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About NeverGiveUp

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  • Birthday 03/25/1974

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    West Liberty, Ky
  • Interests
    Fishing, Hunting and most of all enjoying everything with my 13 yr. old Son.
  1. Natasha, Anything that i can do to get my mind off the internal tremors help. Constant movement is the best, Esp. riding the lawn mower because of the vibration the mower gives off, it overpowers the anxious feeling inside. Sometimes I can set in my recliner perfenctly still and it feels like I am moving all over. Hard to explain, like when somebody leaves the hot water running and you can hear it but not see it. I can feel it but noone else can see it. Hope I made sense, Stu
  2. Be newly diagnosed, I feel that I have had internal Tremors for a long time now (year or so before diagnoses. People will ask me how I feel and I always say good, but inside is a different story. The only way I can descibe it is like "white noise", You know on the old Tvs when you hit the wrong input or a late night program would sign off. A never ending, restless, scramble of feeling and silent noise. I am curious how everyone else that has Internal tremors how they feel and how do you explain it? thanks
  3. i am on the Ropinrole er, I am on the last week of doubling it and up to 8mg. Will I be able to go higher or is this the max? Seems to be working but I am so new to all this I dont know what to expect. I have good days (feel good, not too stiff, shake very little on right side) and then I have not so good days ( cant hardly get out of bed so stiff, shake violently when yawning, tremor on right side when nervous and just feel very off. Inside feel like white noise, ( you know, how the TVs would go off after the late program. I know I am rambling, but can you help me understand how this Ropinrole er should make me feel? thanks
  4. Call me weird, but I like to mow the yard. I mow about 4 acres and would mow everyday if I had time. Today, I am completely caught up. But the best thing that just hit me today (ironic) is why I enjoy mowing. I always said it give me time to think, tru but also the sound and the shaking of the mower over powers the unstable interior tremors I have. (newly diagnosed, still trying to figure out what every feeling is). Mowing to me is really peaceful and gives me a nice sense of accomplishment and easy to see progress. My wife just don't understand and my neighbor thinks I am crazy, but that is its all GOOD.. thanks
  5. copy of the diagnosis, that is a good idea...thanks
  6. thank you for the reply, I am newly diagnosed and am trying to figure things out. This forum has been Great, thanks again...
  7. Thank you for all the replies, I too thought the 40s are killing me. helps to understand it is not my age. But hurts to know what really is.. Sometimes I drive myself crazy trying to blame on another condition, just hard to accept. thanks, NeverGiveUp..
  8. I have right side hand tremor when I am speaking in front of a crowd, big or small. Example: doing announcements at school, my students even ask me, " are you ok Mr. Cook? I had to take over the phone with my left hand. I just smiled and went on. Also starting tremor when holding hands in a prayer circle. I apologized to the lady when we were finished. She know my situation and understood. Does anyone else experience this? thanks
  9. Hello, I am 43 and just diagnosed about two months ago. I am an Assistant Principal at a High School and over all the discipline of 700 teenagers. I have sit down with the assistant Superintedent and explained my situation. Told him we are taking it day by day and hope to be ready for the start of school. Medicine is helping but the fatique is terrible. I agree with LAD, I dont annouce to everyone, just explain when needed and if they dont understand so be it. going to be good talking with you being we are both 43. thanks
  10. Diagnosed in May 2017, I am 43, (symptoms for about year and half to two years) Does anyone else have this? when I get up in the morning, I am extremely stiff. Like I had been riding in a car for about 24 hours. I played college football and felt sore after a game all over then, but this is different, I have done nothing strenuous the day before. Takes me awhile to get moving. It is even hard to put on clothes. This is a little better since taking medicine, a few months ago it was very hard to get up and go to work. Curious on your thoughts...thanks
  11. thank you for your response, I will check with my Dr. on this. thanks again...
  12. Hello, This is my first post. I have enjoyed reading and educating myself on here. I was just diganosed in May 2017. I year ago I was diagnosed with Hypo Aldosertonism (rare Kydney disease). For the longest time, I blamed my symptoms on that but my levels were good. I was sent to a nuerologist and after several clinical test and an adnormal Dat scan I was diagnosed with YOPD at 43. I am on Ropinorole extended release, started me out with 2mg for a week, then 4 for a week, now 6 for this week. and 8mg next week. Is this an average dose? what should I expect? My symptoms are: extreme fatique, inconsistent tremor in right hand, slowness on right side, and I also shake upper body-(more on right side) when Yawning, I get extremely sore all over and especially in neck and back. I jerk and shake all night long about every 45 sec or so, resulting in no sleep. I guess what I am trying to ask is what do I look for? Medicene has helped sleep and shakiness some but still have symptoms come and go. Is all of this normal? thanks for you time...Stu