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Pathfinder

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Everything posted by Pathfinder

  1. Dad newly diagnosed

    I agree that taking Meds is not a death sentence. My husband only takes C/L and is doing very well. Few tremors, fatigue is his biggest issue. He has multiple illnesses so that complicates things, all in all I am so grateful he is responding so well to C/L. He will have PD in March for two years, he is 78.
  2. Happy Holidays

    That was beautiful and powerful Adam. Thank you for posting.
  3. Happy Holidays

    I am grateful this season that my husband is lucid, alert, and thankful for one more Christmas together. His Gasteoparesis is not as bad for some reason, we are watching movies for the last three nights. I never have his company in the evenings, as he usually rests. I am aware that we never know what the next year will bring us, try not to let negativity creep in at quiet times. We had our 49th Anniversary this year, looking forward to that magical 50. I too hope you all can find the good.
  4. Caretaker tip

    Indeed it is lonely and life changing. I miss my husbands company very much, he is in bed most days, the exhaustion giving him no choice but to sleep. He also has Vascular dementia, and severe Gasteoparesis. When he is awake and alert I take advantage of it. I will post tips as I find out thru trial and error what works. I appreciate you all, the support really helps.
  5. Caretaker tip

    I just shopped for Cuddle Duds today, they had throws but wasn’t interested then. I will return to check them out further. Thank you!
  6. Caretaker tip

    Pressure sores cause me concern too. Hubby doesn’t have any now, but sleeps so much I am vigilant. He had MOHS surgery in January on his ear requiring cartilage removal. It didn’t fully heal until October. Cartilage is hard to heal normally, his sleeping so much contributed to slower healing. Excellent advice that I will file away if ever needed again.
  7. Good morning!!

    She wants her eggs back....🤣🤣
  8. Good morning!!

    Yes I do make gingerbread, but haven’t in a long time. i can’t do much at all as I have the flu, cough, aches, Meds make me feel just as bad sometimes as the cure! Today is day four, slightly better. The good news? So far, hubby doesn’t have it! Operation Lysol wins another one!
  9. Good morning!!

    Hey JB and everyone, I wish I were making pies but I will be doing 🍪 on Sunday to mail to the grands! I love all those delicious smells of cookies being baked. Hubby has had a rough patch lately, starting with a broken tooth, subsequent oral surgery and multiple appointments to fix everything. He hasn’t tolerated some of these things very well, but doing better at the moment. Have a good weekend everyone!
  10. When I read these replies I can really relate. Recently my husband who has PD and dementia had an episode where he made a huge mess, each time I tried to get him cleaned up he wouldn’t and couldn’t follow simple commands to stay still, move right here etc. it was maddening. It was the first time one of these episodes occurred and it really brings home the enormity of our caregiver experience. I will never be caught out unprepared again. I share your challenges ladies. Keep on knowing we are all in the same boat.
  11. Good morning!!

    Happy Thanksgiving to everyone! i am so thankful today that my husband is having a great day. He recently had a minor dental procedure that knocked him for a loop. It was a perfect storm of cascading issues we weren’t prepared for, but as his OMT doc says, now you know how to deal you will be better prepared. It took four days for him to recover. We prepared for oral surgery after that and it was smooth sailing and continues a run of doing well. What a journey PD, Dementia, and Gasteoparesis can be. Thankful also for all of your kindness and generosity of spirit!
  12. New guy here - a journey I'd like to avoid

    My husband gets awakening tremors a lot. They are real strong, lasting briefly, and a quick return to normal. He also gets them if he gets a chill before getting in the shower.
  13. Good morning!!

    I haven’t written on here for awhile, too busy caretaking and those never ending medical appointments. Ijust want to cozy up in a blanket because it’s cold here!
  14. PROGRESSION

    I am sorry that I can’t help you with your husbands issues. Hoping someone with experience will be able to help you.
  15. No Sleep For The Weary

    My husband takes Trazadone for sleep. It doesn’t make him groggy the next day. He takes it about fifteen to twenty minutes before bed. He rarely wakes up even to use the bathroom. He doesn’t tremor at all during the night. I hope you get some relief for her soon. It took a long time for us to find a sleep drug that worked. Good luck.
  16. what to do

    I am so sorry to hear you are having these issues. I can’t imagine the stress of PD, and worrying about your spouse, both things beyond your control. As a caregiver, my issue is a lot different than yours because my husband has PD, vascular dementia, and severe Gasteoparesis. So far his journey with all these problems has really affected him greatly, but his dementia prevents him from fretting over it or realizing the extent of what has happened to him. Thearpy would most certainly be ideal in your situation, however in my life experience some men want no part of that. Some men just seem to internalize their issues, aren’t as self aware of feelings and don’t analyze our responses to problems that arise in relationships. Do you have adult children, close family or friends whom you could confide in or discuss things with him? From the caregiver prospective, it is frustrating at times to deal with his health concerns and then there are mine. I am dealing with it well, have lots of support from family and friends to balance it out. One thing that gets to me the most is that I have all decisions to make, I miss that partner in all things that I used to have. I find every day something to be grateful for, I am a positive person and have always been. Please know I am here for you, hoping some others can help you. Stay in touch, I care.
  17. Good morning!!

    jb, I love these photos!!
  18. Good morning!!

    Hey everyone! Too busy with our many medical appointments to bake apple 🍎 pies! Your muffins sound delicious. Anything cream cheese is fantastic to me! My neighbors bought me three huge pots of mums. They are just gorgeous, here's to wonderful neighbors. We had those same temps and it was way too hot for us. have a great day everyone!
  19. Hair loss and stress and PD meds?

    I take GNC Women's Hair, Skin & Nail Formula. The recommended dose is two tabs with food, I only take one. Ironically I am going through a thinner hair episode now, I just try not to stress about it. I don't see hair in the tub because my hair is platinum! But, it sure shows on my styling brush!
  20. Hair loss and stress and PD meds?

    I don't have Parkinson's, I am a caregiver for my husband who has it. My experience with hair loss is stress related as well. My other symptom was hypothyroidism. Once I lost weight and had hair loss with that, the next time I had low hemoglobin levels and you guessed it hair thinning with that as well. Each time my hair returned to its normal thickness. My Endo says hair loss is a response to something going on in your body prior to the loss beginning, it runs its course and there you have it. I do take a women's hair and nail supplement and I think it helps. Sorry you are having this issue.
  21. Update on DH

    I am so sorry for your loss. May you be comforted in your remberances of him. What a day brightner to hear about your husbands positive experience at the Nursing home. I am so happy for you all. Continued best wishes for you both!
  22. Good morning!!

    Hey everyone!! No apple pies JB, right now it's pumpin everything!! Chai lattes, pumpkin coffee creamer, ready for these cooler temps here. Hubby is having an awful time with Gasteoparesis lately, the same as before. We have our Nuero appointment tomorrow, my list of things to discuss has been prepared. He is sleeping the day away most of the time, but I am not sure which condition is responsible for the change is sleeping patterns. The doctor spends as much time as we need, doesn't rush us out of there. Enjoy your day everyone!
  23. Good morning!!

    I am also in a grateful mood, my hubby is much improved after a depression med change. He is aware more, he is awake more and progressing well with PT. It is so nice to see these positive changes. Praying that it lasts. Let's hope everyone has something to be grateful for tonight.
  24. As non PD user of both Byetta and Bydureon for eleven years, I can attest to the weight loss side effect. I lost thirty pounds with these drugs using diet and exercise as well, these drugs suppress the appetite, overeating will bring on nausea and vomiting. Therefore, weight loss maintenance is easy. There is also a food aversion side to these drugs, spicy foods, certain sauces are to be avoided for me. Another effect is sometimes you forget to eat, the appetite suppressant is that good. Some doctors are prescribing this class of drugs now for weight loss even tho patients don't have diabetes. As far as cost, I get a 90 day supply for $85, if not for our premium insurance I would really have to budget! I plan on staying on Bydureon until my Endocrinologist says differently. Hope this helps.
  25. Good morning!!

    Hey everyone! Where are those Granny Smith apples ? I got lots of pies to make?!? Grandson is here today, spending the night, and we are seeing the movie Nut Job 2. Should be a lot of fun. Best of luck jb for your procedure, that's a long time to wait. Hubby is facing some ups and downs lately, he has to be so weary with it like I am. As for posting on our board, sometimes it takes too long to do when there is so much going on. As a caregiver and chief cook and dishwasher, pharmacy clerk, and chauffeur there isn't always lots of time left. Off to enjoy a nice lunch with hubby and GS!
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