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      Frequently Asked Questions - Step by step guides

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      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Momof4boys

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About Momof4boys

  • Rank
    Newbie
  • Birthday 12/15/1975

Profile Information

  • Gender
    Female
  • Location
    Westbrook, Maine
  • Interests
    Spending time with my family, photography, cake decorating, playing piano

Recent Profile Visitors

48 profile views
  1. New here

    LAD, I have not been on here in a few weeks and I see that you have sent me a personal message but unfortunately I am still trying to figure out how to get it !!!! Hoping to spend more time on here now that the kids have gone back to school and things have calmed down quite a bit! So happy to have found you all!
  2. New here

    Thanks so much LAD, these inspirational stories are what's going to keep me going!!! And my family of course, I can't afford to slow down! I'm definitely going to look into the PWR program, I could use a new exercise routine....thanks!!! Everyone have a great day!
  3. New here

    Thank you all sooo much, this really puts my mind at ease!!!! Having the support of people who can relate is invaluable!!!! My neurologist is a MDS but has only been practicing for a short while (she's in her 30's) and I don't think she's associated with a research hospital....we live in Maine and there is not a big selection of doctors unless I went to Boston maybe....thanks again for welcoming me here, I look forward to being part of this group!!!
  4. New here

    Hello! I am sooo grateful to have found this forum! I'm a 41 year old mom of 4 boys and sadly was officially diagnosed with PD yesterday after receiving the results of a DaT scan... two months ago, I saw a neurologist who felt I was parkinsonian, and a month later saw another for a second opinion. She felt I was not Parkinsonian and was certain I have PD, but wanted to send me for the DaT scan as confirmation. I have been having symptoms for two years ( they started when I was seven months pregnant) lack of coordination and stiffness in my left hand and foot, rigidity, and slowness of movement. I also have mild tremors that started a few months ago. I always knew in the back of my mind it was Parkinson's. Although I had mentally prepared myself for the diagnosis, it has been very hard for me to accept and my mind goes to dark places. Will I be able to be an active participant in my kids' activities as they grow up? Will they embarrassed about my PD as my tremors get worse? Will I be able to continue to work for years down the road? I try so hard not to dwell on the future but I am finding it very challenging. About a month ago, the neurologist who unofficially diagnosed me, started me on Mirapex and I have increased the dosage three times since then. It has definitely helped a little with the rigidity and stiffness, but I am still having bradykinesia and slight tremors.... she wants me to start on a low-dose of Sinemet in addition to the Mirapex and honestly I am terrified after having read about possible severe dyskinesias a few years down the road. I have the prescription but have not started taking it yet.... my symptoms are currently not so bad that they are severely affecting my life and activities...I am going to call my doctor today and ask if I can just increase the Mirapex instead and not start the Sinemet just yet.....does anyone have advice to give? I am really struggling with this decision! I should also mention that I have been brisk walking twice daily for a month now and hope to find other activities that interest me and keep me moving, I will not stop! Thank you all so much for listening and I am so glad to have found people who can relate to what I'm going through!
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