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coacht

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coacht last won the day on October 24 2017

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About coacht

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  • Birthday 01/01/1970

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  1. coacht

    Life after DBS

    Chuck, If everything goes according to plan you will be able to do all of that. Make sure they put on the stimulator on the side away from where you shoulder a gun. That can be problems, infection, improper placement, programming problems. I do know that my DW would not be walking now and working some without DBS. They said she had the optimum outcome from the procedure. It is a matter of the risk you want to take and also, the disease will progress and DBS does not stop that, just gives you a reprieve. We are all getting older no matter what we do though. Coach T
  2. coacht

    Disability

    Thanks GulfVet
  3. coacht

    Disability

    Thanks Golden
  4. coacht

    Disability

    Thanks Golden, I will look into it. She is making far less than that. I didn't even know it was possible. Coach T
  5. coacht

    Disability

    My DW is working a little bit yet, but her ego is such that claiming disability probably won't happen for a while. Her voice is so soft I don't know how she will be able to do much, let alone how bad her executive function is getting. I don't think proving it will be a problem.
  6. coacht

    DBS Programming / Configuration

    A neurologist or a movement disorders specialist will usually do the programming. Often a manufacturer representative may be there also, but usually not all that often in our experience. The number of sessions depends on how well you respond, how good of job they do programming, and how the disease progresses. Hope that helps, Coach
  7. Hello all, This is something I have never seen mentioned and wondered if women or men for that matter have had increased sensitivity in their erogenous zones after DBS. My wife felt so much better after surgery that things in that area improved, then a year or two later as the settings were increased she became almost too sensitive to touch. Has anyone else experienced this? She is 53 and has not hit menopause yet. She had her battery changed out a few weeks ago and that went well. Coach T
  8. coacht

    The period at the end of the sentence.

    Genden, so sorry for you loss.
  9. coacht

    Disability

    None, she continues to work, but a lot less. She started Rock Steady boxing last fall and did really improve. Her programming changes also helped. The gym owners took a week off before Christmas and she really declined and was awful for the month of January. She was forgetting to flush the toilet, for example, which she has never done. She can't set the table completely for example. Her memory or her ability to stay focused is really off. She had a neurologist's appointment the first of last month and she walked the best, talked the best, and made sense compared to just the day before. I emailed the neurologist about whether it was Lewey Body Dementia and they didn't think so. Said there are meds that can be given, but I know my DW will not think anything is wrong. Also, most of the meds are anticholinergics, which caused many problems when she was on similar things in the past. She is still in her own little world. Also, she said she is a people person and needs to be around people. She isn't really a people person, she is a doing person, she constantly needs to be doing something and the thinks she likes to do involve people. Just last week it really hit me that we are more like roommates than a married couple. She has changed so much, PD has brought out much of the worst parts of her personality and she can't recognize it. There is much more, but that is all for today. Thanks for asking.
  10. coacht

    Does this seem normal? Sleep attacks?

    Carol, Some meds can cause sleep attacks, which ones I can't remember off the top of my head. Why is she on mirapex instead of sinemet? A question to ask since Mirapex has so many side effects. It sounds really complicated and I don't understand some of the acronyms for the disease. There is a list of medications on this website that states what medicines a PWP should not use. It is a good resource. Coach T
  11. coacht

    How to plan your own future

    Bluemoon, Where are your from? Some of the terms you use are different than we use in the states, so it might be different in another country. Coach
  12. coacht

    Disability

    Thanks, Golden.
  13. coacht

    Disability

    Hello all, My DW has reached the point they don't want her to work much as a substitute teacher. She is really out of it the days she does work. I mentioned applying for disability and she is considering it. What was the tipping point where your PWP applied for disability? How hard was it to apply and what all did you have to do to document the disability? I am looking at the SSI website, I just need some pointers as to best how to proceed. Thanks, Coach T
  14. Dunne08, You should never use acronyms without telling what they stand for. Why would I do a survey on something I have no idea what it is? I am too lazy to look it up.
  15. coacht

    No Sleep For The Weary

    Klonopin, (clonazapam) helps my wife and therefore me.
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