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Pathfinder

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Everything posted by Pathfinder

  1. Thank you for this timely reminder!
  2. Thank you for your frank glimpse of your husbands journey with PD and LBD. Thoughts and prayers for you and your husband. I appreciate your sharing your experiences.
  3. Thank you for posting this excellent program. Very informative!
  4. My husband has recently had the flu, he took Tamiflu and quickly recovered from the cough and fever. However, we think the Tamiflu mixed with his PD really did a number on him mentally. It started off with him awake all night Friday night, talking and moving his fingers in the air as if searching and picking up tiny objects. He would walk the floor, becoming more and more agitated. Sunday night was the worst, he got up at 3 am insisted on getting dressed, wrote on imaginary pads an order for a new car, and could not be consoled or orientated. We took him to the ER for a battery of tests which were all normal, leaving us mystified as to this sudden onset of extreme behaviors . The Tamiflu inserts say it can cause hallucinations, hearing voices that are not there, and I am convinced it was the culprit. Today he is back to his normal self, but the exhaustion has took over from the toll that stressed his body so much. He saw people that weren't there, you couldn't reason with him, no comforting him or diverting him worked. If your loved one is prescribed this medication, be very aware of what happened to hubby. It helped with the flu wonderfully, but what we were left with was not worth it. He will never be given this drug again. I just hope he has no lasting damage from it. Dee
  5. Thank you for your information. Hubby has slept almost around the clock for the last two days. Today he is markedly improved, only one nap today was needed. He has vascular dementia and typically his symptoms are mainly short term memory issues, but those behaviors were terrible to deal with and so agitating for him. He is definitely more sensitive to medication now that he has PD, and he also has Gasteoparesis which affects his absorption of medication as well. Lots of lessons were learned with these episodes, and l am so grateful he returned to his usual mental status.
  6. My husband has recently had the flu, he took Tamiflu and quickly recovered from the cough and fever. However, we think the Tamiflu mixed with his PD really did a number on him mentally. It started off with him awake all night Friday night, talking and moving his fingers in the air as if searching and picking up tiny objects. He would walk the floor, becoming more and more agitated. Sunday night was the worst, he got up at 3 am insisted on getting dressed, wrote on imaginary pads an order for a new car, and could not be consoled or orientated. We took him to the ER for a battery of tests which were all normal, leaving us mystified as to this sudden onset of extreme behaviors . The Tamiflu inserts say it can cause hallucinations, hearing voices that are not there, and I am convinced it was the culprit. Today he is back to his normal self, but the exhaustion has took over from the toll that stressed his body so much. He saw people that weren't there, you couldn't reason with him, no comforting him or diverting him worked. If your loved one is prescribed this medication, be very aware of what happened to hubby. It helped with the flu wonderfully, but what we were left with was not worth it. He will never be given this drug again. I just hope he has no lasting damage from it. Dee
  7. I still have this lingering cough and nausea. Thank you for asking! I am so grateful hubby has stopped the behavior that was making him pace and agitated. He looks so much clearer today, rest and sleep will go a long way to restore him. This is all such a learning process for me, coming up soon on his one year anniversary of PD diagnosis. Until this weekend his dementia hadn't bothered him much, short term memory issues were basically the sum of it. Seeing him struggling this weekend opened my eyes and it really frightened me to my core. I pray he never has to go through that again. I want a bubble for my hubby too!
  8. He is utterly exhausted today. He slept in till 9, went back to bed at 11, and was only awake long enough to take his PD Meds. I think he will be a week getting over the agitation and pacing. I feel so bad for him. Thank you for your continued support.
  9. Hubby has no specific diet, he is a diabetic, we are very careful to avoid spicy foods, acidic foods and no alcohol. He was hospitalized for four days with Gasteoparesis, the pain was unbearable. The Gasteoparesis is the worst ailment he has, it affects his quality of life in so many ways. He takes Raglan, Zantac, Bentyl, and Omeprazole. Lately he has been vomiting a lot. If this continues they may inject Botox into the stomach to try and calm that down. For Gasteoparesis pain he takes two Tramadol, only when the pain reaches level six on a one thru ten level. Smaller and more frequent meals regiment do nothing for him, really even the multiple Meds don't do very much. Sorry to be a Debbie Downer, but l figured you wanted a real glimpse of the issue. Hope your tests are easy for you. Good luck!
  10. My husband has Gasteoparesis as well as Parkinsonism. He takes C/L four times a day on an empty stomach. He has to follow strict dosing times or it interferes with absorption.
  11. I began flu symptoms on Monday, negative for flu just viral. After Lysol and Clorox wipes didn't work for prevention, today hubby is full on sick with the same virus. During shower time he had such severe tremors, the bath was so warm we both got overheated and took turns throwing up. Not our desired mutual activity I assure you. He is now resting nicely on clean sheets, as am I. Let's hope that was the end of that crap. Much rather return to the aching body and wracking cough. Please no one else get this, it is miserable. Trying to keep him hydrated as he is diabetic as well. Anything else I should watch for as regards to PD? Thank you.
  12. PCP returned my call and orderedTamiflu this morning for hubby. His temp is still up, not as weak and he ate a tiny meal this afternoon. We got out his walker, insisted he use it, and made some other changes he didn't like but l did reason with him they were necessary. We both will follow up Monday as l may need steroids to get over this horrible cough, just so you know not a smoker and not around it at all. Hubbys chest is tighter than mine. Our DD and family postponed her California vacation to stay and care for us. God bless those caregivers. When l saw my SIL was here this morning it was so reassuring, he could pick him up like a sack of potatoes! I think hubby remembers a bit of how awful last night was for him as he has been so sweet today. Survived another crisis! We got this!
  13. . Thank you for your reply. I had to give him a shower, he had perspired so much and l hoped it would make him feel better and rest better too. I hadn't thrown up during my previous days and didn't occur to me hot room, sick as a dog caregiver! I am feeling better today thank you! Last night was horrific. His cough worsened, sleeping in another room couldn't happen l had no way to be sure l could hear his soft voice. He was weak from the sudden onset and was having trouble walking. I got him in bed and he starts fighting the covers trying to get up. He was so disoriented and you couldn't reason with him to stay in bed. We were still awake at 5:30this morning!! I left the room to call my daughter and hear a faint noise, you guessed it he was sitting beside the bed in the floor. He said he didn't fall, slid down like before, and he couldn't or wouldn't understand commands to try and help me get him back to bed. My SIL is a big guy, hubby is small, he managed after struggling so much with his noncompliance. I have a call in to PCP for instructions, if nothing there will phone Nuerologist next. What a awful night for him....and he is sleeping so well with moderate temp.
  14. I stole this tip too! I have to shower hubby and after shampooing I give the face and neck a good wash. Saves me time. When he gets cold in the shower his tremors are really bad, even tho it feels like a sauna in there. Any small thing to get him in and out quicker is a winner in my book!
  15. Enjoyed the sun today out and about between medical appointments, 39* here in Ohio. What a week of errands!
  16. I am so sorry to hear of your loss. Thoughts and prayers for you and your family.
  17. You are still a caregiver, he needs you as much as he ever did. I am sure this was a hard decision to make, I pray you will continue to improve your health. May he find comfort and have better days.
  18. Thank you for this excellent suggestion.
  19. I try to get hubby out for coffee, trip to the store etc. everyday. He is usually so tired from this small exertion it's bed for him the rest of the day. I fret and worry so about his physical condition but what else can l do? I know full well his continuing to decline physically will come back and haunt me later, but I am tired of the fight. It will be what will be.
  20. My husband is unable to exercise, when we have tried he is exhausted and takes a full day to recover. To combat the rigidity and back aches he sees an OMT doc every two to three weeks. It isn't ideal, but trying to explain to him the importance of movement with his dementia is nonproductive. This is the best l can do to answer his needs.
  21. Also remember if your primary insurance is Medicare and it denies coverage, your other supplemental won't be covered either. If you sign a ABN you will be liable for Medicare allowed charges for Medicare uncovered services. I have informed my daughter of these changes so she can be mindful of our best interests in the event l am the patient. My last hospital stay and two of hubbys were observation. This information was in our local newspaper, implementation was Jan 15, not positive on the actual date.
  22. There is also a new change in Medicare hospital policy, you must be actually admitted instead of the popular observation classification they usually use when using the ER. Observation status is no longer paid, as always checking your status is important while hospitalized. Sorry l don't have a link!
  23. Great advice! I need to get started on getting our "legal" house in order. Where to start? I keep putting it off, but l have to do this, it is as important as any other aspect of dealing with these health issues.
  24. Thank you! My friends and I went to dinner and our photographer hobbyist took pics and made them into Glamour Shots! We had so much fun with that!