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Everything posted by Pathfinder

  1. what to do

    I am so sorry to hear you are having these issues. I can’t imagine the stress of PD, and worrying about your spouse, both things beyond your control. As a caregiver, my issue is a lot different than yours because my husband has PD, vascular dementia, and severe Gasteoparesis. So far his journey with all these problems has really affected him greatly, but his dementia prevents him from fretting over it or realizing the extent of what has happened to him. Thearpy would most certainly be ideal in your situation, however in my life experience some men want no part of that. Some men just seem to internalize their issues, aren’t as self aware of feelings and don’t analyze our responses to problems that arise in relationships. Do you have adult children, close family or friends whom you could confide in or discuss things with him? From the caregiver prospective, it is frustrating at times to deal with his health concerns and then there are mine. I am dealing with it well, have lots of support from family and friends to balance it out. One thing that gets to me the most is that I have all decisions to make, I miss that partner in all things that I used to have. I find every day something to be grateful for, I am a positive person and have always been. Please know I am here for you, hoping some others can help you. Stay in touch, I care.
  2. Good morning!!

    jb, I love these photos!!
  3. Good morning!!

    Hey everyone! Too busy with our many medical appointments to bake apple 🍎 pies! Your muffins sound delicious. Anything cream cheese is fantastic to me! My neighbors bought me three huge pots of mums. They are just gorgeous, here's to wonderful neighbors. We had those same temps and it was way too hot for us. have a great day everyone!
  4. Hair loss and stress and PD meds?

    I take GNC Women's Hair, Skin & Nail Formula. The recommended dose is two tabs with food, I only take one. Ironically I am going through a thinner hair episode now, I just try not to stress about it. I don't see hair in the tub because my hair is platinum! But, it sure shows on my styling brush!
  5. Hair loss and stress and PD meds?

    I don't have Parkinson's, I am a caregiver for my husband who has it. My experience with hair loss is stress related as well. My other symptom was hypothyroidism. Once I lost weight and had hair loss with that, the next time I had low hemoglobin levels and you guessed it hair thinning with that as well. Each time my hair returned to its normal thickness. My Endo says hair loss is a response to something going on in your body prior to the loss beginning, it runs its course and there you have it. I do take a women's hair and nail supplement and I think it helps. Sorry you are having this issue.
  6. Update on DH

    I am so sorry for your loss. May you be comforted in your remberances of him. What a day brightner to hear about your husbands positive experience at the Nursing home. I am so happy for you all. Continued best wishes for you both!
  7. Good morning!!

    Hey everyone!! No apple pies JB, right now it's pumpin everything!! Chai lattes, pumpkin coffee creamer, ready for these cooler temps here. Hubby is having an awful time with Gasteoparesis lately, the same as before. We have our Nuero appointment tomorrow, my list of things to discuss has been prepared. He is sleeping the day away most of the time, but I am not sure which condition is responsible for the change is sleeping patterns. The doctor spends as much time as we need, doesn't rush us out of there. Enjoy your day everyone!
  8. Good morning!!

    I am also in a grateful mood, my hubby is much improved after a depression med change. He is aware more, he is awake more and progressing well with PT. It is so nice to see these positive changes. Praying that it lasts. Let's hope everyone has something to be grateful for tonight.
  9. As non PD user of both Byetta and Bydureon for eleven years, I can attest to the weight loss side effect. I lost thirty pounds with these drugs using diet and exercise as well, these drugs suppress the appetite, overeating will bring on nausea and vomiting. Therefore, weight loss maintenance is easy. There is also a food aversion side to these drugs, spicy foods, certain sauces are to be avoided for me. Another effect is sometimes you forget to eat, the appetite suppressant is that good. Some doctors are prescribing this class of drugs now for weight loss even tho patients don't have diabetes. As far as cost, I get a 90 day supply for $85, if not for our premium insurance I would really have to budget! I plan on staying on Bydureon until my Endocrinologist says differently. Hope this helps.
  10. Good morning!!

    Hey everyone! Where are those Granny Smith apples ? I got lots of pies to make?!? Grandson is here today, spending the night, and we are seeing the movie Nut Job 2. Should be a lot of fun. Best of luck jb for your procedure, that's a long time to wait. Hubby is facing some ups and downs lately, he has to be so weary with it like I am. As for posting on our board, sometimes it takes too long to do when there is so much going on. As a caregiver and chief cook and dishwasher, pharmacy clerk, and chauffeur there isn't always lots of time left. Off to enjoy a nice lunch with hubby and GS!
  11. As a type 2 diabetic I have lots of experience with Exenatide, first with Byetta and now Bydureon. I have successfully used these drugs for eleven years. I do not have PD, however if you are looking at safety and longevity with a non PD patient I can tell you they have been wonderful for me. I am a caregiver for my husband with Parkinsonism, thus my presence on this board. Hopefully you will find your answers.
  12. Good morning!!

    Good afternoon! Medical appointments today, our reward is a nice lunch out! Look forward to those. It has been so cool here, reminders of fall, must enjoy the season now and not long for sweaters and apple ? pie! Hey guys! Give jb some support here! ?
  13. For caregivers only

    Wow, where to begin. I have a similar story as those here. My husband is mobile, his dementia is mostly about short term memory, comprehension, and cause and effect. He has Parkinsonism and severe Gasteoparesis as well. Mostly he sleeps, throws up a lot, or dry heaves. I sort of do my own thing too. We eat meals together, I watch movies or do hobby projects whenever I need a creative break. He doesn't watch movies or sports tv anymore. He does read a daily newspaper, and I insist he walk around a store or market once a week just to get him out of the house. He just sleeps. All the time it seems like. He is doing PT for conditioning and lower back pain. We have a lot of specialists, numerous appointments, and it's a lot to keep up with. Like the others, he does PT, rehab, won't do the exercises at home and rinse and repeat! It is exhausting to take him to six weeks of therapy and to see it undone because he sleeps so much. He can't comprehend that he needs to do the exercise and we are back to square one. It is what it is, I am managing very well, for the most part hubby is stable for the moment and that is good news. Take care of yourselves, know that others care.
  14. Hospice

    Thank you for letting us know of your experience. It is very helpful and prepares me for what our lives may be like someday. I hope things are improved for you both. Know that others care, please come back again.
  15. NAUSEA ad nauseum?

    My husband has severe Gasteoparesis, he vomits a lot, has nausea and dry heaves almost daily. His Gasteoenteroligist prescribed Zofran with all meals. It helps somewhat. I would recommend you see your FP or GP for a referral since it has gone on this long. Wishing you better health.
  16. Good morning!!

    Hey jb! Love your song! Hubby supervised like the good ex Government employee he was! He would have loved to mow if he could. PT continues to help him, he is working with an excellent team, they really push him but he needs it or they wouldn't push. I can tell the biggest difference in his pain and posture. Heading out for a very stressful task, car shopping!
  17. Good morning!!

    Mowed our huge lawn today. I took my time, really pleasant weather too. I haven't mowed in twenty years, our SIL does the lawn but they are on vacation. Nice to know that I could manage it! Have a relaxing night, I'm watching The UnaBomber on Discovery tonight!
  18. Good morning!!

    Evening everyone! My little garden is steadily producing ? and zucchini. My herb pots make the best pasta sauces and bruschetta, everything tastes so delicious. Hope your gardens are doing well! My hubby is back in PT for his increasing lower back pain, it is helping him a lot! His OMT doc has said this pain is PD related. Have an awesome evening everyone!
  19. Good morning!!

    Good evening everyone! Busy enjoying summer here, relatives visiting, lots going on.
  20. Morphine in hospice care

    So happy he is enjoying summer foods bounty!! Continued thoughts and prayers for you both.
  21. Morphine in hospice care

    Genden, my thoughts and prayers are with you both as you journey onward. My father was given morphine as he was in pain and struggled to breathe, it really eased his passing.
  22. Good morning!!

    Good evening gang! Kind of quiet for our local fireworks tonight! We stayed home and away from the huge crowds expected and instead l went to the movies with my SIL. Hubby stayed home as he had some resting to catch up on. We saw the movie Baby Driver, quite the action and loved the sound tract. Such excitement we try to contain ourselves!? Have a great rest of your evening.
  23. Bucket list BEGINS!

    Happy travels! Sounds awesome!
  24. trazone

    Hubby uses Trazadone with excellent results, no unpleasant lingering sleepiness upon awakening. He tried so many sleep drugs before settling on this one. Good luck!
  25. Good morning!!

    Really enjoying this thread! Still unbearably hot and humid! Last minute chores have taken up my day, tomorrow family arrives and we will all be together!! Crossing fingers it's not too much for hubby!