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Bluemoon

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  1. Yes, you're right, I didn't think about it. As far as I know, there is a local PD Association, but I'm pretty sure it's for everyone, not specific for YOPD. Will ask. Thanks Linda!
  2. Hi Linda, thanks for your input. It is indeed a good idea to post this in the Ask the Doctor section, will do that. I'm not sure if my MDS is available by email. They did give me a kind of "direct line" to my doctor's team. I can call at any time if I have an issue. Still don't know much about the dynamics of the group since it was my first appointment. But it looked like they were very dedicated to the patients. It was a bit shocking since there was no one my age. And I got to see what my future with PD will look like through other patients in the waiting room. But apart from that, all good
  3. LAD, you remembered – thanks for that It went well, I felt very understood and taken care of. I won't start any medication yet since I still want to have kids. I am well emotionally, I asked a thousand questions and my appointment went on for two hours. So it's all good! x
  4. Thanks LAD! That's very helpful
  5. Hi everyone! I've been reading you all but haven't written since May. Tomorrow is my first official visit with my MDS, the specialist who will likely take care of me in the long run from now on. I've already got a huge list of things I'd like to ask, but just in case: what do you guys think a newly diagnosed YOPD should ask on their first visit with the specialist? Those things that maybe you don't think about initially but with time you realize they're something you should've ask from the beginning. For example, one of my issues is that I suffer from malign neuroleptic syndrome, an acute condition provoked by a temporary inhibition of dopamine on the brain (such as the one caused by any medicine with metoclopramide on it). One of my questions is how this will affect the possibility of being provided with DBS in the future, since in order to perform the operation, L-dopa meds need to be completely removed in a short period of time, and some people develop life-threatening MNS when this happens. So things like that, important things that you perhaps don't think about asking on your first visit. Thanks in advance for your help!
  6. Thanks Murray, I'll discuss it with my MDS and I'll let you guys know his feedback.
  7. Hi Murray, thanks a lot for your input. I'm not on any meds yet since I'm yet to see the specialist who will evaluate treatment options with me and prescribe them. The good specialists belong to the public healthcare system here in Spain and it's not particularly quick. So I was thinking about not starting any meds until after pregnancy. But I don't know whether that's a good idea. Regarding my symptoms, I have mixed feelings. They're not very notorious to other people because I don't look sick and I'm always in good spirits, and also I already exercise a lot. So they wouldn't know if I didn't tell them. But I do notice my symptoms quite a lot. The extreme mental fatigue, the slowness of movements and reasoning, the tremors, the lack of fine motor skills. So I don't know if they're "advanced" enough to demand meds or I could go by for a while on just exercise and a stress-free way of life. What is certain is that I have a DAT scan which says that I have PD without a doubt. From your experience, what do you guys think?
  8. Hi Dr., I've been looking for medical information related to artificial insemination & PD but I haven't found anything at all. I'm interested in checking if the estrogenic meds typically provided to women who are getting ready for an AI can interact with PD meds or worsen PD symptoms if no PD meds are being taken. I'm planning to get an AI but I've been recently diagnosed with PD and my gynecologist doesn't know if the two (AI meds & PD) can be compatible. I'm still waiting for my appointment with my MDS, where I will talk about pregnancy & treatment options, but in the meantime I thought that perhaps you'd know more about it. Many thanks in advance.
  9. Thanks Lad, I'm sure I will!
  10. Francesblo, LAD, these are great resources, thank you very much!
  11. Hi Francesblo, thanks for that. I didn't know it was supposed to be so intense. I was actually thinking about transitioning to a milder workout routine, since like I mentioned before I'm losing strength on my left side and some exercises are becoming harder to keep up with. But after your comment I won't go milder, definitely. I'll try to look for something similar to Delay the Disease & Rock Steady Boxing in Spain, I don't think we have these particular programs but I'm sure there must be something similar, just with a different name. Here in Spain healthcare is a bit different from the US, any specific referral regarding PD physical therapy will surely come from my MDS, not the primary care doctor. So I'd rather wait & see what he recommends me. I also think it's a good idea to look for support groups on my local PD association. Will keep you posted
  12. Thanks Lad!
  13. Lad, many thanks for sharing your point of view! I know you've sent me a private message 'cause I got a notification but I haven't figured out yet where the PMs are in the forum haha will look up the FAQs Thanks!
  14. Hey guys, wow, thanks for your replies! Your tips are super useful. I appreciate heaps you taking some time to give me your precious advice. I'll try to do as you say. Stump, I see you're a big F1 fan, I don't think I could wake up at 5am to watch a race. Enjoy it! Just out of curiosity, what kind of exercise should I start doing? I've read aerobics are super important. How much aerobic exercise should I be doing? I exercise about 4 days a week, but I'm not sure if I should be doing something more PD specific, nor I'm sure about the intensity. My trainings are usually quite intense, about 1h long. Also, I'm pretty worried 'cause I'm notoriously losing strength on my left side and it's a problem when I do weight lifting. What kind of training do you guys follow? How many days a week? Thanks again everyone!
  15. Oh, so sorry! Forgive my ignorance. Anyway, thanks for this welcoming, I feel safer now and I'm happy to be here. It's good to have a place like this!