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Kara3

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About Kara3

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  1. Kara3

    Tremor when nervous?

    I clear my mind and breathe deeply as someone already mentioned. It really works for me.
  2. Kara3

    password

    Yes, I am typing in the correct password. 😕 A tech should look into this.
  3. Kara3

    password

    I'm having the same problem. Did you ever get this resolved? Thanks!
  4. Kara3

    Interrupting Parkinson's disease

    http://www.kpbs.org/news/2018/jul/03/san-diego-parkinsons-fighters-battle-disease-resea/ San Diego Parkinson’s Fighters Battle Disease As Researchers Close In On Breakthrough (".....transplanting healthy brain cells to replace the cells killed off by the disease.") Tuesday, July 3, 2018 By Susan Murphy
  5. Kara3

    Peeved PreClinical Parkinson's Person

    Exactly. I told the doctor it's not that I want to have Parkinson's. I don't want medication either. I just want to get involved with research and unfortunately without the diagnosis I can't get involved. It's like the chicken and the egg thing??? Catch 22??? Not sure what it's like other than frustrating. I will be 61 in a few days. I first suspected when I was 58, waited a year to see my first neurologist, saw a second movement disorder doc when I was 60, and I'm guessing won't get a good diagnosis until I'm 65. My symptoms are very sporadic at this point. Good advice. PD is not the worst thing that could happen. Knowing my PD future gives me opportunities that others may not have had. Always live your life to the fullest; no one really knows what will happen tomorrow. I could die in a car accident tomorrow and wasted years worrying about something out of my control, but I still want to be involved and help find a cure.
  6. Kara3

    Peeved PreClinical Parkinson's Person

    Thanks so much for the link. I will check those out. I am pretty much willing and able to travel anywhere for research that focuses on early diagnosis, cures, exercise, or slowing the progression of.
  7. Kara3

    Peeved PreClinical Parkinson's Person

    Thank you for your response, Kevin. The second doctor I saw was a movement disorder specialist at one of the "largest clinical trial programs..." which was why I chose it. I am not really experiencing any motor issues that would be visible during an exam. Most of my symptoms are at night except the recent fall. My only interest at the time was in research; I cannot get involved with research until I have a clinical diagnosis. Most of their research focused on medications. I'll take a wild guess they are sponsored by pharmaceutical companies. I did participate in one study as part of the control group. They did genetic testing, but since they are not a medical facility will not give me the results. I don't recall my mother being on medication for that long (5 years) before she got a diagnosis. It is very frustrating to wait as brain cells die away. I generally have a good attitude for now and try to exercise a lot and enjoy my life while I can. I worry more about my kids and what their future holds. I hate that I possibly passed this down to them.
  8. About 2 years ago I started experiencing signs of Parkinson's....extremely painful leg cramps at night, vivid dreams, small handwriting, internal tremors, eye tremor, nocturnal drooling, dry mouth and occasional tremors in my foot and fingers...to name a few. After a year of sporadic symptoms I went to see a neurologist who laughed at me and said I didn't have Parkinson's. I went to another neurologist who also laughed at me and said I didn't have Parkinson's. I'm not sure how they were so confident since they could not see into my brain, but regardless I'm sure they could have responded in a more compassionate manner. I guess when you are an arrogant doctor it's better to make the patient feel dumb rather than admit your own ignorance It is important for me to get an early diagnosis in order to get involved in research. At least I would feel I was doing something. There is no research for someone who "thinks" they have Parkinson's. My mother has Parkinson's along with two of her brothers. Where is the research on epigenetics, early diagnosis, cure!!! At this point I feel so hopeless; I'll just wait for enough brain cells to die, so some brilliant doctor can get out their prescription pad, and write me a prescription. I had my first fall last week and messed up my shoulder. If anyone is aware of research that involves preclinical PD patients (not sure that's a valid term) I would really appreciate it.
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