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BillBRNC

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BillBRNC last won the day on March 4

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About BillBRNC

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  1. Stump, I agree with everything you said, but I worry that simply reducing the amount of money in the budget will lead to many qualified people getting denied in some districts while unqualified people continue to be given benefits in other districts. Not all SSD districts operate by the rules, others do. You can guess for yourself which ones do and don't, but it isn't overly hard to figure out. The bureaucracies that administer these programs are often totally out of control, and that needs to be fixed right away in all government programs. Just my two cents.
  2. I was on SSD for about 8 years before hitting my full retirement age, and it really helped. Did I truly need it, no. Did it really help, yes. I can see making sure that the law is followed in making the initial disability decision, but arbitrary cutting the budget for SSD makes no sense, since that would mean that some people who qualify and need it will end up being denied. My view is that they should give SSD the money needed to fund the program, then require them to have good judges and such to insure that non-disabled people don't get disability. If there ends up being money left over in the budget, then just add it the next year's appropriation. If you go for a number of years with surplus, then maybe consider reducing the budget, but not to the point that SSD fails of its essential purpose. Yes, it sure looks like Trump's budget intends to cut not only meat, but bone, and I don't like that one dang bit.
  3. Dave, thanks for the suggestion, a thank you also to PD.
  4. Yeah, I know this looks like a dumb title. My first question is about taking Sinemet too close to the time of eating, before or after. I've read that protein interferes with the absorbing of the Sinemet. Ok, does this mean that only some of the Sinemet takes longer to do it job, or does it mean that of portion of the Sinemet is lost and does nothing? Next question deals with Constipation. I've had constipation for about a year or more, progressing in severity over that time. My neuro says that the constipation is likely due to the Parkinson component of my Lewy Body Dementia. He has me taking Miralax for it, something to do with muscles in the gut not working right. So, I'm just wondering if this is a common problem for PD? If so, what do folks take other than Miralax? That's it for now, but I thank you for putting up with these questions.
  5. I eat two Saltines right before taking my doses of Sinemet, even if I'm eating right after taking it. It blows my stomach away if I don't.
  6. I've not traveled across time zones since diagnosis, but I would assume that you continue taking your pills every 3 hours using the time in Boston. I'm not sure, but there is either 2 or 3 hours difference between Boston and Arizona, but you should keep your medication on Boston time just like you do now. Every three hours. Now, if you're going to stay in Arizona for several weeks or more, then maybe consider moving the time, but personally I would not. As for the help at the airport, just tell them at least a day ahead what you need, and the airline should take care of everything. If not, just tell the gate agent that you need help, and tell them what you need. You might have a longer wait, but it shouldn't be too long. Good luck and enjoy your trip.
  7. I Googled swallowing exercises and go a lot of them. I just picked one that looked to be legit and that had the same stuff I had read in other Google hits. Good luck.
  8. FF, thanks for the reply. I have been using exercises I found online, but it seems to me that this is just so important to quality of life. I guess I will get my neuro to refer me to a SLP. I recently finished the BIG movement therapy program at the same place that has SLPs, so I guess that's the place. Thanks again. Bill.
  9. I have a problem with aspirating fluid and having trouble swallowing pills. Are the swallowing exercises worth the effort? I assume so, but thought I would ask.
  10. MusicMan, sorry for not replying earlier, but I just saw your question. For me playing the banjo, my mail problems are fingers stiff when not expected, fingers just doing whatever they want, but the dementia side of my Lewy Body Dementia Parkisonian stuff means sometimes the names of songs and the lyrics just get lost in a fog. Not a big deal, but the fingers just seem to not work, hard to explain. Of course, if I get an upper body shake then that fairly well messes up everything. I can still play most of the time, and I just fake it if I can't play or remember words. If I'm jamming with others, they know my problem and they just pick up the open spots for me, unless I forget the song entirely before I've started, then that can pose problems if they didn't know what I was going to do. Keep on picking or strumming. Bill.
  11. Sharker, would Marinol do the same thing?
  12. I started Qigong about two months ago. Love it. Great for body, balance, and mind. I'm 66, but many years ago I used to be 3rd Degree Black Belt in Karate. I stopped due to injuries in tournaments, plus my wife was really pissed about constant broken ribs. Anyway, I have forgotten most of all that stuff, although I'm sure some would come to mind if needed. But aggressive/fighting Tai Chi strikes me as not being good for people like us. We need the calm, peaceful movements of Qigong, at least in my opinion, plus it is something my wife likes to do with me, and that's nice. Although only one class a week, we have several good DVDs, so we use those the rest of the time at home. Yes, I take the meds too for the Parkisonian symptoms associated with my Lewy Body Dementia, which sucks by the way. Good luck to all of us in finding our way thought this strange world.
  13. Now, don't make fun, but like all folks within the AARP age limit, we get in the mail the monthly AARP magazine. This month's has a really nice article about Michael J Fox, with pictures and lots of quotes. I don't ever read AARP, but I wanted to see what Fox had to say. It is a great article. And it contains his 4 or 5 rules, can't recall exact number. When I read them, he is right as rain. The whole article was spot on, worth the read, for new and old timers with PD.
  14. I can tell you without any qualification that your relationship with your Dad means more to him than anything else in the world. I too have trouble swallowing and my lose my voice whenever it decides to go away. The voice part doesn't really bother me, but the swallowing is downright scary, plus a pain the butt. Good luck, and just be there for your Dad.
  15. I was late taking a dose of Sinemet and my neck and shoulders, along with just about everything else, got tight and uncomfortable. When I tried to loosen up my neck and shoulders, I ended up actually pulling a muscle due to my efforts. Now, I don't have the normal stiffness and pain because I'm up to dosage on my Sinemet, but I'm left with a painful pulled muscle in my neck. Now, I know this will go away within a day or two, so that's not my inquiry. I'm just curious how common self-induced muscle strains and pulls happen because of trying to loosen up from the Parkinson stiffness and pain. Just wondering.