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Pathfinder

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Everything posted by Pathfinder

  1. Of course we get you!! I admire you for the care you give your Mother. Fighting her battles with medications and making her as safe and comfortable as you can. You rock!🤗
  2. My husband has vascular dementia and Parkinsonism. We are fourteen months from diagnosis, our lives have been affected in so many ways. I am his full time caregiver and happy to do anything for him. I am a very social person who has a lot of friends and activities. Hubby can still be alone so l can do some socializing, but we had to adapt quickly when dealing with this new challenge to our lives. I adjust how often l socialize , my friends also know if l cancel at the last moment l am needed at home. I don't resent that l am not as social because he has cared for me with such devotion and would do it for me in a heartbeat if the roles were reversed. Have you tried socializing at home, or one of your favorite places to go? I know hubby has anxiety sometimes, here at home when people drop in he is more comfortable. Maybe talking with your wife and meeting in the middle can give you both a workable solution. l wish you well, this PD is an awful lot to deal with!
  3. Awesome LAD!👍
  4. Damn basement indeed!😜 I had taken Mobic Saturday and Sunday, told myself to not take it today. About four o'clock l was in misery, when it dawned on me how much it had helped. Promptly took Mobic and a pain pill, toasty with my iPad and heating pad this evening. I have awakened each morning around six in pain but not enough rest to start my day. I hate to take pain Meds! i will take care and had I broken a bone I shudder to think of how it would affect hubby. He is not having a good day, he has two doctors appointments this week. thanks for your concern ❣️
  5. Good evening everyone. It all started at the Cardiologist office for my staying healthy check up. My BP was up, no stress for me, how did that happen? Lol! She changed my BP Meds, yesterday was my first dose. Took the Meds and off to McDonald's for a cup of coffee and to read the paper. Ten minutes in l start to feel hot, nauseous, knowing l could pass out. I walked a few feet to go to the restroom for a cold splash but didn't make it. Passed out, landed on my hip-tailbone. When l came to someone had put me in a chair and cold compress and the EMT's were on their way. My blood pressure was 70/40!!! Clearly too much Meds! During this all hubby seemed pretty good in dealing with it. I gave my car keys to a friend and he promised he would get him safely home . Hospital testing, CT scan all good except for a UTI. My SIL brought hubby to the hospital and my daughter was there as well. You will not believe what hubby did. He convinced our friend to let him drive and the friend could follow. My God he drove. After 16 months of not driving, angels were with him for sure. You can image the conversations we had over this. He thought it was a fine thing for him to do, like why not? I keep both set of keys with me at all times but in an emergency response just blew his never driving again out the window. He was so stressed out from yesterday he couldn't sleep or nap. Today he is catching up on rest. My hip pain Meds made me sleepy too. We have much to be thankful for, l didn't break any bones, he got home safely. Forgot to mention, he did use his cell phone to call SIL and ask for a ride to the ER. He doesn't understand vascular dementia and how it imparts his thinking and other abilities. When you get thrown a curve like we did, just so thankful today and sore!
  6. I am in pain today, l had taken a few days of an anti-inflammatory to help with pain and inflammation. Docs don't want me to take it because of my kidney issues, l felt today how much it had helped. Thank you both for your support as always. My heating pad and l have a quiet evening planned.
  7. Good afternoon! Jb, must be the season for falls. I started a new BP med, took my first dose, went for coffee and to read the paper. Started feeling hot, then nauseous, on my way to splash my face with cold water, lights out for me. The next thing l remember is sitting in a chair with a cold compress being offered to me. The EMT crew said clearly the BP med was suspect, off to the ER l go. In my confusion and general being just out of it l gave the car keys to a dear friend to drive hubby safely home. Couldn't use the phone to get family to hubby so l tried to relax. CT scan later, nothing broken and talk about relief! l was feeling better by the time family arrived at the ER, then l learned hubby had insisted that HE drive home after l left. My friend followed him home, now he swears he can drive again after not driving since his fall and PD diagnosis. He has vascular dementia with Parkinsonism and should never drive. On a good note, when he got home he used his cell phone and called family, so his being able to do that was amazing. I have no idea what l will do if another event occurs like this. Perhaps the doctor needs to tell him never to drive and he would listen to that authority. Fiesty, what a time you have had! A lot to read with this post so off l go for more heating pad time on very sore and bruised hips!
  8. What a day. Hubby had MOHS surgery in January on a basal cell on his outer ear. I had to take him to the Derm doc today because he sleeps or just lies in the bed so much his ear was sore and seeping after healing totally in February. Doc cultured the sites in case of infection and prescribed an ointment if it is Seborrheic Dermatitis. This is just another reminder of how much he is in bed. One of my biggest fears is him getting weaker and then me not be able to care for him. His Gasteoparesis is so bad right now. He is taking pain Meds two or three times daily more than l would like. He vomits almost daily, sometimes twice. Both these issues have just recently been to this degree, the nausea is ever present and often he refuses to eat. I phone his Gasteoenterologist that he has an appointment with in three weeks, thinking these worsening symptoms deserved a sooner appointment. They made a minor change on the Zofran, suggested an even blander no fat diet, and said it wasn't necessary to move his appointment up as this was all we could do. Thanks a lot doc!! So frustrating! And last but not least, remember his Tamiflu drug reaction where he heard a radio playing music? Well, three times lately he has asked me if l have heard non existent sounds. Haven't checked with the Neuro yet, don't have the heart. Thanks for reading if you got this far!
  9. Update: taking Zofran with meals is working so far, no vomiting and less nausea. Before he was taking it as needed, this way calms the stomach down before it gets started. His audio hallucinations have stopped as well! Thanks again for all your support!
  10. Thank you! I will discuss this at our next appointment. I appreciate your help!
  11. I am so sorry you have to bear this burden of loving care for your mother alone. Perhaps home PT would be beneficial to her. My husband has done therapy several times, the last time he would be so sick, throw up and he couldn't complete the schedule they had prescribed. His therapy doesn't make much difference, he just reverts back to sleeping the day away and we try again. I appreciate your support. Thank you.
  12. It has been one year since hubby was hospitalized with severe Gasteoparesis and the tremors and dementia presented while hospitalized. I have no idea what stage the Parkinsonism is now, the fatigue is overwhelming for him, add the stomach pain and nausea and he wants to be in bed most days and now evenings. The dementia has skewed his cause and effect reasoning, telling him he must get out of bed and move is akin to asking him to do any other impossible task. I never argue with him about the apathy, what would that serve? I see him slowly getting weaker, frustrated because he can't or won't self help, and we are back to square one. I needed to hear your advice regarding the doctor knowing what is possible from training and experience, so well said. He is able to do small outings for coffee several times a week, no longer using a walker, and no huge changes in his dementia status. The hallucinations of a radio were most troubling l must admit, that drug reaction was a horror of full blown constant ranting, hallucinations etc. thank God it is only music he is hearing with no agitation. He has a lot of doctor appointments, he tolerates those well, but he can't contribute to the exam anymore. They exhaust him and he sleeps for hours when we return home. Thank you for your kindness. I think of you and your husband often, you have my full support as well.
  13. The Gasteoenteroligist mentioned Dompridone but said it wasn't available in the USA so that ended that. How do you get the drug? Do you need a script? What is the cost if you don't mind my asking? Thank you for your support.
  14. Peace, my trick is going out to dinner and almost passing out, squad called, ER, the whole nine yards! So embarrassing! Both times is was an unknown UTI and once low hemoglobin. You can't make this stuff up. My friends don't want to go to dinner with me anymore! Joke! 😜🤢
  15. I am a caregiver and do not have Parkinson's. I am a type 2 diabetic and have used Byetta, a twice daily injection for six years, and for the last five years Bydureon, the weekly injection of Exenatide. It has been a wonderful drug for me, my A1c is normally in the mid fives and no side effects except appetite suppressant and occasional nausea. If l can answer any questions l would be happy to help you! I have never heard of it's off label use for PD, only for blood sugar control and now weight loss.
  16. Hello everyone! I am taking my husband to lunch and a short shopping trip. He is having an awesome day, and we are seizing the day!😜 Hope your day is awesome as well!
  17. Thank you for this uplifting message.❤️
  18. Genden, l am only one year in from my hubby's diagnosis, so in no way do l know what you are experiencing. But l care. I hear your quiet desperation and so wish that l could comfort you and your husband. My husband has multiple health issues, Parkinsonism, vascular dementia, and Gasteoparesis his worst problem. He can still function normally for the most part, but the dementia is slowly starting to be ever present in our daily lives. I have to do all household tasks, errands, appointments, heck l don't need to list them you all live this and much worse every day. I do miss him being there for me, rarely he will touch my hand or utter a kind word of thanks to me and l cherish it so. l too struggle with a moment of anxiety when l return from an errand until l make sure all is well. l have no suggestions for you, so l will close with letting you know l am here if l can ever help or support you in any way.
  19. Me too! 😍
  20. Thank you for this timely reminder!
  21. Thank you for your frank glimpse of your husbands journey with PD and LBD. Thoughts and prayers for you and your husband. I appreciate your sharing your experiences.
  22. Thank you for posting this excellent program. Very informative!
  23. My husband has recently had the flu, he took Tamiflu and quickly recovered from the cough and fever. However, we think the Tamiflu mixed with his PD really did a number on him mentally. It started off with him awake all night Friday night, talking and moving his fingers in the air as if searching and picking up tiny objects. He would walk the floor, becoming more and more agitated. Sunday night was the worst, he got up at 3 am insisted on getting dressed, wrote on imaginary pads an order for a new car, and could not be consoled or orientated. We took him to the ER for a battery of tests which were all normal, leaving us mystified as to this sudden onset of extreme behaviors . The Tamiflu inserts say it can cause hallucinations, hearing voices that are not there, and I am convinced it was the culprit. Today he is back to his normal self, but the exhaustion has took over from the toll that stressed his body so much. He saw people that weren't there, you couldn't reason with him, no comforting him or diverting him worked. If your loved one is prescribed this medication, be very aware of what happened to hubby. It helped with the flu wonderfully, but what we were left with was not worth it. He will never be given this drug again. I just hope he has no lasting damage from it. Dee
  24. Thank you for your information. Hubby has slept almost around the clock for the last two days. Today he is markedly improved, only one nap today was needed. He has vascular dementia and typically his symptoms are mainly short term memory issues, but those behaviors were terrible to deal with and so agitating for him. He is definitely more sensitive to medication now that he has PD, and he also has Gasteoparesis which affects his absorption of medication as well. Lots of lessons were learned with these episodes, and l am so grateful he returned to his usual mental status.
  25. My husband has recently had the flu, he took Tamiflu and quickly recovered from the cough and fever. However, we think the Tamiflu mixed with his PD really did a number on him mentally. It started off with him awake all night Friday night, talking and moving his fingers in the air as if searching and picking up tiny objects. He would walk the floor, becoming more and more agitated. Sunday night was the worst, he got up at 3 am insisted on getting dressed, wrote on imaginary pads an order for a new car, and could not be consoled or orientated. We took him to the ER for a battery of tests which were all normal, leaving us mystified as to this sudden onset of extreme behaviors . The Tamiflu inserts say it can cause hallucinations, hearing voices that are not there, and I am convinced it was the culprit. Today he is back to his normal self, but the exhaustion has took over from the toll that stressed his body so much. He saw people that weren't there, you couldn't reason with him, no comforting him or diverting him worked. If your loved one is prescribed this medication, be very aware of what happened to hubby. It helped with the flu wonderfully, but what we were left with was not worth it. He will never be given this drug again. I just hope he has no lasting damage from it. Dee