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pdmanaz last won the day on April 26

pdmanaz had the most liked content!

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About pdmanaz

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  1. pdmanaz

    non tremor dominant

    I understand that tremor dominant persons with PD may have DBS in their future. What do non tremor dominant persons have for relief In their future? Is treatment different for these two groups and if so what is the different in treatment?
  2. pdmanaz

    Morning weakness

    In my mind and experience weakness is not the same thing as being tired or exhausted. I understand both. I felt a lot of weakness in my upper chest, arms and legs when first diagnosed. With medication most of that went away. My biggest issue now after being diagnosed about 3 years is chronic fatigue. Nothing much seems to help.
  3. pdmanaz

    A Flutter or A Fib

    More information. When I walk I have to walk slow or my chest tightens and breathing becomes more difficult. There seems to be some GI issues associated with this like gas or stomach discomfort. I take Mirilax daily and it works really well for what it is intended. Is there a max dose of sinemet I can take daily? I am currently on 2 - 25/100 4 times daily. 6am, 11am, 4pm and 9pm. I've started taking 1 xanax .25 mg and it seems to help some but not eliminate the issue. This is the meds I'm on. Again thanks.
  4. pdmanaz

    A Flutter or A Fib

    Yes that does help. Thanks
  5. pdmanaz

    A Flutter or A Fib

    My symptoms are more internal than external and i dont think I'm tremor dominant (externally anyway). I am having symptoms of either aFlutter or aFib. I do have an appointment with a cardiologist in a few weeks. But, i just finished a complete heart screening about 6 months ago and everything was ok. I had a few symptoms then but not the day of testing. Seems like the symptoms are getting worse. I won't go into ever detail of my feelings but the chest fluttering is very uncomfortable and see to be associated with Gi issues (gas). All this is very difficult to pin down. Is aFlutter or aFib a product of PD or Sinemet? I've been feeling so normal with Sinemet with the exception of Fatigue, chest fluttering, flip flopping in my chest, weakness, reduced ability to exercise. shortness of breath and some dizziness. The more i walk the more fluttering seems to happen. What do i do Doc? Regards
  6. pdmanaz

    Dyskinesia vs Akinesia

    If I am not tremor dominant am I more likely to have Dyskinesia or Akinesia? Can I have Dyskinesia if I am not tremor dominant? Can I have Akinesia if I am tremor dominant? Thanks
  7. pdmanaz

    Dyskinesia vs Akinesia

    If I am not tremor dominant am I more likely to have Dyskinesia or Akinesia? Can I have Dyskinesia if I am not tremor dominant? Can I have Akinesia if I am tremor dominant? Thanks
  8. pdmanaz

    CBD Oil

    Your sister would be breaking the law to send you something from Arizona. I can only suggest you read and figure out what is best for you. Not all marijuana is the same. GOOGLE any question.
  9. pdmanaz

    CBD Oil

    Tweets32 do you live in a state with medical marijuana. If not think about moving to one if practical. To be honest with you CBD oil alone will not be much benefit without THC in some ratio with CBD. I dont care what anyone says CBD from hemp simply isn't the same as a CBD strain from marijuana. Most of the oil given to children for seizures has SOME ratio of CBD to THC. A lot of companies selling CBD oil will claim all sorts of unsubstanciated claims and benefits. IMHO most are scams. I am a believer of THC.
  10. pdmanaz

    CBD Oil

    Medical Marijuana is as diverse as any other method of dealing with and medicating symptoms. There are literally hundreds of different strains, Indica, Sativa and Hybrids,as well as the cannabinoid and terpene structure of each strain. It is a difficult system to deal with because of it's complexity and it's so new. Our bodies are unique just like our Parkinson's symptoms and will react differently to each different aspect of Medical Marijuana. It will be a trial and error process to find out what works for each of us. The method of consumption will have different effects on our symptoms. Very few experts exists that we can ask questions of. We must read and read and read to learn as much as we can about this wonderful plant to find what combination is best for our symptoms. Don't expect immediate results. Some professional believe that in a lot of situations less marijuana is more and more works against you. In the midst of a potency-obsessed market where high THC marks mean everything, there is a growing community of cannabis advocates that are pushing for less consumption as opposed to more. This tactic is called “microdosing,” a growing trend as cannabis consumption becomes more mainstream. Micro-dosing is a method of consuming medical marijuana in small doses through out the day. Practitioners of microdosing are taking small amounts of cannabis in order to reap the medical benefits of THC while avoiding its psychoactive effects that can interfere with the demands of daily life. Taking medical marijuana is nothing more than self medicating. We can do this in an intelligent way with education and constant review of articles. ON your facebook page link to websites like Leafly, Medical Cannabis, MARIJUANADoctors.com. There are others. Understand what full spectrum is, understand how CBD and THC work together and not against each other. Remember marijuana is as diverse a plant as any other on earth. I know it works
  11. pdmanaz


    “Without dopamine, one’s ability to anticipate a positive outcome – or positive value – from a choice becomes a powerfully bad influence in one’s overall decision-making process. The default becomes “negative” or “no,” and that is not good.” - tells Peter https://parkinsonsdisease.net/?p=3251
  12. pdmanaz

    Tremor when nervous?

    Exactly what it is. You don't have to have PD to experience those symptoms. Find a way to avoid what you feel are the most stressful situations as a start. I think counselling may also be something to look into.
  13. pdmanaz

    Which Medicare Insurance to Choose?

    Stay away from Advantage Plans. Plan F or G IMHO would be best as a Medicare supplement
  14. pdmanaz

    Chronic Fatigue

    Diagnosed 2 1/2 years ago currently 72 yo. Taking 2 25/100 3 times a day and 1 25/100 between my noon and 7 pm dose. Was having GI issues but the mid afternoon dose has really helped that. My issue is chronic fatigue. I cannot do heavy work at all and minimal average housework without complete bone numbing fatigue. I've had a complete heart and GI workup and in perfect health. I've always had PD symptoms of weak feeling legs, and some fatigue but meds are taking care of that. My tremors on left side, arm, shoulder and internal are not a real issues as I can stop them once noticed. Every symptom is minimal, with current meds, at this point with the exception of the chronic, debilitating fatigue. Could I be getting too much Sinemet or dosage spacing? Ive recently relocated to South Florida and have an appointment in about 3 weeks with a MDS at the Cleveland Clinic in Weston. What would you suggest? THANK YOU