FP writes the script for up to two tabs daily, he has never had to take but one tab. hopefully you will find a solution that works as well for you!
  3. Wow Miracleseeker! Thanks for verifying my theory! Hubby doesn't even know he does it either.
  4. Silent55, I totally understand you post, sorry you are in this position. As miracleseeker says, keep posting. We are here to lift you up. We know the cost of PD to our loved ones only too well. Take care of your health especially. Hope to see you on here again!
  5. My hubby does those same snake like tongue movements. He curls his tongue, then it constantly moves in and out. Interesting enough he only does this in the evening before bed after he has removed his dental partials. It's as if the tongue is freed and the movement begins! His medication is spot on as he rarely has tremors now. Interesting!
  6. Jb, it was my blood pressure,way too low in response to a new stronger medication. Sorry you have the same problem, it is not pleasant! Lad, love that zachism!!!😋 I want the rain to stop so l can plant 🍅, herbs are doing fantastic!
  7. I hope the original poster was not offended by my reply as a caregiver. I wanted to reassure him that it can work, meeting in the middle and talking issues with your spouse can go a long way like hubby and l have done. Sometimes l want to reply to a thread and wonder if my point of view as caregiver is appropriate. Now, l do understand that l don't have PD, but my compassion for those people that deal with it daily, knowing it's cost to my loved one have my respect.
  8. Best of luck finding proper medical treatment.
  9. Of course we get you!! I admire you for the care you give your Mother. Fighting her battles with medications and making her as safe and comfortable as you can. You rock!🤗
  10. My husband has vascular dementia and Parkinsonism. We are fourteen months from diagnosis, our lives have been affected in so many ways. I am his full time caregiver and happy to do anything for him. I am a very social person who has a lot of friends and activities. Hubby can still be alone so l can do some socializing, but we had to adapt quickly when dealing with this new challenge to our lives. I adjust how often l socialize , my friends also know if l cancel at the last moment l am needed at home. I don't resent that l am not as social because he has cared for me with such devotion and would do it for me in a heartbeat if the roles were reversed. Have you tried socializing at home, or one of your favorite places to go? I know hubby has anxiety sometimes, here at home when people drop in he is more comfortable. Maybe talking with your wife and meeting in the middle can give you both a workable solution. l wish you well, this PD is an awful lot to deal with!
  11. Awesome LAD!👍
  12. Damn basement indeed!😜 I had taken Mobic Saturday and Sunday, told myself to not take it today. About four o'clock l was in misery, when it dawned on me how much it had helped. Promptly took Mobic and a pain pill, toasty with my iPad and heating pad this evening. I have awakened each morning around six in pain but not enough rest to start my day. I hate to take pain Meds! i will take care and had I broken a bone I shudder to think of how it would affect hubby. He is not having a good day, he has two doctors appointments this week. thanks for your concern ❣️
  13. I am in pain today, l had taken a few days of an anti-inflammatory to help with pain and inflammation. Docs don't want me to take it because of my kidney issues, l felt today how much it had helped. Thank you both for your support as always. My heating pad and l have a quiet evening planned.
  14. Good afternoon! Jb, must be the season for falls. I started a new BP med, took my first dose, went for coffee and to read the paper. Started feeling hot, then nauseous, on my way to splash my face with cold water, lights out for me. The next thing l remember is sitting in a chair with a cold compress being offered to me. The EMT crew said clearly the BP med was suspect, off to the ER l go. In my confusion and general being just out of it l gave the car keys to a dear friend to drive hubby safely home. Couldn't use the phone to get family to hubby so l tried to relax. CT scan later, nothing broken and talk about relief! l was feeling better by the time family arrived at the ER, then l learned hubby had insisted that HE drive home after l left. My friend followed him home, now he swears he can drive again after not driving since his fall and PD diagnosis. He has vascular dementia with Parkinsonism and should never drive. On a good note, when he got home he used his cell phone and called family, so his being able to do that was amazing. I have no idea what l will do if another event occurs like this. Perhaps the doctor needs to tell him never to drive and he would listen to that authority. Fiesty, what a time you have had! A lot to read with this post so off l go for more heating pad time on very sore and bruised hips!
  15. Good evening everyone. It all started at the Cardiologist office for my staying healthy check up. My BP was up, no stress for me, how did that happen? Lol! She changed my BP Meds, yesterday was my first dose. Took the Meds and off to McDonald's for a cup of coffee and to read the paper. Ten minutes in l start to feel hot, nauseous, knowing l could pass out. I walked a few feet to go to the restroom for a cold splash but didn't make it. Passed out, landed on my hip-tailbone. When l came to someone had put me in a chair and cold compress and the EMT's were on their way. My blood pressure was 70/40!!! Clearly too much Meds! During this all hubby seemed pretty good in dealing with it. I gave my car keys to a friend and he promised he would get him safely home . Hospital testing, CT scan all good except for a UTI. My SIL brought hubby to the hospital and my daughter was there as well. You will not believe what hubby did. He convinced our friend to let him drive and the friend could follow. My God he drove. After 16 months of not driving, angels were with him for sure. You can image the conversations we had over this. He thought it was a fine thing for him to do, like why not? I keep both set of keys with me at all times but in an emergency response just blew his never driving again out the window. He was so stressed out from yesterday he couldn't sleep or nap. Today he is catching up on rest. My hip pain Meds made me sleepy too. We have much to be thankful for, l didn't break any bones, he got home safely. Forgot to mention, he did use his cell phone to call SIL and ask for a ride to the ER. He doesn't understand vascular dementia and how it imparts his thinking and other abilities. When you get thrown a curve like we did, just so thankful today and sore!