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Everything posted by Pathfinder

  1. Pathfinder

    Space is your best friend

    We are fortunate to have two full bathrooms and hubby can still use either one. I am in stage four kidney failure and rapidly approaching home dialysis, now the issue will be where to put 30-35 boxes of dialysis supplies every month! 😜We will manage, like you, we will just do what we have to do!
  2. Pathfinder

    Good morning!!

    Awesome to see your post JB! Heal. Rest. Wishing you the best!
  3. Pathfinder

    Good morning!!

    I may not reply very much on the forum, but I read it every day. Warm thoughts to both of you during your surgeries.
  4. Pathfinder

    The period at the end of the sentence.

    I am so sorry to hear of your husband’s passing. My thoughts are with you, may you be comforted knowing that you gave him your devotion and care to the best of your abilities. Hugs.
  5. Pathfinder

    Parkinson's Disease & Dementia

    Tom, I am so sorry for your lack of support. Know that others care and we are here for your journey.
  6. Pathfinder

    Parkinson's Disease & Dementia

    Maral please accept my condolences on your loss. My thoughts and prayers are with you.
  7. Pathfinder

    Dad newly diagnosed

    I agree that taking Meds is not a death sentence. My husband only takes C/L and is doing very well. Few tremors, fatigue is his biggest issue. He has multiple illnesses so that complicates things, all in all I am so grateful he is responding so well to C/L. He will have PD in March for two years, he is 78.
  8. Pathfinder

    Happy Holidays

    That was beautiful and powerful Adam. Thank you for posting.
  9. Pathfinder

    Happy Holidays

    I am grateful this season that my husband is lucid, alert, and thankful for one more Christmas together. His Gasteoparesis is not as bad for some reason, we are watching movies for the last three nights. I never have his company in the evenings, as he usually rests. I am aware that we never know what the next year will bring us, try not to let negativity creep in at quiet times. We had our 49th Anniversary this year, looking forward to that magical 50. I too hope you all can find the good.
  10. Pathfinder

    Caretaker tip

    Indeed it is lonely and life changing. I miss my husbands company very much, he is in bed most days, the exhaustion giving him no choice but to sleep. He also has Vascular dementia, and severe Gasteoparesis. When he is awake and alert I take advantage of it. I will post tips as I find out thru trial and error what works. I appreciate you all, the support really helps.
  11. Pathfinder

    Caretaker tip

    I just shopped for Cuddle Duds today, they had throws but wasn’t interested then. I will return to check them out further. Thank you!
  12. Pathfinder

    Caretaker tip

    Pressure sores cause me concern too. Hubby doesn’t have any now, but sleeps so much I am vigilant. He had MOHS surgery in January on his ear requiring cartilage removal. It didn’t fully heal until October. Cartilage is hard to heal normally, his sleeping so much contributed to slower healing. Excellent advice that I will file away if ever needed again.
  13. Pathfinder

    Good morning!!

    She wants her eggs back....🤣🤣
  14. Pathfinder

    Good morning!!

    Yes I do make gingerbread, but haven’t in a long time. i can’t do much at all as I have the flu, cough, aches, Meds make me feel just as bad sometimes as the cure! Today is day four, slightly better. The good news? So far, hubby doesn’t have it! Operation Lysol wins another one!
  15. Pathfinder

    Good morning!!

    Hey JB and everyone, I wish I were making pies but I will be doing 🍪 on Sunday to mail to the grands! I love all those delicious smells of cookies being baked. Hubby has had a rough patch lately, starting with a broken tooth, subsequent oral surgery and multiple appointments to fix everything. He hasn’t tolerated some of these things very well, but doing better at the moment. Have a good weekend everyone!
  16. When I read these replies I can really relate. Recently my husband who has PD and dementia had an episode where he made a huge mess, each time I tried to get him cleaned up he wouldn’t and couldn’t follow simple commands to stay still, move right here etc. it was maddening. It was the first time one of these episodes occurred and it really brings home the enormity of our caregiver experience. I will never be caught out unprepared again. I share your challenges ladies. Keep on knowing we are all in the same boat.
  17. Pathfinder

    Good morning!!

    Happy Thanksgiving to everyone! i am so thankful today that my husband is having a great day. He recently had a minor dental procedure that knocked him for a loop. It was a perfect storm of cascading issues we weren’t prepared for, but as his OMT doc says, now you know how to deal you will be better prepared. It took four days for him to recover. We prepared for oral surgery after that and it was smooth sailing and continues a run of doing well. What a journey PD, Dementia, and Gasteoparesis can be. Thankful also for all of your kindness and generosity of spirit!
  18. Pathfinder

    New guy here - a journey I'd like to avoid

    My husband gets awakening tremors a lot. They are real strong, lasting briefly, and a quick return to normal. He also gets them if he gets a chill before getting in the shower.
  19. Pathfinder

    Good morning!!

    I haven’t written on here for awhile, too busy caretaking and those never ending medical appointments. Ijust want to cozy up in a blanket because it’s cold here!
  20. Pathfinder


    I am sorry that I can’t help you with your husbands issues. Hoping someone with experience will be able to help you.
  21. Pathfinder

    No Sleep For The Weary

    My husband takes Trazadone for sleep. It doesn’t make him groggy the next day. He takes it about fifteen to twenty minutes before bed. He rarely wakes up even to use the bathroom. He doesn’t tremor at all during the night. I hope you get some relief for her soon. It took a long time for us to find a sleep drug that worked. Good luck.
  22. Pathfinder

    what to do

    I am so sorry to hear you are having these issues. I can’t imagine the stress of PD, and worrying about your spouse, both things beyond your control. As a caregiver, my issue is a lot different than yours because my husband has PD, vascular dementia, and severe Gasteoparesis. So far his journey with all these problems has really affected him greatly, but his dementia prevents him from fretting over it or realizing the extent of what has happened to him. Thearpy would most certainly be ideal in your situation, however in my life experience some men want no part of that. Some men just seem to internalize their issues, aren’t as self aware of feelings and don’t analyze our responses to problems that arise in relationships. Do you have adult children, close family or friends whom you could confide in or discuss things with him? From the caregiver prospective, it is frustrating at times to deal with his health concerns and then there are mine. I am dealing with it well, have lots of support from family and friends to balance it out. One thing that gets to me the most is that I have all decisions to make, I miss that partner in all things that I used to have. I find every day something to be grateful for, I am a positive person and have always been. Please know I am here for you, hoping some others can help you. Stay in touch, I care.
  23. Pathfinder

    Good morning!!

    jb, I love these photos!!
  24. Pathfinder

    Good morning!!

    Hey everyone! Too busy with our many medical appointments to bake apple 🍎 pies! Your muffins sound delicious. Anything cream cheese is fantastic to me! My neighbors bought me three huge pots of mums. They are just gorgeous, here's to wonderful neighbors. We had those same temps and it was way too hot for us. have a great day everyone!
  25. Pathfinder

    Hair loss and stress and PD meds?

    I take GNC Women's Hair, Skin & Nail Formula. The recommended dose is two tabs with food, I only take one. Ironically I am going through a thinner hair episode now, I just try not to stress about it. I don't see hair in the tub because my hair is platinum! But, it sure shows on my styling brush!