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About Tjon

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  1. Tjon

    Sinemet Question

    Thank you to all of you for your responses. I am struggling very hard with this new reality but am glad that there are caring people out there that can extend a kind word and share their experience. I am still slightly confused about whether there are different quality levels of "on time" with Sinemet based on duration and frequency of use, or whether all "on time" is basically the same. I want the best quality response that I can get during working hours when I need it, but once I get home and am relaxing, its hard to take that fourth dose if I don't really feel like I need it to function (laying on the couch watching TV). I would probably do it though if it meant that sticking with a more complete dosage schedule meant that I would function better overall. Oh well, I see the MDS at the end of the month. I am pretty sure that she will confirm PD based on my symptoms and response to the sinemet trial. I have been in denial for a couple of years now. I am hoping that learning to accept this will help me start to feel like myself again. Thanks Again!
  2. Tjon

    Sinemet Question

    So, it looks like I’m going to be part of this club as well... For the last two or three years, I’ve been having problems with my arm and hand. I own a restaurant which I work in and it has been a difficult couple of years. I’ve had several nerve release surgeries that didn’t really help. Abount two years ago, an orthopedic sent me to a Nuerologist who said he was 80% sure I had PD. I didn’t really believe him and thought he was just reacting to my family history (my dad has Parkinson’s). About a year ago, I went to an MDS. They weren’t really sure that I had Parkinson’s but they gave me a prescription for Sinemet. I was to start slowly and work up to 2-1/2 pills, 4 times a day. I only sparingly tried the Sinemet and ended up skipping my follow-up appointment. I was still suffering but I really thought it was something else, like a nerve impingement or something. Fast-forward to today...after the carpal tunnel and cubital tunnel surgery didn’t really help and after feeling some symptoms in my right leg, I have started to take the Sinemet again (about 3 weeks ago) and am up to 2 pills (25/100) per dose which I am taking about every 4 hours. I have not been taking a fourth dose in the evening because I don’t really need to use my arm and hand extensively when I’m at home relaxing. So, basically 6 am, 10 am, and 2 pm is my schedule. I have also taken some weekend days off, but usually end up taking a dose by afternoon when I can’t move my fingers and my forearm and shoulder are killing me. The Sinemet seems to be helping. My fingers on my right hand go from slow and weak to pretty fast and stronger. It’s still awkward but I can also use my arm better and it hurts a little less. My one-handed hand claps go from almost impossible to decent. i have an appointment with the MDS in two weeks. I’m anticipating that she will confirm PD once I tell her/show her about how I am reacting to the Sinemet. Ive been reading this board for a few weeks now and while I am still quite depressed, reading everyone’s stories helps me feel less alone. I’m 50 but I’ve always been pretty active and so this is hard with both my current symptoms as well as the fear of the future. So, on to my Sinemet question: Will my response to the drug improve the longer that I’ve been taking it? Also, if so, would I respond better if I took it a fourth time in the evening instead of skipping that dose? Currently, I’m getting about 3-1/2 to 4 hours of “on” time, and I have come to know what that feels like. So, I guess what I’m asking is “Is there a cumulative effect where the Sinemet works better/longer if I take it longer/with less gaps or am I seeing the best result that I am probably going to see?” I guess if there’s no cumulative effect that I’m missing out on, I’d rather be able to skip nights at home, weekends, etc. Thank you! Tjon