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DaynaE

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About DaynaE

  • Rank
    Member
  • Birthday 11/15/1965

Profile Information

  • Gender
    Female
  • Location
    Ohio
  • Interests
    Silver Sneakers and Aquacize classes at my YMCA, PD specific classes at our local hospital Healthplex

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57 profile views
  1. For the past two days I have had great difficulty with sensitivity to light. Had a hard time driving to work due to brightness. Once I got there, walked into the darkened dining room and my eyes had a hard time adjusting, and again when I walked into the brightly lit kitchen. As a server, I am constantly going from kitchen to dining room, and I had to stop and focus each time, and keep my eyes mostly closed in the kitchen. Otherwise waves of dizziness came over me. Also for the past several weeks I have had problems with playing Bowling King and other games. Movement on the screen makes me feel like the room is spinning. I had to close my eyes or look away. Looking at a comuter screen, tablet or phone is very hard too. Any help or suggestions are appreciated.
  2. I was diagnosed with PD February 24, 2017 by my Neurologist. One of the most irritating symptoms I have had in the past 6 months has been a chronic cough. This has been going on daily since August. Sometimes it is just a cough that can be soothed with cough drops Other times, the cough gets severe and I go into a choking spasm. I am a non-smoker. I do not know if this cough is even related to PD or not, but I am thinking it could be. Is this something that can be controlled with something other than cough drops? I am using anywhere from 10-20 cough drops per day... definitely keeping Hall's in business, haha! Many thanks for any advice that can be given.
  3. I was diagnosed with PD February 24, 2017 by my Neurologist. One of the most irritating symptoms I have had in the past 6 months has been a chronic cough. This has been going on daily since August. Sometimes it is just a cough that can be soothed with cough drops Other times, the cough gets severe and I go into a choking spasm. I am a non-smoker. I do not know if this cough is even related to PD or not, but I am thinking it could be. Is this something that can be controlled with something other than cough drops? I am using anywhere from 10-20 cough drops per day... definitely keeping Hall's in business, haha! Many thanks for any advice that can be given.
  4. Thanks for everyone's responses. I thought it was strange that I rarely have a resting tremor, but get a major thumb tremor when walking. Nice to see I am not alone in this.
  5. Hi Stump! Thanks for your reply. I do not have any type of disability insurance from my employer. Would my Neuro's office handle the neuropsych exam?
  6. I was just diagnosed with PD, and had my first Physical Therapy appointment today. The PT did an assessment and I scored 42 out of 56 on the Berg Balance scale. Interpretation:​ 41-56 =​ independent ​21-40 = walking with assistance ​0 –20 = wheelchair bound So, I scored on the low end of independent. Although I was just seen by my Neurologist January 25, 2017 and Diagnosed February 24th, many of my non-motor symptoms go back years, and I have been able to document my hand and leg tremors going back three years, based on old Facebook posts. My job is a server in a chain restaurant where we also have to dance every hour for a short period. My ability to dance, and especially do a 360 turn (impossible at this point, without falling) is extremely hindered. My hands have problems grasping things, and separating paper napkins to lay on the table for drinks. I have trouble carrying plates and trays, get dizzy while carrying large trays of food, and I am concerned I will no longer be able to do my job efficiently within the next year. I am 51 years of age and have been a server for 8-1/2 years. I was in an office environment prior to that, before being downsized. I have no college education and no real other job prospects I can see at my age that would not require me on my feet and moving around a lot. A friend said I should attempt to file for disability now, even though I am still working. I am not sure if that would be the correct thing to do or not. However, I fear my PD is farther long than most who have been just diagnosed, based on my symptoms (38 total now and counting), severity of mobility issues and dizziness, as well as the poor score on the PT test. I honestly see myself at Stage 3 based on all that. The movement issues have gotten extremely worse since last June. Especially with my abilty to do the foot moves required in the line dances at work.... songs I could dance to three years ago are next to impossible to do now, and my thinking, memory and other brain difficulties are also greatly affecting my work. Any guidance would be appreciated. Thank you.
  7. I was just diagnosed with PD, and had my first Physical Therapy appointment today. The PT did an assessment and I scored 42 out of 56 on the Berg Balance scale. Interpretation:​ 41-56 =​ independent ​21-40 = walking with assistance ​0 –20 = wheelchair bound So, I scored on the low end of independent. Although I was just seen by my Neurologist January 25, 2017 and Diagnosed February 24th, many of my non-motor symptoms go back years, and I have been able to document my hand and leg tremors going back three years, based on old Facebook posts. My job is a server in a chain restaurant where we also have to dance every hour for a short period. My ability to dance, and especially do a 360 turn (impossible at this point, without falling) is extremely hindered. My hands have problems grasping things, and separating paper napkins to lay on the table for drinks. I have trouble carrying plates and trays, get dizzy while carrying large trays of food, and I am concerned I will no longer be able to do my job efficiently within the next year. I am 51 years of age and have been a server for 8-1/2 years. I was in an office environment prior to that, before being downsized. I have no college education and no real other job prospects I can see at my age that would not require me on my feet and moving around a lot. A friend said I should attempt to file for disability now, even though I am still working. I am not sure if that would be the correct thing to do or not. However, I fear my PD is farther long than most who have been just diagnosed, based on my symptoms (38 total now and counting), severity of mobility issues and dizziness, as well as the poor score on the PT test. I honestly see myself at Stage 3 based on all that. The movement issues have gotten extremely worse since last June. Especially with my abilty to do the foot moves required in the line dances at work.... songs I could dance to three years ago are next to impossible to do now, and my thinking, memory and other brain difficulties are also greatly affecting my work. Any guidance would be appreciated. Thank you.
  8. #Word search.... Oh my, did THIS hit home!!! This has HUGELY become a problem for me at work. I have had a hard time remembering names and little things for several years, but over the past year or two, the names of common objects escape me constantly. At work I am constantly pointing to things like coffee filters, Ketchup, extra styrofoam cups, which can sometimes be out of my reach with my short height. I have taken to pointing, because if I stand there trying to remember or say the name of something it will take forever. Wow!!! I'm NOT alone with this. I have Alzheimer's on both sides - my mother, her brother and my father's mother, so I greatly fear getting that. However, my neuro said the MRI indicated I did not have Alzheimer's, thank god.
  9. Hope everyone is doing well. Well, I was expecting this and it happened... I was diagnosed with Parkinson's. My MRI was clear, but the Neuro said he expected that. He just wanted to rule out stroke, tumor, etc. He diagnosed me with Parkinson's, upped my Requip to 2mg per day with Extended Release tablet, and referred me for physical therapy for 3 times per week for 1 month. My pharmacy said the insurance company has to approve the XR tablet, and I have not obtained that approval yet. I also attended my first yUHr Move class at the local Hospital Healthplex. This class is Tuesdays & Thursdays and is provided FREE courtesy of Movers & Shakers Against Parkinson's of my County. It is for anyone with a movement disorder. So glad to have this class available to me. I begin my first physical therapy session tomorrow at the same Healthplex, and will be seeing the same therapist that normally does the free class. Since I have only 30 PT sessions per year, I was thinking about maybe asking the therapist if the two free classes are similar to PT. If yes, could possibly do one PT session per week (and the two free classes) to extend the sessions to 7 months instead of 4 weeks. I am also doing Silver Sneakers fitness classes M-W-F and Aqua Fit T-Th afternoons at the YMCA. I plan to do the free classes in the morning on T-Th and Aqua in the afternoon. Busy schedule!!! I just started Ashwagandha as well. Who is taking it and what is your optimal dose? I see anywhere from 450mg to 6,000mg per day... very wide range! Hope everyone has a great day! Dayna
  10. Hi Cheesehead! I just signed in to respond to your post about your doctor, and saw you responded here. Welcome! I hope you find the answers you need as well. My main doc who would not look at my symptom list is through the County Health Dept. I have to wonder if he dismissed me without looking at my symptoms list due to the fact I am on Medicaid? You mentioned not having insurance... I was in the same boat as you until a year ago when I was told I qualified for Medicaid due to low income. Perhaps check into that. I thought you had to have kids to qualify, but apparently you do not. By the way, I had mentioned the medication had no effect on my symptoms, and still hasn't. If anything, my insomnia has gotten much worse and I have only slept about 2 hours over the past two nights. My MRI was yesterday afternoon. I told the lady who did it I didn't have an appt with my Neuro until the 24th, but would they call with results? She said the results should be available in 5 days and I could call the office next week. Best of luck with your journey!!
  11. I know one of the main symptoms is a "resting tremor", but does anyone else have a distinct hand tremor while walking? I first noticed my tremor about 6 months ago at work. My right arm no longer swings and I tend to hold it in an L shape at my side. , I noticed I get a severe pill rolling tremor while walking. Has anyone experienced this? DaynaE
  12. Hello all! Thought I would give you an update. After raising hell with my PCP, I did receive a referral to a Neurologist. Was to have an appointment December 19th, but they rescheduled to January 25th. That appointment went very well, and the Neuro is pretty sure I have PD. Will have an MRI on February 7th and a follow-up with the Neuro on Feb 24th. He started me on Requip 0.25mg 3x per day. I'm on day 6 and no response to symptoms so far that I can see. So very glad I got a referral and will get to the bottom of my problems, whether it is PD or something else. Thanks for everyone's great advice, and I look forward to participating more in the forum. Have a great day, everyone! Dayna
  13. Patriot, the tremor is in my right hand and occasionally right foot. Have not had left side issues except for muscle spasms at night. Those hit right leg and foot, but have alternated to left side occasionally. My "facebook memories" today showed a post from 2013 that I complained about Leg cramps, hand tremors and hands tingling that kept me awake all night. I honestly have no memory of that episode. I get leg cramps overnight from time to time, but apparently this was very bad and painful. I do know my short term memory is shot, and yes I do have Alzheimer's on both sides of my family - my mother and her brother, and my dad's mother. A response to someone I made on that post said I wish I knew what was causing it, but as far as I had researched, leg cramps and hand tremors can equal Parkinsons. I didn't get any medical treatment at the time because I had no insurance. I do now have insurance, and today called to find a neurologist who takes my plan. The one that does is booking out to late December already. They do require a referral from a PCP so I called asking the PCP to consider writing a referral. I will see what happens. Thanks for everyone's help. It means a lot to have someone respond who has gone through similar situations. Parkinson's or not, I just want to find out what is wrong and get the symptoms under control.
  14. Thanks to all who replied. Most of the symptoms have been going on at least the past year - the tremor about 4 months now. The insomnia is getting worse and the nighttime urinary issues have spread to daytime urgency as well. My instability and dizziness has gotten more pronounced in the past few months. I will definitely talk to another doc and see if I can get a referral. Thanks to all. At first I thought I was being overly paranoid, but the more I thought about it the angrier I became. To say someone does not have something when they didnt even bother to go over the list of symptoms is simply careless.
  15. ** UPDATE 1/31/17 see page 2 *** I was researching Parkinson's a few weeks ago and was astounded to find I had well over 20 symptoms. I made a doctor's appointment with my Primary doctor. That visit was today and I left the visit even more confused. He did not do any tests other than to have me grab and squeeze his fingers, and stand, while he gently prodded my stomach. He did NOT have me walk to see my gait, he did NOT stand behind me to pull me back and see how my balance was. He stated my slight tremors were not bad enough, that he would not do anything for Parkinsons unless I was in full blown shaking tremor mode, and wildly shook his hands to demonstrate. He said the Parkinson's med side effects are worse than the symptoms, but he would run basic blood tests to see if it something else. I was taken aback that he did not ask me my list of symptoms or ask to read it. I would think almost 30 symptoms would warrant a referral to a movement specialist or neurologist, or at least a chance to go over the list with him, but he didn't think so. Is this all in my head or did this doc just blow me off?!?!? Here are the symptoms I am having on a very regular basis: Hand tremors - pill rolling movement Some tremors in leg too Rigidity in hands - muscles flex and cannot move fingers Similar happens in legs and feet. Problems getting up or out of car. Once out, cant get going quickly - slow shuffling gait, walk hunched over Easily lose my balance. Lose balance in shower leaning back to rinse hair Dizziness when getting up or bending over/standing up Definite loss of sense of smell Severe fatigue insomnia, difficulty falling asleep Waking up frequently Have to get up several times to pee Nighttime leg cramps/spasms Sleepy during the day Handwriting seems smaller Short term memory loss Difficult to make decisions Difficulty multi-tasking Difficult to comprehend things Difficulty judging distances Speech changes - softer Apathy - no interest in anything Urinary issues - constant need to pee and incontinence Constipation is back big time Blood pressure increased last year - first time ever Depression starting in due to apathy If anyone has suggestions on my next move, it would be greatly appreciated. I don't want to wait until this is so bad I am unable to work. I am only 50 and need my job, however these symptoms are already creating havoc at work and at home. Thank you. DaynaE