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About NCFred

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    running 5k's, contract bridge,

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  1. NCFred

    Share Your Story with NPF

    Hi all, Thanks for letting me post my story. Starting in early 2016 or late 2015 I noticed a loss of energy and sluggishness in speech and movement. I thought the condition was thyroid related because my senthroid had been reduced from 175 mg to 125 .I also thought I may have had a mini stroke but no other stroke symptoms. I had numerous doctors visits and blood test to no avail.A sister in law, whose father was a surgeon, told my wife she thought I might have Parkinsons disease. i shrugged off the idea since I have never had tremors. Internist and psychiatrist recommended I go on prozac, which did nothing for my energy levels. Went to a Neuro in Oct 2017 and he prescribed c/l immediately which helped a lot and later switched to c/l extended release. After many discussions with my pharmacist. Switching to a MDS this march 26 2018 because my current neuro is not a MDS. Tried requip as a supplement to c/l but it gave me bad dreams. Looking forward to new neuro and hope for better treatment. Went to first cycling class at the YMCA last wednesday due to tip form a fellow forum member which was helpful. Fred
  2. NCFred

    crossfit for daily exercise?

    Jul, Thanks for the YMCA idea. I contacted them last week. They have a cycling program mon. wed. and Fri. at 9 AM. I tried it last wednesday. It wore me out for 2 days but I'll get used to it. Thanks again, Fred
  3. NCFred

    Bible Verses....

    Linda, Thanks for asking how we came to know Christ. My first exposure to the gospel message was at age 7 from an invitation to a revival at a neighbor's church. It wasn't until age 20, a sophmore in college that I made the commitment. The Bible gave structure to my life because it made so much sense. I spent a lot of time memorizing scriptures in the NT and the wisdom literature, Proverbs Ecclesiastes etc. Everyday I continue to learn something new. Fred
  4. NCFred

    crossfit for daily exercise?

    Jul Thanks for your reply. Great ideas. How often do you go? What times? Thanks Fred
  5. Hi, I'm recently diagnosed with PD as of October 2017. I have been having occasional pain in my right leg on the back of the knee radiating down my leg. Occasionaly I have pains in the top of my knee, and muscles below. Does anyone else have problems like this? Does this have anything to do with PD? Fred. symptoms in 2016, diagnosed Oct, 2017 with PD, no tremors, was sluggish mentally and physically, respond to C/L, currently 1.5 pills c/l 25/100 3 x daily, tried requip, gave my bad dreams, looking for an MDS
  6. NCFred

    new to sinemet

    Chuck, Hope the new medical advice works for you. I have had lots of success talking to the pharmacist about alternative drugs,for the same condition treated. Neurologist prescribed requip but it gave me bad dreams and kept me awake at night. It was my pharmicist's idea to try extended release c/l, which many PWP take. Neurologist finally prescribed it and had a great effect, and no side effects. Hope this is helpful for you. Fred symptoms in 2016, diagnosed with mild PD Oct. 20, 2017. No tremors, slight speech sluggishness and physical sluggishness. currently on 1.5 pills 3 times daily 25/100 C/L. bad dreams from requip.
  7. NCFred

    crossfit for daily exercise?

    Super, Thanks for your reply. Fred
  8. NCFred

    crossfit for daily exercise?

    Lad, Thanks for your reply. what is PWP and PWRMOVES? NCFred
  9. NCFred

    crossfit for daily exercise?

    Been going to YMCA on Saturday mornings for years. I am recently diagnosed with PD and trying to establish a daily exercise regimen. Anyone every tried crossfit for daily exercise motivation? What do you do to stay motivated? Thanks, Fred Diagnosed Oct 20 2017. currently on 1.5 tablets 25/100 CL 3 times a day. Stopped taking requip, it gave me weird dreams. Considering rasagilene, generic for azilect? No tremors, slight lean backward on left side.
  10. NCFred

    Recently diagnosed with PD advice welcome

    Golden, thanks for the feedback. Yesterday, changed to carbo/levedopa ER from regular carbo/levedopa, much better.
  11. NCFred

    Washington Post article on marathon runner with PD

    Recently diagnosed with PD. I have run approx 15 5K's prior to PD. Your story encourages me. What pills was Bret taking during the run? Thanks for sharing Fred PD diagnosed Oct 2017.
  12. I wish to thank everyone for their comments. This is all very new to me. I have several questions. Gardener, I noticed you were on tradazone at 100 mg for sleep, what is tradazone? SWVA, I noticed you are taking 4.5 Sinemet CR 25/100 per Day2.5 mg Isradipine twice a day, could you explain what the drugs are? and why you are taking 2 of them.? Thank you, Fred.
  13. Recently diagnosed with PD. How often do you go to PD doctor?
  14. NCFred

    Recently diagnosed with PD advice welcome

    Thanks for your comments Fred