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Everything posted by pdmanaz

  1. pdmanaz

    non tremor dominant

    I understand that tremor dominant persons with PD may have DBS in their future. What do non tremor dominant persons have for relief In their future? Is treatment different for these two groups and if so what is the different in treatment?
  2. pdmanaz

    Morning weakness

    In my mind and experience weakness is not the same thing as being tired or exhausted. I understand both. I felt a lot of weakness in my upper chest, arms and legs when first diagnosed. With medication most of that went away. My biggest issue now after being diagnosed about 3 years is chronic fatigue. Nothing much seems to help.
  3. pdmanaz

    A Flutter or A Fib

    My symptoms are more internal than external and i dont think I'm tremor dominant (externally anyway). I am having symptoms of either aFlutter or aFib. I do have an appointment with a cardiologist in a few weeks. But, i just finished a complete heart screening about 6 months ago and everything was ok. I had a few symptoms then but not the day of testing. Seems like the symptoms are getting worse. I won't go into ever detail of my feelings but the chest fluttering is very uncomfortable and see to be associated with Gi issues (gas). All this is very difficult to pin down. Is aFlutter or aFib a product of PD or Sinemet? I've been feeling so normal with Sinemet with the exception of Fatigue, chest fluttering, flip flopping in my chest, weakness, reduced ability to exercise. shortness of breath and some dizziness. The more i walk the more fluttering seems to happen. What do i do Doc? Regards
  4. pdmanaz

    A Flutter or A Fib

    More information. When I walk I have to walk slow or my chest tightens and breathing becomes more difficult. There seems to be some GI issues associated with this like gas or stomach discomfort. I take Mirilax daily and it works really well for what it is intended. Is there a max dose of sinemet I can take daily? I am currently on 2 - 25/100 4 times daily. 6am, 11am, 4pm and 9pm. I've started taking 1 xanax .25 mg and it seems to help some but not eliminate the issue. This is the meds I'm on. Again thanks.
  5. pdmanaz

    A Flutter or A Fib

    Yes that does help. Thanks
  6. pdmanaz

    Dyskinesia vs Akinesia

    If I am not tremor dominant am I more likely to have Dyskinesia or Akinesia? Can I have Dyskinesia if I am not tremor dominant? Can I have Akinesia if I am tremor dominant? Thanks
  7. pdmanaz

    Dyskinesia vs Akinesia

    If I am not tremor dominant am I more likely to have Dyskinesia or Akinesia? Can I have Dyskinesia if I am not tremor dominant? Can I have Akinesia if I am tremor dominant? Thanks
  8. pdmanaz

    CBD Oil

    Your sister would be breaking the law to send you something from Arizona. I can only suggest you read and figure out what is best for you. Not all marijuana is the same. GOOGLE any question.
  9. pdmanaz

    CBD Oil

    Tweets32 do you live in a state with medical marijuana. If not think about moving to one if practical. To be honest with you CBD oil alone will not be much benefit without THC in some ratio with CBD. I dont care what anyone says CBD from hemp simply isn't the same as a CBD strain from marijuana. Most of the oil given to children for seizures has SOME ratio of CBD to THC. A lot of companies selling CBD oil will claim all sorts of unsubstanciated claims and benefits. IMHO most are scams. I am a believer of THC.
  10. pdmanaz

    CBD Oil

    Medical Marijuana is as diverse as any other method of dealing with and medicating symptoms. There are literally hundreds of different strains, Indica, Sativa and Hybrids,as well as the cannabinoid and terpene structure of each strain. It is a difficult system to deal with because of it's complexity and it's so new. Our bodies are unique just like our Parkinson's symptoms and will react differently to each different aspect of Medical Marijuana. It will be a trial and error process to find out what works for each of us. The method of consumption will have different effects on our symptoms. Very few experts exists that we can ask questions of. We must read and read and read to learn as much as we can about this wonderful plant to find what combination is best for our symptoms. Don't expect immediate results. Some professional believe that in a lot of situations less marijuana is more and more works against you. In the midst of a potency-obsessed market where high THC marks mean everything, there is a growing community of cannabis advocates that are pushing for less consumption as opposed to more. This tactic is called “microdosing,” a growing trend as cannabis consumption becomes more mainstream. Micro-dosing is a method of consuming medical marijuana in small doses through out the day. Practitioners of microdosing are taking small amounts of cannabis in order to reap the medical benefits of THC while avoiding its psychoactive effects that can interfere with the demands of daily life. Taking medical marijuana is nothing more than self medicating. We can do this in an intelligent way with education and constant review of articles. ON your facebook page link to websites like Leafly, Medical Cannabis, MARIJUANADoctors.com. There are others. Understand what full spectrum is, understand how CBD and THC work together and not against each other. Remember marijuana is as diverse a plant as any other on earth. I know it works
  11. pdmanaz


    “Without dopamine, one’s ability to anticipate a positive outcome – or positive value – from a choice becomes a powerfully bad influence in one’s overall decision-making process. The default becomes “negative” or “no,” and that is not good.” - tells Peter https://parkinsonsdisease.net/?p=3251
  12. pdmanaz

    US Patent on Cannabis

    Found this very interesting US Patent on Cannabis relative to Parkinson's Disease and thought I would share it. You can Google "US 6,630,507 B1" . en.wikipedia.org/wiki/File:US-patent-6630507.pdf There are other links as well on Google.
  13. pdmanaz

    Tremor when nervous?

    Exactly what it is. You don't have to have PD to experience those symptoms. Find a way to avoid what you feel are the most stressful situations as a start. I think counselling may also be something to look into.
  14. pdmanaz

    Chronic Fatigue

    Diagnosed 2 1/2 years ago currently 72 yo. Taking 2 25/100 3 times a day and 1 25/100 between my noon and 7 pm dose. Was having GI issues but the mid afternoon dose has really helped that. My issue is chronic fatigue. I cannot do heavy work at all and minimal average housework without complete bone numbing fatigue. I've had a complete heart and GI workup and in perfect health. I've always had PD symptoms of weak feeling legs, and some fatigue but meds are taking care of that. My tremors on left side, arm, shoulder and internal are not a real issues as I can stop them once noticed. Every symptom is minimal, with current meds, at this point with the exception of the chronic, debilitating fatigue. Could I be getting too much Sinemet or dosage spacing? Ive recently relocated to South Florida and have an appointment in about 3 weeks with a MDS at the Cleveland Clinic in Weston. What would you suggest? THANK YOU
  15. pdmanaz

    Which Medicare Insurance to Choose?

    Stay away from Advantage Plans. Plan F or G IMHO would be best as a Medicare supplement
  16. pdmanaz

    Trying Sinemet

    A question about Sinemet. What exactly does C/L do for symptoms? I read a lot on here people taking a full regimen of meds but still have symptoms that dont seem to be helped by c/l. Is c/L just for tremors and muscle issues? I find it helps with my GI issues and generally just makes me feel more human I do have serious issues with fatigue that c/l doesn't seem to be helping much. Thanks for your replys.
  17. pdmanaz

    CBD Oil--Does This Work?

    Ok, just understand that using inferior products won't meet expectations. CBD from marijuana has stringent testing requirements for purity, and is governed by state laws. Sorry to say hemp CBD does not. There some good products out there but it's crap shoot.
  18. pdmanaz

    CBD Oil--Does This Work?

    CBD from HEMP does not have the same "full spectrum " as CBD from marijuana. IMHO CBD from HEMP is inferior to that of the whole flower in marijuana. There are many strains of high CBD and low THC that can be obtained from dispensaries in MMJ states. Some people will disagree with me, but so be it. Do your research. Do not believe everything you hear. Use the links provided in this post.
  19. pdmanaz

    GI Issues - severe

    Just recently had a complete checkup with Gastro doctor - upper and lower - No problems but i do have Gerd and I believe IBS. Also complete heart work up. I am as health as a horse with the exception listed below. I was diagnosed in September 2015 with Parkinson's Disease via MDS. I am currently on 2 - 25/100 C/L 3 times a day. As far as my visible symptoms i am doing ok in that my left side is affected. My left leg drags a little and my left arm up into my shoulders well as internal tremors has a visible motion at times. Those symptoms seem manageable with my current dose of meds. My biggest problem is my Gut. I've had GI issues for years but seem much worse as time progresses. My stomach is very sensitive and will react to almost any food with acid reflux. On the other side of this, my colon seems very sensitive and has gone into spasms causing me severe pain and gas as well as double, triple vision and dizzyness. After i have a BM things settle down and i start feeling better. I'm not taking any PPI's (just got off after 5 years). Currently trying to use Zantac, Pepto Bismol and Gaviscon to control things. I am also taking Miralax to combat constipation. Nothing is working well at all and thinking about going back on PPI'S. Should i increase my C/l or what would you recommend? I was just at my MDS in New Orleans but thought i was getting things under contol, but im not. I guess i need to go back. But, would like to hear your take on things too please. Thank you
  20. pdmanaz

    Medical Marijuana

    Since Florida is now a Medical Marijuana state have you done sufficient research to determine if MMJ can be used by Parkinson's patients? Would you recommend MMJ and if so under what circumstance? The medicinal use and maintenance of MMJ can be a difficult undertaking I know. Marijuana is not a simple plant. Thank you
  21. pdmanaz

    GI Issues - severe

    There was 7 hours between my noon and evening meds. I added one 25/100 about 3:30 pm and believe it is making a big difference. I am feeling better. I'm seeing Dr Sutherland in Sarasota, fl in May and will follow up with him. Thanks for everything.
  22. pdmanaz

    inhaled levadopa

    Music man - I've been taking zantac in the evening 1 hour before my dose of CD/LD and so far no issues.
  23. pdmanaz

    Trying Sinemet

    I think it depends on age when diagnosed. Most diagnosed YOPD seldom start with C/L from my understanding. I was diagnosed at 69 and was started on C/L. Never any mention of anything else.
  24. pdmanaz

    Trying Sinemet

    Just a reminder that not everyone gets dyskenisia. It is not a given when using C/L.