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pabzie

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About pabzie

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  1. Treating PD through psychiatry?

    Strangely, in my case it does not appear to be the compression of the muscle in the foot because I can walk for miles without a problem - it is only when I stop to rest during the walk that the dystonia kicks in. As soon as I take one step to continue my walk, the dystonia goes away immediately. I've also done a further test to see if it was compression causing the dystonia; sitting in my recliner with my feet elevated, I slowly lowered my feet to the floor just so they barely touch the floor (placing NO pressure on the bottom of the feet). The dystonia kicks in any way! There is a definite psychological component to this - like I have a subconscious fear of my foot touching the floor. Interestingly I've seen on multiple websites where people have apparently been cured from PD by psychologically convincing themselves through daily affirmations that they are okay and that there is no need for the anxiety etc. These testimonials are too many to ignore and I think the psychological side of PD is not getting enough attention.
  2. Curious if anyone has any thoughts on this? I've come across a few articles online about how doctors are starting to look more and more at the link between Parkinson's and psychiatry. What gave me the thought to even start looking this up is that some of my symptoms seem like they would be better treated by a psychiatrist than a neurologist. For example: When my feet are touching the floor and still (i.e. when sitting or standing), I get severe dystonia in the left foot which leads to severe cramping. However, as soon as I take my feet off the floor (i.e. sitting in a recliner with my feet raised or lying in bed), the dystonia immediately stops. And strangely, if I continuously walk, I get no dystonia at all. As soon as I stop walking, I feel the dystonia immediately kick in. Another strange thing as well is that as soon as I sit in the car and close the door, the dystonia kicks right in, but if I open the car door and let my foot hang out, it stops. This seems like more of a psychological issue if you ask me, and I would think some type of therapy should exist to get me past such a silly symptom. My dystonia happens to be my most debilitating symptom, so it sure would be nice to find an answer. Another strange symptom I have is that I may be sitting in the recliner relaxing and all of a sudden I realize I'm tensing all of the muscles in my body as though I'm bracing for impact. Then I think to myself, "why am I doing this?", and I simply tell the muscles to relax, and they immediately do. Many times they will stay that way and I will feel fine for hours after that. Again, seems like something better treated through psychiatry. Though I happened to get all these symptoms at the same time as my PD symptoms, so they tend to get thrown into the neurological bucket. Just curious if anyone has had similar experiences, and if anyone has found any psychiatric-related therapy that has helped them with such problems. Thanks!
  3. Early onset after major stress

    Hi again, when I was first diagnosed with PD my anxiety symptoms were at their worst. If the phone rang I would jump and start to tremble. Going to my mailbox made me tremble, fearing what would be in the mail. Just talking to people made me tremble. So what I did was take Klonopin before I had to get groceries or deal with people, otherwise I relied on relaxing supplements because I didn't want to get hooked on the Klonopin. I was obviously in pretty bad shape because wherever I went people would randomly ask me, "are you okay?". I decided I needed to take an extreme response to all of this and basically stayed away from everyone for a few years. I told my family and friends not to call my phone, and I would spend as much time every day in solitude at the park or the beach. I also napped a lot. Prayer has also been essential as well. Now years later, while I still have the anxiety, it is more under control and I can function a little better, and don't need Klonopin as much. No one ever recommended an antidepressant to me. I try to walk at least 2 miles a day and I believe that has worked wonders. Otherwise I don't feel well from strenuous exercise - my walks are very slow and casual where I just focus on relaxing and looking at nature.
  4. Early onset after major stress

    I've seen 5 different neurologists, and all 5 of them simply looked at my symptoms and said I have PD. None of them or any other doctor for that matter has ever mentioned a "datscan". I have actually never heard of a datscan until I just joined this forum.
  5. Early onset after major stress

    I can't really comment much on the neurotransmitter urine test either because I don't know a lot about it. Though I have read some very good testimonials from people who have used it in combination with the Dr. Hinz protocol to reduce PD symptoms through amino acid therapy, so there is obviously something to it. Years ago I was able to reduce my PD symptoms significantly for many months with amino acids, however the benefits eventually leveled off.
  6. Early onset after major stress

    Very helpful, thank you for your reply! The neurotransmitter test I had was a urine test ordered by my ND. People who balance their neurotransmitters using amino acid therapy rely heavily on these tests and apparently they work very well according to testimonials I've read.
  7. Early onset after major stress

    Hi again, Yes, Clonopin alone helps me with anxiety - it just makes me feel mellow and not so trembly and last about six hours. I take it when really anxious or when I expect an upcoming anxious moment. The supplements are unrelated and are used as a long-term approach. For example, I usually assign a percentage to my overall health at any given time (i.e. my health is around 60% this week). If I continuously take the supplements I may get an additional 10%. Doesn't seem like much but it is HUGE to me. It can mean the difference between having to lie down all day, and being able to go out for a walk and get groceries.
  8. Early onset after major stress

    Thanks for the message. I never had anxiety before - it started after the emotional trauma and PD symptoms began. I just mentioned some of my other symptoms in another post - primarily anxiety related like my body shaking with each heartbeat. Also if I eat fast food - FORGET about it - -my symptoms go through the roof sometimes for weeks! There is definitely some bad stuff In fast food that affects the nervous system. About six months ago I gave in and had an eclair from a local bakery - I was in bed for a month with terrible symptoms! Eating organic, I feel so much better. For anxiety I sometimes take Klonopin, but otherwise I rely on several supplements daily to keep my nervous system as calm as possible. I work with a naturopathic doctor every 2 months and we try different supplements. So far I have found glycine, magnesium, California poppy, and trehalose keep my nervous system much more relaxed. If I go too fast in trying supplements I wind up sleeping too much, so we take it very slowly. I've tried stopping the supplements a few times to see what would happen, and I felt much worse, so I know they are helping. At bedtime I often take a product called "Sleep Formula" by Natrogix which has a lot of natural components that help relax the nervous system and help me sleep. Works very well. Still experimenting.
  9. Early onset after major stress

    Thanks for the reply. What you mentioned seems like the textbook response but doesn't match me so much. For example, I do have tremors, stiffness, slowness, loss of right arm swing, smaller handwriting, cramping in the left foot and stooped posture, but I DON'T have many other of the typical symptoms like facial mask, the "cogwheel" effect, constipation, loss of sense of smell, voice issues, dragging feet, or depression. The docs seem puzzled by this when I speak about it. I also had my neurotransmitters tested and my dopamine was normal even without meds. The only thing abnormal was epinephrine (adrenaline) which was elevated. I also have tremors primarily in motion, but not so much at rest, which one doctor told me is the opposite of most PD patients. I can also stop my tremors by "thinking them away". Is that normal? My foot cramping also appears to be opposite of many people with PD in that it only happens when my left foot touches the ground and is left still.. If I sit in a recliner with my feet elevated, or lie in bed, or walk any distance, I do not get the cramps. This seems the reverse of what I have read about some other people. Also what's strange about my anxiety is I do not have anxiety attacks. I just feel my body subconsciously tightening up all muscles in all limbs like I'm bracing for impact at all times. Then I tell my body to stop and it stops. I can also see my whole body shake with each heartbeat fairly often. If something very stressful happens, I tremble terribly for days. Anyway, I seem to be somewhat unique from what I've gathered so far.
  10. Early onset after major stress

    My thought was that the website or authors could simply contact the person mentioned in the article asking her if she would be interested in speaking with someone who had the same condition as her, and she could decide to contact me from there if she wanted. That way they would not be revealing her personal information and confidentiality would be maintained. But they wouldn't even do that.
  11. Early onset after major stress

    Thanks to those who have replied so far! In my case, I was otherwise healthy, and after experiencing an emotionally traumatic event, I woke up soon afterward with both hands shaking. The shaking never went away and eventually settled in the right-hand. Then right shoulder became stiff, right leg began to have a full/heavy feeling and 3 years later was diagnosed with PD. Symptoms have continued to progress to tremors in all limbs, and unable to stand up without holding onto something. Found one method that helps somewhat (amantadine). Interestingly, I've seen 5 neurologists and they are unanimous on the PD diagnosis, but a few MDs do not think it's Parkinson's, with one of them labeling it an anxiety disorder because my anxiety is constantly through the roof for no reason. Regardless, it seems based on feedback and research that getting PD after a stressful event is extremely rare, basically unheard of.
  12. Curious if anyone else on this forum had an early onset of PD after a major stress? I am such a case and the doctors have apparently never seen it before. I have some similar symptoms to standard PD, but also some different symptoms not common with PD, so it is very unique. I just happened to come across an exactly identical case at this link: http://pubmedcentralcanada.ca/pmcc/articles/PMC3742351/ I tried contacting the website where this article is posted to see if they could put me in touch with the woman mentioned in the article (since her case is identical to mine), but they replied and said they couldn't help me. Would be good to find others whose PD started with stress so that we could compare notes and possibly help one another. Thanks
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