• Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


BillBRNC last won the day on March 4

BillBRNC had the most liked content!

Community Reputation

18 Good

About BillBRNC

  • Rank
    Advanced Member
  • Birthday

Profile Information

  • Gender
    Not Telling
  • Location
    North Carolina

Recent Profile Visitors

108 profile views
  1. Lethe, a question for you if you don't mind. Is the class you attend a class for just Parkinson types, or is it regular people class? The classes I have access to are open to the general public and I imagine few if any Parkinson folks would be there. Thanks.
  2. Thanks. I'll be checking the early onset board. Also, thanks for the heads up on the Taoist method.
  3. I'm looking for something that my wife and I can do together, but that will also help hopefully significantly with movement and balance issues. Being able to include my wife and do something with generally normal people seems like a good idea. Of course, my service dog will kind of give me away so to say, but I don't care about that. I also completing the Big program thing, so I'm looking for something longer term. Thanks.
  4. Lad, I might be wrong, but the PWR thing looks very similar to the LVST Big program. Is there a connection you know of. I like what little I just read about PWR, as I'm looking for something that I can incorporate into my daily life to push things to a higher level while living my life at the same time. Am I missing something? Thanks. Bill.
  5. Do most of you guys engage in regular daily vigorous workouts for improved movement and balance. I don't mean normal working or at work or home. A fairly formal method to state engaged with body and other people? Is this necessary, or can just regular life activities do the trick so long as a person walks and does normal retired stuff on a daily basis. Thanks.
  6. I've been looking at these Trionic things. I don't need one yet, but I like the larger wheels so you can go on grass and off-sidewalk. I'm sure they aren't as great as they are made out to be, but I might be wrong, so I'll keep them in mind.
  7. I start the LSVT Big thing tomorrow at 1 in the afternoon, then M-Th for four weeks. I hope it helps with balance some. I started Sinemet about a month ago with general good results. I'm still getting dosage dialed in properly with meals and such, but the stuff most surely works. I went to high with the dosage, and now I'm pulling back a tad. I don't know if this will mess up the PT person in the Big program. I don't have actual Parkinson's, but Dementia with Lewy Bodies, and the Parkinsonian stuff is really going strong right now. I often wonder if Alzheimer's, Lewy Bodies, and Parkinson's are really just variations of the same thing.
  8. I'm sure glad we can all agree on this, as I for one don't come here to read a bunch of political claptrap.
  9. Sandal, I hope someone who knows more than I do answers your question. You might ask the doctor a question in the other section. I take the same dosage as you. When I went higher, things didn't go so well for me, but I'm ok at current dosage. A MDS would have seen far more of this sort of thing, but that doesn't make him right, but he sure knows more than I do. I wish you good luck.
  10. Roger, I appreciate your comments. Yes, I have very specific views of suicide or better stated would be withholding of food and hydration unless I ask for it and actually feed myself. I have an Advanced Directive that so states, but who knows if my wife will follow it or the hospice folks will follow it. That said, I also understand and appreciate you veiled comment that you disagree with this, and you sure don't need to explain yourself to me. To each, their own. On the other hand, I am becoming more and more of the view that this entire portion of my life is just another challenge to be met and dealt with in a manner more successful than in the past. My main concern is my wife and family and leaving them without resources for the future, although I have plenty, but possible not enough. Bottom line: I agree that is would be best for me to hit this head on and leave the "wow is me" stuff to someone else. Thanks you for your views. Bill.
  11. I'm not sure about the facial mask thing, but my wife is always telling me to try to look happy. Drives me nuts, but she is great at most everything else. I look at myself when I shave and I don't think I look messed up. I have to say, though, that facial mask is one thing I don't give a tinker's damn about.
  12. I upped from one and a half to two a couple days ago, and last night at dinner the bottom fell out. I think I had every adverse reaction listed, but I made it home, to bed, no sleep, felt terrible, wanted to destroy the world, then up this morning and feeling worn out but better. I forced myself to take the prior one and one-half pill dosage per my wife, and I hope this still works. Message to the newly wise is not to push my luck. My wife is calling the neuro today to discuss, but nothing more seems necessary for now. This suck.
  13. Ken, thanks. I figured it would be something like that. Good luck. Bill.
  14. Just wondering, is there a point at which increasing the dosage actually ends up increasing the symptoms that had been taken care of by a lower dose? Is the test of how much is enough really just deciding when enough is enough to make life reasonably tolerable? I'm just wondering about this types of simple things right now. Thanks.