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coacht last won the day on October 24 2017

coacht had the most liked content!

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About coacht

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    Advanced Member
  • Birthday 01/01/1970
  1. Does this seem normal? Sleep attacks?

    Carol, Some meds can cause sleep attacks, which ones I can't remember off the top of my head. Why is she on mirapex instead of sinemet? A question to ask since Mirapex has so many side effects. It sounds really complicated and I don't understand some of the acronyms for the disease. There is a list of medications on this website that states what medicines a PWP should not use. It is a good resource. Coach T
  2. How to plan your own future

    Bluemoon, Where are your from? Some of the terms you use are different than we use in the states, so it might be different in another country. Coach
  3. Disability

    Thanks, Golden.
  4. Disability

    Hello all, My DW has reached the point they don't want her to work much as a substitute teacher. She is really out of it the days she does work. I mentioned applying for disability and she is considering it. What was the tipping point where your PWP applied for disability? How hard was it to apply and what all did you have to do to document the disability? I am looking at the SSI website, I just need some pointers as to best how to proceed. Thanks, Coach T
  5. Dunne08, You should never use acronyms without telling what they stand for. Why would I do a survey on something I have no idea what it is? I am too lazy to look it up.
  6. No Sleep For The Weary

    Klonopin, (clonazapam) helps my wife and therefore me.

    Bigmac, Thanks for the question, I hope to hear from someone since we are not at that stage. Coach
  8. what to do

    Noah, I sound a lot like your husband in some ways. My wife was on the agonists for several years and she changed so much on them due to the side effects. She wanted to go to counseling and we went to a Christian counselor. It did me more good than her. She couldn't see what she was doing and everything she did seemed right in her own eyes. She told me that I had changed and that I used to be a really nice guy that treated her better than anyone, but not anymore. She had changed and the way I was coping was not always the best. Things improved greatly once she was off the agonists and she realized what she had been doing but wouldn't talk about it. More meds were added so more side effects and well as the disease progression made things difficult again. She had DBS three years ago and things were better the first year, then things were getting difficult again. This spring she had an attitude change for whatever reason and things have been better off and on. She continues to deteriorate as far as executive function goes, but her memory is clearer. She talks big, but doesn't follow through with things like she should and day to day chores do not seem as important and the time she spends on the computer. There is so much more, but I wonder if you see yourself in any of this? Maybe show my post to your husband? I know things really get to me and in reality the rest of my life is really good, but she is not interested in any of it really. She also refuses to go to support groups, so I have gone by myself in the past. As per usual it seems to help me but not her. Maybe he would go to something like that if it is for you and not him? If you are on agonists, I would seriously consider getting off of them. Hope this helps, Coach T
  9. Voice weakness

    The speech problems did not show up until almost two years after DBS. The increasing pulse strength and width may be to blame. They turned down the pulse width last time to try and help her speech. Her speech problems come and go, so it can't be just the DBS, the speech problem is probably multifactorial.
  10. Voice weakness

    My wife has a hard time saying her own name now. other words not so much.
  11. Voice weakness

    Interestingly, at the appointment with the neurologist this week, my wife's voice was the best it had been in over a year. Just two day before one of our son's texted me and wondered why she sounded drunk.
  12. Voice weakness

    it was relatively normal. She did not seem to know how loud she was and was quite loud for example when we were eating. She did not continue the exercises and within a few months her voice levels started deteriorating. They improve somewhat for a short time if she does them.
  13. For caregivers only

    My DW always thinks things like rock steady boxing are the answer when she won't even do the most basic exercises at home including her voice therapy. She is always looking for the homerun and won't work at the little things she can easily do.
  14. Voice weakness

    My wife did the LSVT a year ago and doesn't do her daily exercises and you can tell. It is a long term therapy that needs to be done regularly, not just the initial training. Hope it works for you, it did for my wife when she did it.
  15. Morphine in hospice care

    Genden, So sorry for you to go through this. Evening out the Morphine means that lower doses can be used since the pain will not start. When you give a dose it goes up really high and then if you don't give it the level in the blood drops to where it doesn't work and then pain is experienced and a higher dose has to be given to stop the pain. It would help if I could make a graph to show you what happens, but it makes a lot of sense to me to give smaller doses consistently. Thanks for sharing. Coach T