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WiserRanter

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About WiserRanter

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  1. WiserRanter

    PD induced Camptocormia

    Thank you Dr. Okun, it is hard to find anyone else with Camptocormia much less a treatment program that will help also. I see where there are studies using people with this but they are all hidden when I do searches. I am in about five places with huge numbers of people but can not find anyone else with this to compare notes with. Finding other people would defiantly be a big help so if anyone knows of anyone with Camptocormia or bent back syndrome please get in contact with me.
  2. WiserRanter

    Camptocormia

    Thank you Beau's Mom
  3. WiserRanter

    Camptocormia

    I have been diagnosed with Camptocormia ( bent back syndrome ) recently and having a hard time doing what I used to do caring around a rollator and a cane. Finding information and people besides medical terms has been difficult if not impossible. Only found two people and neither one will talk about it. I have a mild case of CP but that has never really been an issue until now and it gets in the way since being diagnosed with Camptocormia. I also have venous statious in my legs and have to be careful not to even brush them up against anything. Add to that being diabetic also with a weight problem because of inactivity. I am looking for solutions to the Camptocormia as meds have not worked and trying the botox injections again coming up in a few weeks with a new Doctor. Also looking or starting to look for some kind of brace that might hold me up if the botox doesn’t work or does not work fully. Found a brace support system but they have not found a producer for the manufacture of them yet so hanging in there for that to happen. Suggestions or comments welcome……….
  4. WiserRanter

    Camptocormia

    I have been diagnosed with Camptocormia ( bent back syndrome ) recently and having a hard time doing what I used to do caring around a rollator and a cane. Finding information and people besides medical terms has been difficult if not impossible. Only found two people and neither one will talk about it. I have a mild case of CP but that has never really been an issue until now and it gets in the way since being diagnosed with Camptocormia. I also have venous statious in my legs and have to be careful not to even brush them up against anything. Add to that being diabetic also with a weight problem because of inactivity. I am looking for solutions to the Camptocormia as meds have not worked and trying the botox injections again coming up in a few weeks with a new Doctor. Also looking or starting to look for some kind of brace that might hold me up if the botox doesn’t work or does not work fully. Found a brace support system but they have not found a producer for the manufacture of them yet so hanging in there for that to happen. Suggestions or comments welcome……….
  5. WiserRanter

    PD induced Camptocormia

    Are there any updates concerning Camptocormia ? I have this problem and looking for people and answers. Having botox treatment tomorrow, has anyone found this successful ?
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