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Lorit249

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About Lorit249

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  1. Lorit249

    Anxiety causing tremors and off time

    It's called 7 breathes
  2. Lorit249

    Anxiety causing tremors and off time

    Welcome to the group Brian - sorry you are here though. I have a breathe app on my phone that I do daily. I think anxiety is a bit natural but I think knowledge helps - The more I know the better I feel. My diagnosis was a year ago
  3. Lorit249

    PBS Frontline film on PD - My Father, My Brother and Me

    Thank you for sharing - it was interesting and I have to say a bi uplifting.
  4. Lorit249

    Feeling worse with Rasageline

    Here's the link to the info about the study I'm in - https://clinicaltrials.gov/ct2/show/NCT02789020 I think it's important to note that it isn't the drug company paying for it - It's the National Institute of Neurological Disorders and Stroke (NINDS) My doctor said he's heard for years that Azilect slowed the progression of PD and they are trying to prove it.
  5. Lorit249

    Feeling worse with Rasageline

    I'm in a study testing Alizects ability to slow the disease so I may or may not be on it. I told the research assistant after three months that I thought I was on placebo because I felt no change from the medication. She said that there were 34 people in the study at that point so statistically 17 should be on it and 17 not - but only 2-3 reported any effect. So I think not feeling anything is par for the course. Good luck
  6. Lorit249

    Tremor when nervous?

    I find moving around - walking makes it go away faster. It seems to be the shot of adrenalin for me and as soon as I get the adrenalin out of my system I'm fine. It's worse when I'm sitting or confined.
  7. Lorit249

    Cogentin for tremors

    I asked this in the Pharmacist thread....My doctor prescribed a drug for me for tremors which were becoming noticeable. All my other symptoms were manageable. Any way the drug was not available so doc and pharmacist decided on Cogentin. What I'm reading about it doesn't seem to cover tremors. My tremors are better but not that much (but I feel wonderful overall. My question is do you prescribe Cogentin for tremors, does it need to build in my system perhaps and also can I drink alcohol at all? Warnings seem light and I'm off to Ireland in a few weeks. Thank you Anyway anyone have experience with Cogentin?
  8. Lorit249

    Cogentin for tremors

    My doctor prescribed a drug for me for tremors which were becoming noticeable. All my other symptoms were manageable. Any way the drug was not available so doc and pharmacist decided on Cogentin. What I'm reading about it doesn't seem to cover tremors. My tremors are better but not that much (but I feel wonderful overall. My question is do you prescribe Cogentin for tremors, does it need to build in my system perhaps and also can I drink alcohol at all? Warnings seem light and I'm off to Ireland in a few weeks. Thank you
  9. Hi George, I'm 49, three kids, and diagnosed in April. I've avoided meds too but am thinking about starting them - the rigidity in my neck is so annoying. I first noticed symptoms years ago - slight tremor, arm not swinging as much but symptoms intensified in the last year. Finally consulted Neurologist in April and was delivered the news. Anyway I'm not much help but know that you are not alone.
  10. Lorit249

    Good morning!!

    Haha Lad - good thing she told ya! I get that too - lucky us!
  11. Lorit249

    Official diagnosis today

    MelissaI know exactly how you feel. After being told I didn't have PD by my primary and his PA, I was convinced I had MS. I was crying because I just KNEW something was wrong - I'm not happy to have PD but Its such a relief to put a name to it, to connect with others like me and to know how I can fight. Welcome to the group!
  12. Lorit249

    Back from Gainsville and Azilect Study - any others?

    Yes that's te goal - to test if Azilect slows the progression - we will see.
  13. I'm taking part in an Azilect study at U of Fl and just wondered if anyone else here is in the study.
  14. I just got my results from 23 and me and I don't have either the LRRK2 or the GBA genes - what does that mean? Am I less likely to pass it on or perhaps not PD? Lori
  15. I agree - if you find answers please post. I'm making a note to ask my MDS in /october
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