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genden69 last won the day on December 11

genden69 had the most liked content!

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189 Excellent

About genden69

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    Advanced Member
  • Birthday 01/01/1970
  1. Caretaker tip

    Caregiving is a challenging and lonely job—a job most of us don’t have training for or even experience with. As a result, we find our way through determination and inventiveness. If anyone has helpful tips to pass along, I would be ever so grateful.
  2. Caretaker tip

    Another tip. Because DH is lying on one side or the other most of the time, his ears are at risk for compression sores. I have a plush throw that I put over his pillow to cushion his ears. It washes easily and has been effective. This is not minky. Minky sheds too much. It is a soft plush—maybe like a fleece, but I call it plush. It is soft and cushiony. My daughter says they are popular as throws and there are a lot of them in the stores.
  3. Caretaker tip

    This tip is for those who are caregivers of someone bedridden, who sits a lot, or who spends a lot of time in a wheelchair and is at risk for bedsores or pressure sores. After DH was bedridden for a while, he developed a serious pressure sore on his tailbone. I was naive about the risk and thought hospice was covering all bases, but not. He cannot lie on his back and has to be regularly rotated from one side to the other. Because he is so thin, his hip bones are very prominent and soon red spots began to appear there indicating the beginning of pressure sores. I searched for a solution. I am a quilter and my favorite batting is Hobbs wool. I had a bag of leftover cuttings. Wool is resilient. It does not mat down. I had been using a sheepskin all along, but it didn’t prevent the tailbone pressure sore. The batting is spongy and I can use as many layers as I want for cushioning. We still rotate him regularly, but always with layers of wool batting under his hipbones. He has developed no bedsores there and the tailbone bedsore is healing miraculously when the hospice nurses told me it would not heal and would only get worse. The nurses are amazed and are now recommending the batting to other patients at risk for pressure sores. It is an effective, easy and relatively inexpensive solution for a difficult problem. I hope this information is of help to someone else.
  4. Call your senator about the awful tax bill

    Please give a source for this article. Is this your words, or is it from an unnamed source? I like to know where the information I read comes from.
  5. I am so sorry you are dealing with this. The only thing I can say is that is what I dealt with until my DH became bedridden because he could no longer walk and his dementia had advanced. The falling stopped at that point of course. He did slip out of bed three times in the beginning, but no such incidents for the past ten months, The disease progresses and brings new challenges. Celebrate and enjoy any good days or moments you have.
  6. Call your senator about the awful tax bill

    A relevant fact-not a point of argument because I don’t want to argue—almost half of the 45% who do not pay federal taxes are retirees who don’t have enough income to pay taxes. There are other points that deserve more scrutiny such as those who make the giant share of money should pay the giant share of the taxes. Also the statistics you have presented just go to highlight the fact that we have a huge wealth gap in this country and the proposed tax bill will widen this gap. I will leave it there—no arguing intended.
  7. Disability

    My husband did not apply for disability, but friends that have say it is essential to hire a good disability lawyer. There are too many "mother may I" requirements to traverse it on your own.
  8. Summer adventure season starting

    ellaangel2, i am in agreement with you and second your request for a separate thread.
  9. Some advice please

    The advice is good to write down the new symptoms and your concerns, then discuss them with his doctor. If he has been diagnosed with Parkinson's for ten years, it is not likely Lewy body dementia. It could be Parkinson's dementia. He may need a medication adjustment, his recent illness may have caused some temporary symptoms, or it might be the progression of the disease. When the doctor has all the information he will be able to sort it out for you.
  10. latest news on healthcare cuts coming

    PatriotM, There are some of us who believe that everyone should have healthcare and are willing to pay taxes that may help in that goal. There are others who believe that if you can afford healthcare, you get healthcare and if you can't afford it, you don't. There are proponents of either side. Any attempt to change the minds of those who think differently is almost always futile.
  11. No Sleep For The Weary

    What I have learned as caregiver for my DH diagnosed 20+ years ago is that medications should be kept as simple as possible, especially for the elderly. More medications for the side effects of other medications is a vicious cycle. DH's MDS did not prescribe agonists for the elderly because they often contribute to mental confusion. Another side effect of Mirapex is sleep problems and insomnia. DH did best in the later stages of the disease with regular sinemet every two hours during waking hours and an extended release sinemet at bedtime. We found that optimizing sinemet was the best for him. I hope you can find a medication adjustment so that your mother and her caregiver can get sleep.
  12. No Sleep For The Weary

    As caregiver of DH with Parkinson's, diagnosed 20+ years, I have found that in regards to medication, simple is better. For DH, agonists including Mirapex, caused more problems with side effects than benefits. DH's MDS did not prescribe agonists for elderly patients because of risk of worsening dementia. One of the side effects of Mirapex is sleep problems. DH responded best with regular sinemet at two hour intervals and an extended release sinemet at bedtime. Unfortunately, in my opinion, the tendency is to add more medications that cause side effects rather than optimizing sinemet. I so hope you can get her medication adjusted so that both your mother and the caregiver can have rest.
  13. Big News?

    Twenty + years ago when my husband was diagnosed, his MDS in all sincerity told us that medication would eliminate any Parkinson's symptoms for five years and after that we wouldn't need to worry because there would be a cure. I hope and pray that the cure is finally here--too late for my DH, but a welcome life changer for so many.
  14. Husband keeps falling need suggestions

    Maral77, I wish you and your husband the best and hope you were not offended by my comments. My DH has been diagnosed for 20+ years, has severe dementia and has been bed bound and on hospice for eight months. I care for him at home. The daily battle with the help of CNA's and nurses is to prevent and treat pressure sores. He has a deep bedsore on his tailbone that we are keeping from spreading and getting infected. It means constant turning and vigilance. A nurse changes his dressing daily. Today we are dealing with bowel issues. Feeding him has become a challenge. He has no co-morbid conditions and his vital statistics are very good. He is very thin. He has no quality of life. This may sound harsh, but with what he is suffering, if he had passed away quickly from a fall, in my opinion, it would have been a blessing. As the nurse left a few minutes ago, she said it breaks my heart. There are things worse than death.