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hiker

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Everything posted by hiker

  1. hiker

    best source for CoQ10

    I want to start taking CoQ10 and wonder where people get it. I looked online and lots of manufacturers. What is a reliable manufacturer, and also reasonable cost? Thanks! Sue
  2. hiker

    Welcome to the club

    I'd love to hear more about the exercises. My pt has me doing balance exercises on a blue square foam thing...
  3. hiker

    Welcome to the club

    What does the PT advise for the foot dragging?
  4. I started walking using a metronome app and it has helped my arm swing and gait a lot. I *almost* walk normally when using the metronome. So I did some research and found this article that shows that Interactive rhythmic auditory stimulation is better than regular RAS. https://www.ncbi.nlm.nih.gov/pubmed/22396783 Do you have any thoughts on this? And are there any phone apps that would provide Interactive rhythmic auditory stimulation, i.e. matching the rhythm to your stride as you walk vs. the preset rhythm of RAS? Thanks!
  5. I am 54 yrs old (female) diagnosed a year ago. My symptoms continue to be very mild just some fine motor issues in my left hand/fingers which makes typing difficult, and sometimes an awkward gait, and of course stiffness in my upper body. So far no cognitive symptoms. I still work part time, and am active - bike 20 miles RT to work, lots of hiking, XC skiing in winter. And stretching/strengthening and some yoga. I am considering starting Rasagiline on recommendation of my neurologist. But the list of side effects is way worse than my symptoms! What are people's experiences with drugs? Which ones tend to be best for motor symptoms (gait.)
  6. hiker

    deciding about drugs

    I am a healthy 54 yr old woman, diagnosed with Parkinson's in January 2017. I am debating starting medication but scared of all the side effects. I am still working, exercise a lot (hiking, biking, XC skiing, eliptical trainer for high intensity, stretching/strengthening routines...2 - 3 hours/day) My main symptoms are motor - decreased arm swing, difficulty typing (left pinky and next to pinky fingers slow to respond), starting to have issues with left foot/gait. For example when I am backcountry XC skiing my left foot glides slightly to the left instead of straight. On a tracked trail or hill I am fine. I don't have any cognitive symptoms, did voice therapy and voice is fine, I have lots of energy. Which drugs are best motor symptoms? Esp for my foot issue? My neurologist said to try Azilect but side effects seem worse than my symptoms. Falling asleep with no warning while driving - yikes! Also, what about some of the supplements like glutathione therapy, Inisine, couco? Thanks for any advice/insights...
  7. hiker

    Got my 23andme results

    Who did the testing for you? 23 and me? Did you do the "health" one?
  8. hiker

    rasagaline side effect

    I started taking rasagaline this week - my first med for parkinsons. Is dyskinesias or dystonia a side effect?
  9. hiker

    Parkinsons and sugar intake

    Is there any evidence that high sugar intake is linked to increased motor symptoms? I eat a lot of sugar (really - lots!) and while my weight is good and I am super active, I still wonder if I just need to kick the sugar addiction...
  10. hiker

    john pepper

    who is john pepper?
  11. hiker

    deciding about drugs

    Thank you everyone! This is so helpful...
  12. I am a healthy 54 yr old woman, diagnosed with Parkinson's in January 2017. I am debating starting medication but scared of all the side effects. I am still working, exercise a lot (hiking, biking, XC skiing, eliptical trainer for high intensity, stretching/strengthening routines...2 - 3 hours/day) My main symptoms are motor - decreased arm swing, difficulty typing (left pinky and next to pinky fingers slow to respond), starting to have issues with left foot/gait. For example when I am backcountry XC skiing my left foot glides slightly to the left instead of straight. On a tracked trail or hill I am fine. I don't have any cognitive symptoms, have lots of energy. Which drugs are best motor symptoms? Esp for my foot/gait issue? My neurologist said to try Azilect but side effects seem worse than my symptoms. Falling asleep with no warning while driving - yikes! Also, what about some of the supplements like glutathione therapy, Inisine, couco? I think I read that increased urate was only protective for men in studies? Thanks for any advice/insights...
  13. hiker

    when to start meds

    I am a healthy 54 yr old woman, diagnosed with Parkinson's in January 2017. I am debating starting medication but scared of all the side effects. I am still working, exercise a lot (hiking, biking, XC skiing, eliptical trainer for high intensity, stretching/strengthening routines...2 - 3 hours/day) My main symptoms are motor - stiffness, decreased arm swing, difficulty typing with left hand, starting to have minor issues with left foot/gait. For example when I am backcountry XC skiing my left foot glides slightly to the left instead of straight. On a tracked trail or hill I am fine. I don't have any cognitive symptoms, I have lots of energy. Which drugs are best for motor symptoms? Esp for my foot issue? My neurologist said to try Azilect but side effects seem worse than my symptoms. Falling asleep with no warning while driving - yikes! Also, what about some of the supplements like glutathione therapy, Inisine, couco? Thanks for any advice/insights...
  14. hiker

    deciding about drugs

    Thank you!
  15. hiker

    Restore-gold

    Are there any negative side effects to the three active ingredients in RestoreGold?
  16. hiker

    Restore Gold

    anyone know if Restore Gold is at all beneficial? If so what is the active ingredient?
  17. hiker

    Restore Gold

    What is UDCA and has it been studied? How do we know it works? What specifically does it help with? I am so confused by all the drugs (prescription and over the counter) and am trying to learn... Thanks!
  18. hiker

    Restore-gold

    What is the active ingredient in restore gold that helps symptoms?
  19. hiker

    Trying Sinemet

    Just wondering why you started with Sinemet rather than Azilect? My neurologist says Azilect is the first drug I should try. I, too, use exercise as my drug of choice.
  20. hiker

    Rasagiline and other drugs

    Thanks everyone! I applied ot the Assistance Fund and they will cover my out of pocket....
  21. hiker

    Can Parkinson's be stopped

    So is this drug available to us? HOw long until it is approved, or not?
  22. hiker

    Azilect generic price

    Check out The Assistance Fund - they are covering my out of pocket costs for azilect. https://tafcares.org/
  23. hiker

    Rasagiline and other drugs

    Also will cost me $400 for 30 pills - how do you make it affordable?
  24. hiker

    Rasagiline and other drugs

    One of the listed side effects is Very common (10% or more): Accidental injury, fall This makes me nervous as I do a lot of biking and hiking. So does this drug make you more unstable or something?
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