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coacht

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coacht last won the day on October 24 2017

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About coacht

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  • Birthday 01/01/1970

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  1. Hello all, This is something I have never seen mentioned and wondered if women or men for that matter have had increased sensitivity in their erogenous zones after DBS. My wife felt so much better after surgery that things in that area improved, then a year or two later as the settings were increased she became almost too sensitive to touch. Has anyone else experienced this? She is 53 and has not hit menopause yet. She had her battery changed out a few weeks ago and that went well. Coach T
  2. coacht

    The period at the end of the sentence.

    Genden, so sorry for you loss.
  3. coacht

    Disability

    None, she continues to work, but a lot less. She started Rock Steady boxing last fall and did really improve. Her programming changes also helped. The gym owners took a week off before Christmas and she really declined and was awful for the month of January. She was forgetting to flush the toilet, for example, which she has never done. She can't set the table completely for example. Her memory or her ability to stay focused is really off. She had a neurologist's appointment the first of last month and she walked the best, talked the best, and made sense compared to just the day before. I emailed the neurologist about whether it was Lewey Body Dementia and they didn't think so. Said there are meds that can be given, but I know my DW will not think anything is wrong. Also, most of the meds are anticholinergics, which caused many problems when she was on similar things in the past. She is still in her own little world. Also, she said she is a people person and needs to be around people. She isn't really a people person, she is a doing person, she constantly needs to be doing something and the thinks she likes to do involve people. Just last week it really hit me that we are more like roommates than a married couple. She has changed so much, PD has brought out much of the worst parts of her personality and she can't recognize it. There is much more, but that is all for today. Thanks for asking.
  4. coacht

    Does this seem normal? Sleep attacks?

    Carol, Some meds can cause sleep attacks, which ones I can't remember off the top of my head. Why is she on mirapex instead of sinemet? A question to ask since Mirapex has so many side effects. It sounds really complicated and I don't understand some of the acronyms for the disease. There is a list of medications on this website that states what medicines a PWP should not use. It is a good resource. Coach T
  5. coacht

    How to plan your own future

    Bluemoon, Where are your from? Some of the terms you use are different than we use in the states, so it might be different in another country. Coach
  6. coacht

    Disability

    Thanks, Golden.
  7. coacht

    Disability

    Hello all, My DW has reached the point they don't want her to work much as a substitute teacher. She is really out of it the days she does work. I mentioned applying for disability and she is considering it. What was the tipping point where your PWP applied for disability? How hard was it to apply and what all did you have to do to document the disability? I am looking at the SSI website, I just need some pointers as to best how to proceed. Thanks, Coach T
  8. Dunne08, You should never use acronyms without telling what they stand for. Why would I do a survey on something I have no idea what it is? I am too lazy to look it up.
  9. coacht

    No Sleep For The Weary

    Klonopin, (clonazapam) helps my wife and therefore me.
  10. coacht

    PROGRESSION

    Bigmac, Thanks for the question, I hope to hear from someone since we are not at that stage. Coach
  11. coacht

    what to do

    Noah, I sound a lot like your husband in some ways. My wife was on the agonists for several years and she changed so much on them due to the side effects. She wanted to go to counseling and we went to a Christian counselor. It did me more good than her. She couldn't see what she was doing and everything she did seemed right in her own eyes. She told me that I had changed and that I used to be a really nice guy that treated her better than anyone, but not anymore. She had changed and the way I was coping was not always the best. Things improved greatly once she was off the agonists and she realized what she had been doing but wouldn't talk about it. More meds were added so more side effects and well as the disease progression made things difficult again. She had DBS three years ago and things were better the first year, then things were getting difficult again. This spring she had an attitude change for whatever reason and things have been better off and on. She continues to deteriorate as far as executive function goes, but her memory is clearer. She talks big, but doesn't follow through with things like she should and day to day chores do not seem as important and the time she spends on the computer. There is so much more, but I wonder if you see yourself in any of this? Maybe show my post to your husband? I know things really get to me and in reality the rest of my life is really good, but she is not interested in any of it really. She also refuses to go to support groups, so I have gone by myself in the past. As per usual it seems to help me but not her. Maybe he would go to something like that if it is for you and not him? If you are on agonists, I would seriously consider getting off of them. Hope this helps, Coach T
  12. coacht

    Voice weakness

    The speech problems did not show up until almost two years after DBS. The increasing pulse strength and width may be to blame. They turned down the pulse width last time to try and help her speech. Her speech problems come and go, so it can't be just the DBS, the speech problem is probably multifactorial.
  13. coacht

    Voice weakness

    My wife has a hard time saying her own name now. other words not so much.
  14. coacht

    Voice weakness

    Interestingly, at the appointment with the neurologist this week, my wife's voice was the best it had been in over a year. Just two day before one of our son's texted me and wondered why she sounded drunk.
  15. coacht

    Voice weakness

    it was relatively normal. She did not seem to know how loud she was and was quite loud for example when we were eating. She did not continue the exercises and within a few months her voice levels started deteriorating. They improve somewhat for a short time if she does them.
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