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Marle222

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About Marle222

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  1. Marle222

    Mucuna Pruiens

    Thank you so much for your kindness and reassurance. I truly appreciate it. I will let you know what happens next!
  2. Marle222

    Mucuna Pruiens

    Thank you so much for your prompt reply! Thank you as well for your insights. Hopefully within the next 2 months I will be discussing DBS with another neurologist and surgeon. In order to resume my life's work and passion the Tremor needs to be all but completely eliminated. I understand that DBS is quite safe and effective. Still, I must admit to some fear about having and Electrode implanted in my brain!
  3. Marle222

    Mucuna Pruiens

    Thank you MCOMES. Do you have any sense of how long before I see some improvement? As per doctor's orders I just doubled the dosage this morning after 7 days. I'm just worried that I may start experiencing the more worrisome side effects before I start feeling the therapeutic effects. Over the years, I have found that I am very sensitive to the side effects of virtually any medication. Thank you again.
  4. Marle222

    Lyme induced parkinsonism

    I was diagnosed with Lyme disease five years ago. I received six weeks of amoxicillin. A Tremor in my left hand developed shortly thereafter. Initially diagnosed as ET and treated with primidone which only made it worse. One year ago diagnosed as PD. The doctor tried l-dopa then l-dopa Carbidopa and now mirapex. I am currently titrating up but no effect so far. I read an article by dr. Daniel Cameron about Lyme induced parkinsonism. Have you or anyone you know received this diagnosis? If so, how was it treated? Are you aware of it ever being reversed? Thank you in advance for your input.
  5. Marle222

    Mucuna Pruiens

    I have been journaling. My doctor switched me to mirapex. I have been at 5 mg daily for four days now. I will titrate up to 1 mg in three days. So far no impact on the tremors at all. Thank you again for your input.
  6. Marle222

    Mucuna Pruiens

    Thank you so much for your valuable insights!
  7. Marle222

    Mucuna Pruiens

    I'm a newbie. Diagnosed after Lyme disease 5 years ago and the onset of what was at that point a suspected essential tremor. Over the past five months I started to develop rigidity along with the Tremor in my left arm only. Subsequently diagnosed idiopathic Parkinson's a month-and-a-half ago. My neurologist prescribed l-dopa Carbidopa 25 250 but after 12 days I had only some reduction in the rigidity and tremor but I had significant side effects i e sleep disruption, headache, brain fog worsening , nausea and malaise. The neurologist took me off of the medication pending the results of a complete blood work-up, sleep study and a second lumbar puncture. In the interim I am trying MP 15 grams daily in the morning. After 5 days so far so good. Some nausea and continued sonambulism but no other side effects and a significant reduction in Tremor and rigidity. I've read mixed reports about whether MP causes dyskinesia or not. Additionally, I've seen suggestions to add amantadine and selegaline along with periodic cleansing therapy. But I will wait on all of that until I've caught up with my neurologist again in 4 weeks. I am overwhelmed by the amount of information that is out there but I try to research to the extent I can on a daily basis. Any insights would be greatly appreciated.
  8. Marle222

    Where to get the best quality of Mucuna puriens?

    No answer in one year. I have been taking Weyland brand 15 grams in the morning for 5 days. I have seen a dramatic reduction in Tremors for the entire day without nearly as many side effects as I experienced with sinemet / 12 days. I'm a newbie. All of this seems to have been brought on by Lyme disease nearly 5 years ago. It took this long to get a diagnosis and this was my first attempt at medication. So far so good but I still have far more questions than I've been able to find answers.
  9. Marle222

    Lyme induced parkinsonism

    As I understand it and I am certainly not a physician but if you responded to PD medication it may be likely it is not Lyme induced parkinsonism.
  10. Marle222

    Lyme induced parkinsonism

    Have you responded to PD medications?
  11. Marle222

    Lyme induced parkinsonism

    Diagnosed with PD not Lyme induced parkinsonism. Is that correct?
  12. Marle222

    Lyme induced parkinsonism

    Hi Linda, I was unable to copy and paste the article. But if you do a keyword search Subacute parkinsonism as a complication of Lyme Disease by Daniel J Cameron MD the study will come up. Additionally, I have posted a question concerning how this diagnosis is reached as separate from idiopathic PD. When he replies to this message I will share it with you. Additionally if you message him would you please share his response with me? I've tried other sites but the doctors either did not respond or were not familiar with this particular condition. Since I'm in Hawaii I'm not entirely confident it's a neurologist here will have familiarity either. Thank you for posting a reply.
  13. Marle222

    Lyme induced parkinsonism

    What does anyone have Lyme induced Subacute/acute parkinsonism? If so, how did your physician arrived at this diagnosis as separate and distinct from idiopathic PD?
  14. Marle222

    Lyme induced parkinsonism

    Thank you.
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