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Wrkjnky13

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About Wrkjnky13

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  1. Wrkjnky13

    Dr Glickman

    Has anyone used Dr Glickman in Las Vegas Nevada? Due to the size/ shape of my head , I need a frameless procedure. Dr Glickman uses the nexframe design. Looking for some background information on him and the nexframe design. Due to a failed procedure and a lack of options he is the only option besides traveling. Im trying to avoid another failed procedure Go figure Dr fails to measure my head and procedure gets cancelled and my insurance gets bulled 13k. In which I have to pay the deductible and coinsurance. And pay for sn additional procedure Any help is appreciated Don Las Vegas Nevada
  2. Wrkjnky13

    Frameless deep brain stimulation

    As my head is elongated do you know where I can find the dimensions of the frames?
  3. I was at the hospital all pre-op requirements completed, waiting to have the halo secured to my head when he found it wouldn't fit. My original MRI noted a elongated cranium, no surgery. So he said the only option was a frameless design. Didn't know when of if he could get it. I have lost confidence in my neurosurgeon. Now Im concerned that he has no experience with a frameless. Being referred to another neurosurgeon, they tell me he uses the frameless design. Is it more difficult? I have asked several facilities about frameless procedures. They don't know it even exists. Could you tell me the difference between frameless and framed, is there higher risks with frameless? Any help is appreciated
  4. Wrkjnky13

    Diagnosed at 40 very scared

    Im sorry to hear you have been diagnosed with PD. I hate it, it hates me. I was diagnosed in jan 2015. At 40 yrs old. My first Neurologist was a disaster. Just a horrible experience. I was on carba/leva 25-100 1 pill 4 times a day. The depression from the diagnosis had started. Went for a second opinion a MDS. My first visit he prescribed lexipro. My moods were out of control. It helped but not enough. He increased the lexipro on the next visit and started me on an progression of increasing carbadopa till i was comfortable. Finally some relief. I was in a bad way, It took me several months to get out of my chair and away from the TV. My wife forced me to get up and do things my brother had to do all he could to get me out working on my truck. It took my family to get out of my funk. I was hiding from everyone and everything for 8months till it clicked. And my local support group helped, it was a simple brunch at Mimis cafe. I had a dat scan to confirm PD. But as I have learned more I dont believe that its an accurate test. My opinion from information that I have been given and what I have researched. Join a support group listen to the stories and tell your own. Check the meet-up app/website. Increase the meds as necessary with help from your doctor for QUALITY OF LIFE. No need to be struggling with this anchor. I have learned my YOPD is progressing at a different rate then in older people. Not trying to scare you. Take everything you hear with a grain of salt. No ones symptoms are the same as well as no one can fix it for you. Get a free book from the Davis Finney Foundation. And learn as much as you can. Dont put anything off do it today because you might not feel like it tomorrow. Don
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