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Manolo

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About Manolo

  • Rank
    Member
  • Birthday 04/23/1954

Profile Information

  • Gender
    Male
  • Location
    Mississippi Delta
  • Interests
    Papaw, Dad, Husband

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  1. I have had Parkinson's for more than 2 years, but have refrained from taking meds. I am considering taking medication to control the tremor in my right hand and arm.. In your experience, what is the most effective medication for controlling Parkinson's tremor? Thanks, Manolo.
  2. Manolo

    Is it his PD or could it be his way to deal with PD?

    Hi Shannon, Does the Pramipexole control, reduce or remove the tremor? I've been diagnosed for a couple of years but have not started medication. My job may become more exhausting and more stressful, depending on whether I am offered and accept a promotion. If I get the promotion, I will meet with personnel often and I need to control my tremor. I'm considering medication, but I want to decide on the most effective in controlling my tremor. Thanks, Manolo.
  3. Manolo

    Tremor when nervous?

    I am not on any meds but I was wondering if when I do start taking them, how much will the meds help stop the tremor. Forty years ago, when extremely anxious, I would have a steady shake in both hands. Now, 40 years later and 2 years after being diagnosed, I have a PD tremor (right arm/wrist/hand) that gets more violent when I get extremely anxious. Tonight, at my 8 year old grandson's baseball game, the tremor was pretty violent. I get into the game so it doesn't bother me. It bothers me most sometimes at work when I get real anxious, I have to type with only my non-tremored left hand. Lad, I haven't posted in several months, but I remember one of your past posts where you were speaking in front of a group, you wrote that you had a significant tremor. Since reading that post, I often wonder, do the meds control the tremor? Evidently no, at least in anxious/anxiety situations.
  4. Jul, Swamper alerted us to 2 excellent articles. Your cut and paste from the second article clarifies and dampens the excitement from the first article. However, the second article seems to give us 2 choices as to what the drug is doing. The 2 choices from the cut and paste are 1. "a neuroprotective effect" or 2. "simply stimulating a dopamine-based positive motor outcome". The Number 2 choice raises the question, If the drug is just causing a positive motor outcome, doesn't that have enough merit to use the drug simply for the improved or "positive" motor outcome? Would the dopamine-based stimulation cause undesirable side effects? I don't know enough about the mechanism of L-dopa, but is the action of the Exenatide (dopamine-based stimulation) mimicking the mechanism of L-dopa, thus dooming Exenatide to have the eventual undesirable side effects that the majority of L-dopa users encounter down the line? In other words, what is the downside of simply stimulating a dopamine-based positive motor outcome? Of course, most everyone would hope that Exenatide is neuroprotective, but if not, do the trial results indicate a worthwhile PD drug? Unfortunately, I'm always seeking answers from the crystal ball...this shiny computer screen in front of me. But maybe you or someone can answer the questions. Thanks in advance. Manolo
  5. Dear Swamper, What an excellent set of articles you led me to. Thank you. Based on the articles, I'll sit back and wait...regarding the drug. However, I'll certainly bring the topic up at my next Dr.'s visit. Also to Pathfinder, thanks for the response.
  6. Well...I found the Search space in the upper right hand corner of the screen and typed in Exenatide. It has been discussed on the Forums in a limited fashion. Here is why I ask about this med: Recent news reports suggest that trials have great results for PD patients using Exenatide. The benefit is specifically seen in improved motor function. Seems like the trial participants were all on L-dopa. The participants who received Exenatide showed improvement; the placebo participants showed worsening. Anxious to hear of anyone's experience or knowledge of this drug.
  7. First, if there is discussion about Exenatide on the Forums, please advise me and I'll go there and read. Questions: 1. What are the chances of getting my Neurologist or my Movement Disorder Specialist to prescribe Exenatide for PD? My next scheduled visit is 4 months away and I don't take meds. 2. Do you have experience with or knowledge of Exenatide related to PD? Side effects? Use for Diabetes? I don't get a chance to visit the forums very often so this subject (Exenatide) may have been discussed and re-discussed; I was unable to find discussion thru a brief search. Some may have experience with an innovative or free thinking MDS who is willing to prescribe a med that was originally intended for a disease other than PD. I would appreciate your experience/story.
  8. Manolo

    Worried about having Young-Onset Parkinsons

    Is anyone aware of literature of subsets of PD patients? I see one subset as YOPD; what are the qualifications to be included in YOPD: under 50...under 40? Of course I would like to find data on PD people with my symptoms, my age, possibly the same sex, etc. Then I would like to find the average time at Phase 1, Phase 2, etc. If data exists, I would like to use it as a crystal ball...to see my future more clearly. That's what many of us want to know...what is the timeline.
  9. I stumbled thru the scientific literature. I hope more info is forthcoming. Does the efficacy of atremorine lean toward a dependence on the patient's genetic pre-disposition? I may have mis-understood. Anyway, since I am not dementiated...yet, a thought occurs to me: I think it goes without saying, the genetic make-up of an individual impacts the efficacy of everything: drugs; words/advice; relationships; etc. Not saying that everything is pre-determined; just saying one's genetic make-up provides a pre-disposition for some outcomes.
  10. Manolo

    Is loss of arm swing a dead give-away for PD?

    Thanks MurrayPD2. Heck, the Drs. don't have all the answers. I value input from people with PD and caregivers to PD people. I did not hurt my shoulder. It's PD. It just took some adjusting to accept it.
  11. Manolo

    Is loss of arm swing a dead give-away for PD?

    I do not take any meds yet. I plan to start Azilect as mono-therapy in a week. I am scheduled to visit my neurologist and I assume he will prescribe it. I'll ask him whether the Azilect may help with arm swing. I hope it works on arm swing, soreness, tremor, neuro protection, and maybe it will give me insight to pick the numbers on the next big lottery. I'm hoping. Maybe I should just hope that it doesn't have intolerable side effects.
  12. Manolo

    Is loss of arm swing a dead give-away for PD?

    I am already diagnosed. Full fledged PD...6 months ago. Probably had it much longer. I've had the tremor for 16 months, stiff neck and shoulder for 2 years and diminished sense of smell for 5 years. With my question, I was just grasping at a what if it isn't PD. Like I posted, I am just about over the acceptance hump. Just about. What would be the name of another condition or disease that might cause one to stop swinging an arm?
  13. As I read the posts, I begin to associate symptoms I have with the symptoms of others with PD. I thought my loss of smell was due to zinc nasal swabs that were supposed to be for killing cold germs and lessening the length of the cold. Now, I second guess and wonder if the loss of smell is due to PD. I don't have a complete loss, just significantly diminished sense of smell. By the way, the zinc nasal swabs were taken off the market due to the danger to sense of smell. I am super afraid of progression...rapid progression as opposed to slow progression. Kinda funny, I am hoping I decline... slowly. I'm not hoping I decline...just hoping I decline slowly. Like, MJF, I am about over the acceptance hump. As I write this, I got a tinge of honor to have something in common with MJF. Here's the question: Is loss of arm swing associated with anything other than PD. I have to make myself swing my arm now. It's magnified when I work in the yard...heavy tremor with no arm swing. My thoughts may seem scattered, but they are ordered to me. Here's my thought process. Probably not realistic to think, but I don't want to have any psychosomatic symptoms. I've got plenty of real ones. Manolo
  14. Manolo

    Good morning!!

    I read thru the posts, evaluating different approaches to PD. Most of the time, I seriously read the posts, and sometimes I read with elevated concern. It is such a joy to stumble on a post that makes me smile and elevates my mood. LAD's posts have made me smile more than once. Thanks LAD..
  15. Manolo

    Emma Watch

    Fascinating. At my work, I can still hide my tremor... to a degree. A couple of closer co-worker friends have questioned me about the tremor in my right hand and arm, but most co-workers have not noticed. I am not ashamed, but there are several reasons why I don't care to announce that I have PD. The watch, if it works, would be handy. Thanks for sharing. Manolo .
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