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About Mark5151

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  • Birthday 12/08/1965

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    Pittsburgh pa

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  1. Mark5151

    Mucuna Extract vs Mucuna Whole Herb

    There are a bunch of good books about mucuna p on amazon. I have not heard about any long term concerns. Usually it’s just a math problem on what dosage to take and how to factor in how much is getting to the brain (Carbidopa helps with sinemet and mp has something similar etc...) im I newbie but hoping to just use mp and no other meds for tremors.
  2. Mark5151

    CBD Oil--Does This Work?

    Thanks for more feedback, I purchased a vape from thekindpen.com and got a cbd oil cartridge and some cbd oil that I use to fill the cartridge. Verdict is still out on: - does vaping cbd work better than using under the tongue? - does cbd from hemp, without any thc work in general? worst case senario I think cbd helps with anxiety, inflammation and health. I do think it helps with my tremors (but just a little) wish pa would hurry up with making medical marijuana an option! im still not on any prescription drugs and would love to know if it's possible to not use prescription drugs, all this shaking is really getting annoying. thanks and best wishes go out to everyone
  3. Mark5151

    CBD Oil--Does This Work?

    Can't get mmj yet, but going to try things patriot's way. Right now taking mucuna pruriens instead of c/l since my doc has not prescribed that yet, and not sure what to believe about c/l and increasing dosage over time (whether the illness is just progressing or taking it affects your body in a way that it changes to need more and more). My doc prescribed the drug that has that side effect of falling asleep while driving and I hated that one right away and stopped taking it. For now going to try that other suggestion and get into vaping cbd hemp oil, figure it couldn't hurt. Just need to learn how to vape, I was never a smoker and only tried smoking mmj a few times. my tremors are just on my left arm so a little mp quiets it a bit and I can deal with it. Plus taking no prescription meds which is probably good?
  4. Mark5151

    CBD Oil--Does This Work?

    I have been trying a little Mucuna Pruriens along with cbd oil. MP definitely helps my tremor a bit, cbd not sure yet. I live in PA and medical marijuana won't happen until 2018. Can I ask what was a good cbd oil for vaping (read a lot about companies that sell cbd oil without the amount of cbd they advertise etc). Also I just need a regular vape for e liquid and special cbd oil made for vaping, right? when using cbd from cannibus any luck with 20:1 cbd/thc levels? hoping to avoid getting on meds if possible at least for a while. Trying to learn as I go. thanks, mark
  5. Mark5151

    Anyone taking only mucuna pruriens?

    Thanks for the tip.
  6. I am a newbie to this and so far just taking some mucuna pruriens to help with symptoms. from various readings it sounds like mp is very similar to sinemet (just a little more difficult to get dose exact). Mp seems to have some other positive effects and some readings make it sound like a better treatment than traditional meds? i only have tremors in my left hand and arm so at this point just trying to make things a little better so dipping my toe into possible treatments without going down any path that could start me down a path of getting resistant to drugs and upping dosages etc.... just wondering positive or negative reactions to this approach (other than the can't get dosage exact argument)?
  7. Mark5151

    Newbie need advice

    I have read at least a hundred reviews of positive things about mp, mostly people cutting back on sinemet by adding mp to the mix. I'm a software consultant so internet searching is something I'm a little obsessed with.
  8. Mark5151

    Newbie need advice

    I just started taking Mp, but it seems to help some. I have never tried sinemet. From everything I read it sounds like mp is a cheaper, natural somewhat equivalent alternative to sinemet. Yes you might have to experiment with dosage levels (I'm just taking a small amount). Not sure about dyskinesia, I have read conflicting things on that with mp? there is some libido effects that mp has as well, which I like. I am going to switch from pills to powder form soon and give that a try. I only have twitching in my left arm so at this point I can tolerate it with no drugs so figure use a little mp to make things better and cycle on/off so I don't build up tolerance levels. Who knows. In sept I see my first neurologist, so far only have one appt with his nurse practitioner. guess I'll just cope with changes as they happen, maybe things will go really slowly? Example: left arm only twitching is ok, but if both arms twitch guess meds are needed to function.
  9. Mark5151

    Newbie need advice

    Have you tried the mucina pruriens at all?
  10. Mark5151

    Newbie need advice

    I just got diagnosed a month ago and only have some tremors in my left arm. First appt doc prescribed azilect but at this point I have only tried to exercise more, trying to stay positive, taking a few more supplements (cq10, some vitamins) and recently have started taking mucina pruriens (a small amount). I tend to shy away from prescription meds if possible. I guess I figure Mp is similar to starting on sinemet. next appt is in 3 months, getting an MRI and some blood work first to help make sure it's Parkinson's. any suggestions on my approach? 51 years old, good health other than this new development. hoping to be able to play tennis and golf many more years!
  11. Mark5151

    Newly diagnosed- any advice?

    Thank you for chiming in, it's nice to hear what works for others!
  12. Mark5151

    Newly diagnosed- any advice?

    Thanks everyone!
  13. Mark5151

    Newly diagnosed- any advice?

    I understand the need to use meds when symptoms demand it. Guess I have read so much about once you start meds you will gradually need more and more and there are side effects (some pretty bad) so just trying to postpone the start down that road as much as possible. I did start taking some supplements and mucuna pruiens for some relief from tremor in my hand. I don't feel my tremor is that bad right now, more worried about my brain being messed up and possibility for anxiety/depression scares me. I had some of that after my divorce and don't care for it at all!! Thanks for sharing, always helpful to hear what others did and why. Mark
  14. Mark5151

    Newly diagnosed- any advice?

    Thanks for your feedback. I have an appointment in about a month with a mds and I also went to Pitt. I'm a little afraid of getting on any medicine so hoping to postpone that until I really need it for symptoms. It seems like medicine is the only thing that works for symptoms? I just don't like the side effects that usually come with medicine ? Any insights on things that worked well for others are appreciated
  15. I was recently diagnosed. 51 years old. I live in Pittsburgh pa and am self employed as a software consultant. my basic plan is - learn all I can, try not to rush into panic, started taking a few more supplements, didn't start right away on azilect which was prescribed, doing more exercise I need to get an MRI to rule out other causes but my gut says I have Parkinson's so far symptoms have been - twitch in left arm, getting more and more noticeable over last few years - a little stiffness - bad memory, maybe a little dementia over last few years - lost sense of smell maybe ten years ago any advice from those that have more experience? Thanks in advance, Mark