Jump to content


  • Content count

  • Joined

  • Last visited

Community Reputation

1 Neutral

About jentrem

  • Rank

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. jentrem

    Tremor vs. Myoclonus

    Thank you so much for your response, Dr. Okun. If you have a chance, could you please watch these very brief videos? These ones should open! I'm confused as to whether I have a tremor or is the movement in my fingers of myoclonic nature? The movement while my hand is at rest in the videos, is pretty much how it appears all the time. Sometimes the movement with outstretched arms is less or more than what is shown in the video. https://youtu.be/Q3tefU4ghi4 https://youtu.be/M3kd1sEiwbI https://youtu.be/kqhP-4SKU0o
  2. jentrem

    Tremor vs. Myoclonus

    I am a 48 yr old female. I've been told by several MDS's that I have essential tremor, exaggerated physiological tremor, resting/postural/kinetic dystonic tremor and/or myoclonus in my left hand. I was wondering if cervical disc bulges can cause muscle fasciculations? One doctor told me that bulges would not cause a tremor. Also, can myoclonic twitches be continuous throughout the day for over one year? I have absent left arm swing and dystonia in both hands, but the dystonia is worse in my hand with the "tremor." I believe that I have dystonia in other parts of my body as well. I apparently had a negative DatScan last year and because my head might have been slightly rotated, one dat image for instance, would have a reduction of dopamine but then in another image, that same side would have more dopamine uptake while the opposite side would have less. I'm not sure how that works considering that I was extremely still, so I'm still worried that all my symptoms may be part of Parkinson's Disease. Thank you very much.
  3. jentrem


    Hello John, I will have to see what the doctor says about Sinemet. I was told that it is possible to make dystonia worse and that dyskinesia can start after 3 to 7 years. I guess that only happens if someone was on too high a dose. Have a Happy Holiday!
  4. jentrem


    Thank you, Adam. Btw, I like your profile picture. I have a yorkie.
  5. jentrem


    There are three slides on the cd. Two had 16 pictures on each slide. The photo on the right in my link had a blue box around the image and since that had the most uptake, I figured that was the main image to look at. The others look like positive daTscans. Thank you so much, Adam!
  6. jentrem


    Thanks for your posts, John and Adam. I'm not on any medication yet and I don't think I would want to start anything until my symptoms get worse. That is, if they get worse. Luckily my tremor is in my left hand as I am right-handed. Adam, I'm not sure if my MDS saw the DaTscan yet as I haven't been able to get a hold of him. The Radiologist's report states that the uptake is preserved in the anterior and posterior putamen compared to the caudate nucleus. Also, there is no evidence of dopamine deficiency. I thought this means that my scan is negative, therefore, I do not have Parkinson's but when I compare my image to normal datscans on the internet, it doesn't look exactly normal. Perhaps it's because if I do have Parkinson's, it is early Parkinson's? I don't know, I'm not a doctor either, but I was curious what others thought. Happy Holidays!
  7. jentrem


    My DaTscan didn't show a loss of dopamine, but I was wondering if it is normal for one putamen to be slightly smaller than the other? The right 'comma' doesn't have much orange and yellow for instance. Also, the top of the left side, which I believe is the caudate, isn't as wide as the right side. This is a photo from my DaTscan: https://1drv.ms/i/s!AjMn32hsmNm0jToNLNA1hPVXQPHp I have a tremor in my left hand which started a year ago. After several months, dystonia developed in both hands. I have stiffness in my limbs and reduced left arm swing on gait. I'd appreciate your thoughts.
  8. jentrem

    DaTscan results

    I'm a 48 year old female with dystonic, irregular tremor in my left hand and rigidity and reduced arm swing on gait. I had a DaTscan recently and was wondering what this means exactly? "Striatal I-123 dopamine transporter uptake is preserved in the anterior and posterior putamen compared to the caudate nucleus." I'm assuming the scan was negative since there was no dopaminergic deficit. I'd greatly appreciate your opinion. Thank you very much.
  9. jentrem

    daTscan side effects

    I've never eaten shellfish so I don't actually know, although, I had allergy testing last winter and I wasn't allergic to anything whatsoever.
  10. jentrem

    daTscan side effects

    Thank you wearwear and Superdecooper. I read that less than 1 out of 100 people can have stomach aches or a few other side effects. Perhaps I am the "less than one." I will call Nuclear Medicine tomorrow if I still have a stomach ache.
  11. jentrem

    daTscan side effects

    I was wondering if anyone who had a daTscan, had a stomach ache for several days following the scan? I haven't had a stomach ache for a few years so it's not common for me to have one for three days. Even though I wasn't told to drink plenty of water after the scan, I drank about 60 oz of water the evening I got home and a lot of water since then.
  12. jentrem


    I've had a tremor in my left hand for about seven months. It's a resting and essential tremor which occurs throughout the day. It started out with my pinky. After a month, another finger started having a tremor and within a few months, all fingers on my left hand, including my thumb, were affected. I also get occasional painful spasms in my pinky. Spasms also occur in my toes on both feet, although the spasms occur more frequently with my right foot. Several times a week, I get painful cramps in my left hand. I've noticed that this usually happens when my fingers are partially curled. I was wondering if this could be rigidity? It usually happens with my fingers and they will sort of 'get stuck' when I attempt to straighten them to avoid the pain, but the top of my hand also hurts at times. I am a 48 year old female. I have hypothyroidism, but since it's well-controlled, I doubt my thyroid is causing the tremor, spasms and cramping that I mentioned above. An EMG and brain MRI were normal, although, I do have stable degenerative disc (little bulges here and there) disease of my cervical spine. I've had paresthesia on and off for the past 2.5 years. I saw a MDS who does not think I have Parkinson's since my tremor does not have a pin rolling movement. Must a tremor seen in Parkinson's always be of a pin rolling nature? Thank you.