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About joeideal

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  1. joeideal

    Opinions on diagnosis

    I have my Dat Scan date which is Wednesday the 18th of October. I have 3 tablets which have to be taken before and after the scan to block my thyroid. Injection at 12 noon then 4 hours later the scan will be performed. I am hoping to get the results pretty fast as i fly off to the Canary islands for an 8 day break on the 27th. The not knowing is more feared than the knowing.
  2. joeideal

    Opinions on diagnosis

    Hi CLDM i have same issues as yourself both lower legs tighten with hell of a cramps, kicks in at anytime whilst walking, i walk usually 6 miles every 3-4 days with my wife, had the tightning for a few years which started left side then over years moved to right side. One day not too long ago and for no reason whilst carrying out the same walk i came to an instant stop and i nearly fell this was coupled with severe cramping pain in my lower legs. I too have neck and left shoulder stiffness i have little left arm swing and constant limp on left side, i also suffer from rem or rbd 3-4 times a week, and have mild depression. Not too long ago and whilst on holiday, I attacked my poor wife in my sleep by kicking her once in the leg , immediately when home i sought help and an explanation, the guilt was horrendous for doing something i knew nothing of doing to my wife this also had the knock effect of causing further depression , Doctor prescibed clonazapam or klonapin which luckily reduced the rem, these symtoms have been ongoing for a few years. I too have no rest tremor. After the terrifying walk scenario which i actually thought i was taking a stroke, i again went to Doctor then sent again to the Neurologist who immedialy requested a DAT SCAN within the next 2 months as my finger tap test on left fingers, left foot tapping test, rem sleep disorder and left hand tapping test were not as good as he would have liked. ill let you know how it goes I am 47 years old
  3. joeideal

    Early onset after major stress

    Hi otolorin Thank you for replying My Neuro and GP have my best interests at heart and i truly trust both which i think is a good start for any person with illness. My GP has been a real gem who constantly monitors me every 3-4 weeks, takes notes and passes to my Neuro. My GP explained that there are so many ilnesses that can mimic each other especially in early stages that time is what will give a correct full diagnosis with two of the main difficulties being MS and PD which closely relate to each other in early stages. A diagnosis will be done on a process of elimination. My MRI for MS was clear and to date my blood tests have been fine apart from elevated cholesterol which i have medication for. In fact the FND was diagnosed due to myself having bad shaking episodes, hot flushes, feeling sick and faint when i was in consultation with my Nuero, my wife said that i was very Anxious and thought i was having a panic attack. I actually thought it was because i had a cold comming on and the hospital being hot coupled with poor sleep just elevated it. Now not sure what caused it but i have noticed that i do start shaking when feeling vulnerable or in crowds, something i never suffered or had before.
  4. joeideal

    Early onset after major stress

    I am 47 years young and have not been diagnosed with PD as yet because gp thought i had MS, However i do have ongoing hospital appointments and my first visit with Neuro 3 months ago and a long 1 hour long exam i was diagnosed with FND with further scheduled visits arranged with the Neuro due to displaying Parkinson type symptoms not MS as first thought. I,ll update this post with outcome as i,m due second Neuro visit in September. Neuro has ruled out MS and said not PD but due to displaying Parkinson symptoms and non Parkinson symptoms which he said is very rare he has decided to keep a careful watch over me which has left me with a Limbo diagnosis of what is going on. During my first Neuro exam I had a Negative hoovers sign and lack of left arm swing, no mask no tremors and had limited movement in left ankle and left arm. In my case i have left side weakness, left leg limp/drag stiffness in Achilles heal and shin with odd tremor on femur and foot, sometimes take really bad cramp in left foot that pulls my foot like a claw especially after exercise which leaves me with foot pain for a couple days. Always stiff in the morning and during repetitive tasks i will slow down. I get little sleep, no trouble falling off to sleep but waken nearly every morning between 3 and 5am, i suffer night tremors shout and kick in sleep usually 2 or 3 times a month and when stressed the symptoms get much worse. I also suffer from anxiety and depression due to the frustration of sleep and lack of movement. I first noticed symptoms a few years ago when my walking was becoming difficult then stiffness every morning left side slightly dominant but more a whole body stiffness that stays for a few hours, i also have terrible trouble turning over in bed and getting in and out of the car . I thought i had injured myself in the gym or whilst walking and actually thought the symptoms would go away but they have not. One year ago GP put me on Clonazapam(Klonopin) which Neuro stopped as i felt they did not work, GP then wanted me to try anti depressants which i did try to get some sleep but due to them making me feel dizzy and out of it i stopped them, medication was mitrazapine 15mg. I have a permanent Achy left shoulder and sometimes neck with limited movement but i do not have a tremor. My symptoms are better some days than others and has me thinking its all in my mind. I constantly exercise every day and cannot run or jog anymore because i usually take instant cramp or pull muscles in my left heal due to the stiffness which is a put off so now stick to walking, I also weight train every other day even though the exercise causes slowing down, what used to take 40 mins in walking same distance is now at 2 hours because i just keep getting slower with left leg dragging and getting achy, i get to the point i have to wait 5 mins before i set off again. Whilst weight training my left arm will give in pretty fast, the reduced movement during exercise contributes to my anxiety and depression however on a good note i feel that for a few hours after exercise i have more energy, no idea why but it feels that way. My body weight is all over the place and i find it very difficult to control now which is very frustrating, i mostly eat healthy foods . My Limbo diagnosis has me in the frame of mind and attitude of "who cares about yesterday or tomorrow its today and a new day". I am now trying tai chi which i find is very relaxing and long term hopefully help with my sleep issues. A diagnosis will help me move on but the new way with neuros is diagnose with Fnd until they are sure they have it right.
  5. Dr.Okun Its difficult to put into writing but i,ll try my best. I have left side stiff and achy muscles mostly left leg calf, foot and a perminant achy left shoulder. I have trouble rolling over in bed to the left side, have trouble getting up from bed and rest and difficulty getting in and out of the car. My left leg seems to be behind if that makes sense. i suffer from terrible nightmares which occasionaly wake me up from the little sleep i am getting at the moment. on average i sleep maby 2-3 hours per evening as i,m constantly woken by the stiff achy muscles down my left leg. The lack of sleep is now causing depression as the achy tight muscles will not go away. Just last week i took the most horrendeous cramp i have ever taken in which my left foot twisted inwards this in turn caused pain for 2 days " it was that severe". Its common for me to choke on food and my own saliva and have had episodes of stopping breathing whilst trying to sleep. Lately my left foot at times seems like its super fast vibrating inside " a bit like water running really fast being poured from height over your skin" its so annoying i pull off my shoe thinking that will stop it but it never does, the annoyance finally clears on its own accord after a while. I cannot walk too far i start to slow down because left leg starts getting painful and drags which is really pi!!sing me off now. I have been to gp and he thought i had ms, he then sent me for an mri scan and the results came back clear. Within weeks due to symptoms i went back to gp and he pushed for an urgent appointment. to which i am awaiting the consultation for. I wrote here because i am right handed and for the life of me i could not get a written report i needed to do written, "i just could not do it" my writing was a mess then kept like flatlining. Anyway long story short a good friend who worked in a hospital environment most of his life as a senior staff nurse noticed the handwriting and asked if i had other problems which i causually told him about, he then told me to go back to gp and get refered back to the neurologist as he thinks i am showing classic symtoms of young onset parkinsons. I was shocked he mentioned this, personally in all arrogance i thought it was a disease for older people, i,m only 47years old keep an active as possible lifestyle and visit the gym reguarly however that attitude changed quite fast after doing some research on pd. My job in electronics in which i own my own small business is suffering as the circuit repair has now stopped as i just cannot carry out the fine motor skills anymore. At times when asked how i feel when i cant walk well. I tell people imagine your in a pool of water or in the ocean but only knee deep, i explain thats what it like trying to walk at times exactly the same as trying to move through the water. Its the only way of explaining how i feel at times. Dr.Okun. I have not listed all symptoms as i dont think there is a way to list and put everything to writing, i do not have resting tremor however my right pinky will tremor when my arms are raised horizontal, i can only list what is mostly happening. Do you think my good friend is right in his part diagnosis can it be Young onset or do i worry too much. Personally i,ve done enough research now to accept diagnosis so wont be too much of a shock. I actually think it would be comforting to get to the bottom of my annoying symptoms and hopfully get some sort of life back. Thank you