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Sandy Zajdel

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About Sandy Zajdel

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    Santa Cruz, Ca.

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  1. Treating Dystonia

    Hi everyone, I have been on Carbidopa/Levedopa 25-100 1 1/2 tablets 3x day and started experiencing a constant, involuntary movement in my foot. I can only assume that the constant movement created a "tendinitis " effect and was so painful that it felt like an elephant stomped on my foot!! Originally doctor thought it may be triggered by the medication. After visiting with the MDS, he believes it is dystonia and recommended it be treated with Clonazepam (Klonopin). Has anyone here experienced any of what I am describing? Thanks, sandal
  2. Hand tremor while walking?

    Posted 03 February 2017 - 02:42 AM Hello.. My symptoms started exactly like that. Bent at the elbow while walking and no arm swing. Eventually I started my Tremor. I can stand with arms to side and Tremor (postural tremor) or at resting position or action like walking. No pill rolling just shake. I am definitely Tremor Dominant. . D Edited by Discovery, 03 February 2017 - 02:44 AM. Hi there, I have also been told that I have tremor dominant type Parkinson's . The MDS also stated that this type of Parkinson's does not always respond well to medication. I have been on Sinemet but does not have a significant impact. I've also noticed a constant need to move my foot since starting to take this medication. Anybody else noticed this?
  3. New here

    Thank you all so much for the kind and supportive words. All of this is completely overwhelming and it is nice to know that there's a place to go and ask questions and feel like other people will understand what you're saying. Gardner... The foot issues are really the need to move my toes constantly which has caused the top of my foot to feel like it's been stomped on by an elephant! I wouldn't say it's really a trem but more of the constant need to move it. I notice it almost all the time with some rare moments of Non movement. Yes I agree, if only I had the energy to stay busy all the time it would be much easier. Unfortunately I also have Hashimoto's autoimmune hypothyroidism. This takes a strain on a lot of my energy and causes fatigue which makes the PD now even more challenging. Looking forward to getting to know all of you on this forum. May 2017 be kinder to all of us!
  4. New here

    Thank you for the advice Adam! I am definitely trying to get myself educated with everything regarding PD though sometimes it feels completely overwhelming. I'm certain diet and exercise will help, I'm just worried about going back to work at a desk job. My symptoms seem lessened when I stay busy. Based on things that I have read, I understand that it will take a while to get medication sorted out properly. Just trying to stay positive. Sandy
  5. New here

    Hello everybody, I am 57, I was diagnosed in August 2016. I had been having symptoms since July 2015, it all started with my neck hurting and tremoring that started in my left hand. Have had many visits with two different neurologists, my first medication to try was Artane, this had absolutely no effect on the tremor but put me into a black hole of depression and fear anxiety and crying all the time. It was horrible after going off of that I was then started on Sinmet, after having an appointment with an MDS my dosage is now up to two tablets three times a day. It has had some affect on the tremor but I noticed now I have a constant muscle movement in my left foot and toes which has made my foot extremely sore. I was told by the MDS that I have what's known as tremor dominant Parkinson's. Has anyone else heard of this and any advice for the pain in my foot.