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matt40413

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About matt40413

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  1. Diagnosed with ET but not so sure?

    It's funny you mention dystonic tremor because I do get twitches in my neck/head where it'll feel like a quick spasm which will twitch my head barely. It's like a quick muscle spasm. It's usually worse of course when i've been working at the computer a lot otherwise I generally don't feel it. I looked up focal dystonia in the fingers and it seems like they have similar symptoms (Twitching if their fingers are in a certain position) and I can feel the pain when I bend my fingers very far down or back for example (Maybe it's CTS...who knows). It is reassuring it sounds like ET, the only symptom I have is really tremors in my fingers at certain positions (and that's not even a rest tremor technically). Honestly though Im really curious if it's an actual tremor, since it's not "rhythmic", it's sort of twitchy but the amplitude and frequency do not stay the same. Not sure what really constitutes one way or the other. When I see tremors on youtube videos for PD it's very rythmic. Mine is very twitchy back and forth (as in it stops/starts intermittently, and my fingers won't move the same distance when they twitch/etc....) Last question though: you say "The dizziness doesn't sway me one way or the other", I thought postural instability was a PD symptom? or is it usually only something that happens later on in the disease (When PD is very obvious) so that doesn't really "fit" here? Since my balance/gait are actually fine (My wife even did the "pull" test on me where you pull me back to see how many steps it takes to regain) and even with a forceful pull It still only took me a step or two to regain balance). My "dizziness" is really just that feeling of feeling off-balance...but really not being off balance. Also thanks so much for answering my questions!
  2. Diagnosed with ET but not so sure?

    Yeah. It's been 6 years, for reference I was diagnosed with ET by a Neuro not by a GP. she had done the typical PD physical tests. Besides the occasional dizzy feeling (Which im almost convinced is anxiety or some neck tension) I don't really have any other symptoms. The only "rest" anything I have is an occasional single twitch, but even that requires my fingers to be resting in a tense position. But it'll only "twitch once (it won't actually tremor back and forth, just sort of a single "jerk" inward to get it out of the "tense" position). Im guessing that isn't actually technically a "tremor"?, and even that is rare. My actual tremor only appears when im bending the fingers in a certain position. Still though...it's been this way for 6 years and is only barely (if at all) worse than it was when it started. I've heard YOPD typically shows with Dystona/other symptoms over tremor anyways? Im not really sure what dystonia would feel like but Im guessing it'd be pretty noticeable? My neck is sometimes stiff/sore but i sit at the computer most of the day due to work (In a terrible posture no less ha) Also did you mean "There are cases of ET" instead of "There are case of PD that have mainly rest tremor", I thought most cases of PD were with resting tremor? (Which I do not have) By the way, do you have any comment on this: One major caveat, though: Changes in balance and gait tend to emerge as the disease progresses I read this on multiple sites regarding parkinsons. Is this usually true (if so it would make me feel a bit better about my "dizziness" issue.
  3. What is considered a 'Rest' tremor?

    Your right, I just get so focused. But I did look at some videos of resting tremor and it's way different. I always get stuck on "what if it's just the beginning"...but in that case I guess i've been at the beginning for 6+ years. I need to just accept my ET diagnosis and be thankful. Sorry i've flooded the boards with this stuff. Anxiety is a hell of a drug.
  4. Worried about having Young-Onset Parkinsons

    Ah, see yeah I get the same thumb tremor but only when it's bent. from my research this is considered NOT a resting tremor. Also apparenly YOPD actually don't usually start with tremors if that's consolation from my research. But more often dystonia. I wish you will either way!
  5. What is considered a 'Rest' tremor?

    That makes sense, but what about in my case. When my hand is at rest by my finger is required to be at a certain position to twitch. Is this still rest? or since im finger requires a certain position it's postural? every once in a blue moon my finger at rest will feel tense and do a single jump......but only one jump, not actually tremor (this is very rare though and only if my fingers are close to the "tremor" position when they are at rest). a good example would be sometimes my thumb will twitch when gripping a mouse......it's not a tremor exactly as it's sitting there shaking, but like a single "pulse"...since im 'gripping' something despite my hand being at rest..would this be considered rest? I would think not since you are actually gripping something?
  6. Worried about having Young-Onset Parkinsons

    Right yeah. I mean essential tremor DOES make sense from what the neuro tested me with and I was fine with that diagnosis. but it's sorta "tough" to fully accept since theirs no "definitive" test for it. But symptom wise it does match (having a postural/action tremor but not a rest tremor, getting worse with stress/etc...) one thing I have read: Many of the more common signs of Parkinson’s in the elderly are less common in young onset Parkinson’s disease including; Tremors Cognitive problems such as memory loss and dementia Loss of balance and coordination So that at least helps point to ET more-so (since those are the symptoms I have, minus the loss of balance and cognition problems). Still maybe a datscan will at least keep my worries at bay. I don't really have the dystonia they describe that early onset people have.
  7. Worried about having Young-Onset Parkinsons

    I guess I can't tell if it's worth getting a DatScan? Since i looked at your symptom history and I just don't see that with myself. Really the only thing that's been consistent is a non-resting postural tremor that hasn't progressed. Or are u suggesting that I should? (I can't really tell). I mean since seeing my neuro a year or w/e ago im experiencing the same thing...so I think im more just anxious than anything.
  8. Worried about having Young-Onset Parkinsons

    He basically said a DatScan should be used to differentiate ET vs PD. But didn't comment on whether it sounded like PD or not (Which was sorta what I was looking for). At my age (31) I would think it would be extremely rare (since in that study there were ZERO cases under 30, and im very close to 30) I was just feeling worried, and hoping that my low progression of symptoms and no rest tremor (over 6+ years) would sorta of be more conclusive that it's actually ET...but now im not so sure.
  9. I've posted on here before about a finger tremor. But I was curious if it constituted 'rest' tremor? Essentially my finger/thumb tremors if I bend it, pull it inward into a certain position. For example I can have my hands relaxed on my lap without tremoring, but with my hands relaxed if I start to tense/bend my thumb/finger inward it'll start to twitch. Would this still be considered rest? Since my finger needs to be at a certain posture BUT my hand is at rest? or would that still be postural? I do sometimes get a single "twitch" of a finger (like it moves inward for example slightly) if my fingers are bent in a certain position and I rest my hands, but thats very uncommon. I guess that's really more of a mykomia/single twitch than a tremor correct? For my fingers actually to rhythmically move back and forth I have to have them bent in a certain position. I sometimes wonder if this "twitch" may be due to my fingers feeling stiff from typing so much all the time (Im a software dev so Im always typing haaha)
  10. Worried about having Young-Onset Parkinsons

    I'd imagine more, still it's obviously pretty darn rare especially under 40. How old were you when you were diagnosed/symptoms started?
  11. Worried about having Young-Onset Parkinsons

    For reference I looked at some statistics, and in the 30-39 range there were only 4 cases of YOPD out of....quite a bit: https://academic.oup.com/aje/article/157/11/1015/151509/Incidence-of-Parkinson-s-Disease-Variation-by-Age
  12. Worried about having Young-Onset Parkinsons

    Yeah I guess I need to. I mean I was at the neuro just last year but just for my own sanity. What age were you diagnosed? and I understand PD can go slowly.....but 6-7 years is the one thing im sorta holding onto at why it "hopefully" isn't PD.
  13. Worried about having Young-Onset Parkinsons

    Wow I didn't realize it could be so many that quick....that does help me get an idea of how it progresses which I just am not seeing with myself. I appreciate you linking me it though.
  14. Worried about having Young-Onset Parkinsons

    How long did it take for those symptoms to appear? over a period of a year or so? Fortunately mines been over 6-7 years with basically no progression. I def. dont have any foot dragging or lack of arm swinging/etc..., it's mainly the tremor that bothers me. typing all the time def. doesn't help (since my fingers will get stiff after awhile) thanks!
  15. Worried about having Young-Onset Parkinsons

    I guess another thing is I dont know if my tremor is considered a rest tremor. As it requires my fingers/thumb to be bent in a certain position. I MAY occasionally get a single twitch in a finger at rest if my finger/thumb is bent at rest but at normal rest I won't have a tremor. However for instance if im typing, my fingers will be bent of course to type...which can sometimes invoke a twitch or two in my fingers. Is this considered postural or rest? Or does rest literally have to be completely zero movement.
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