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hiker

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Everything posted by hiker

  1. when to start meds

    I am a healthy 54 yr old woman, diagnosed with Parkinson's in January 2017. I am debating starting medication but scared of all the side effects. I am still working, exercise a lot (hiking, biking, XC skiing, eliptical trainer for high intensity, stretching/strengthening routines...2 - 3 hours/day) My main symptoms are motor - stiffness, decreased arm swing, difficulty typing with left hand, starting to have minor issues with left foot/gait. For example when I am backcountry XC skiing my left foot glides slightly to the left instead of straight. On a tracked trail or hill I am fine. I don't have any cognitive symptoms, I have lots of energy. Which drugs are best for motor symptoms? Esp for my foot issue? My neurologist said to try Azilect but side effects seem worse than my symptoms. Falling asleep with no warning while driving - yikes! Also, what about some of the supplements like glutathione therapy, Inisine, couco? Thanks for any advice/insights...
  2. deciding about drugs

    I am a healthy 54 yr old woman, diagnosed with Parkinson's in January 2017. I am debating starting medication but scared of all the side effects. I am still working, exercise a lot (hiking, biking, XC skiing, eliptical trainer for high intensity, stretching/strengthening routines...2 - 3 hours/day) My main symptoms are motor - decreased arm swing, difficulty typing (left pinky and next to pinky fingers slow to respond), starting to have issues with left foot/gait. For example when I am backcountry XC skiing my left foot glides slightly to the left instead of straight. On a tracked trail or hill I am fine. I don't have any cognitive symptoms, did voice therapy and voice is fine, I have lots of energy. Which drugs are best motor symptoms? Esp for my foot issue? My neurologist said to try Azilect but side effects seem worse than my symptoms. Falling asleep with no warning while driving - yikes! Also, what about some of the supplements like glutathione therapy, Inisine, couco? Thanks for any advice/insights...
  3. I am a healthy 54 yr old woman, diagnosed with Parkinson's in January 2017. I am debating starting medication but scared of all the side effects. I am still working, exercise a lot (hiking, biking, XC skiing, eliptical trainer for high intensity, stretching/strengthening routines...2 - 3 hours/day) My main symptoms are motor - decreased arm swing, difficulty typing (left pinky and next to pinky fingers slow to respond), starting to have issues with left foot/gait. For example when I am backcountry XC skiing my left foot glides slightly to the left instead of straight. On a tracked trail or hill I am fine. I don't have any cognitive symptoms, have lots of energy. Which drugs are best motor symptoms? Esp for my foot/gait issue? My neurologist said to try Azilect but side effects seem worse than my symptoms. Falling asleep with no warning while driving - yikes! Also, what about some of the supplements like glutathione therapy, Inisine, couco? I think I read that increased urate was only protective for men in studies? Thanks for any advice/insights...
  4. Restore-gold

    Are there any negative side effects to the three active ingredients in RestoreGold?
  5. Restore Gold

    anyone know if Restore Gold is at all beneficial? If so what is the active ingredient?
  6. Restore Gold

    What is UDCA and has it been studied? How do we know it works? What specifically does it help with? I am so confused by all the drugs (prescription and over the counter) and am trying to learn... Thanks!
  7. Restore-gold

    What is the active ingredient in restore gold that helps symptoms?
  8. Trying Sinemet

    Just wondering why you started with Sinemet rather than Azilect? My neurologist says Azilect is the first drug I should try. I, too, use exercise as my drug of choice.
  9. Rasagiline and other drugs

    Thanks everyone! I applied ot the Assistance Fund and they will cover my out of pocket....
  10. I am 54 yrs old (female) diagnosed a year ago. My symptoms continue to be very mild just some fine motor issues in my left hand/fingers which makes typing difficult, and sometimes an awkward gait, and of course stiffness in my upper body. So far no cognitive symptoms. I still work part time, and am active - bike 20 miles RT to work, lots of hiking, XC skiing in winter. And stretching/strengthening and some yoga. I am considering starting Rasagiline on recommendation of my neurologist. But the list of side effects is way worse than my symptoms! What are people's experiences with drugs? Which ones tend to be best for motor symptoms (gait.)
  11. Can Parkinson's be stopped

    So is this drug available to us? HOw long until it is approved, or not?
  12. Azilect generic price

    Check out The Assistance Fund - they are covering my out of pocket costs for azilect. https://tafcares.org/
  13. Rasagiline and other drugs

    Also will cost me $400 for 30 pills - how do you make it affordable?
  14. Rasagiline and other drugs

    One of the listed side effects is Very common (10% or more): Accidental injury, fall This makes me nervous as I do a lot of biking and hiking. So does this drug make you more unstable or something?
  15. I am a 54 yr old very healthy female diagnosed in Jan. 2017. My main symptoms are reduced fine motor in left hand (typing is hard), left arm swing, stiffness in shoulders/neck, and left foot feels awkward (lags?) when walking on flat surfaces like a sidewalk. I have to really focus to keep my feet in rhythm. The faster I walk the easier it is. Running is easier than walking. When I hike on hilly or mountain trails I am fine and symptom free...no lag. I also have very subtle slurring of certain words when tired or stressed. Voice projection is normal. I am super active - bike to work 24 miles round trip weekdays, strenuous hiking on weekends, plus do 45 minutes 80-90 rpms on stationary bike 3x week. And I do the Boston College parkinsons stretching and strengthening program. What do I need to do to keep my symptoms minimal enough that I can continue doing what I love - biking, hiking, backpacking, xc skiing? Is high intensity better than moderate intensity? How does this disease progress? Will I still be able to hike in Spain in 5 years or should I go now? How do I know when to start on medications? And what medications are best for what symptoms? I want to stay active for a long time. Thanks!
  16. Medications

    I am a 54 yr old very healthy female diagnosed in Jan. 2017 with parkinsonism. My main symptoms are reduced fine motor in left hand (typing is hard), left arm swing, some stiffness in shoulders/neck, and left foot feels awkward (lags?) when walking on flat surfaces like a sidewalk. I have to really focus to keep my feet in rhythm. The faster I walk the easier it is. Running is almost easier. When I hike on hilly or mountain trails I am fine and symptom free. I also have very subtle slurring of certain words when tired or stressed. I am super active - bike to work 24 miles round trip, strenuous hiking on weekends, plus do 45 minutes 80-90 rpms on stationary bike 3x week. And the Boston College parkinsons stretching and strengthening program...some every day. How do I know when to start on medications? And what medications are best for what symptoms? I want to stay active for a long time. Thanks!
  17. newly diagnosed outdoor active female

    Thanks everyone - love the positive encouragement and insights. I am living life for today, with my sights on tomorrow too!
  18. newly diagnosed outdoor active female

    Thanks all! David I am thrilled to see that you are still so active. Gives me hope that I have years of hiking and biking left. We are headed up to NH for some hiking next week and then a week on the Appalachian trail and thereabouts in Virginia in October. Hopefully the Pyrenees next summer! So how do I follow the Phase 3 trials of isradipine and inosine? Where will it be posted? Sue
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