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Showing results for tags 'Early onset'.
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Today I finally got confirmation from a movement disorder doctor at Northwestern Medical (clinic that Dr. Razak heads) and I loved her. She spent nearly 90 minutes with me and after she easily diagnosed me with bradykinesia, rigidity, and tremor she said I fell in the "minor" category for now. She did offer Datscan and genetic testing but for now I'm holding off and she was fine with that. I'll start amantadine tomorrow but for now I'll stay off all other synthetic dopamine meds. Thank you Dr. Okun for encouraging me not to give up. I was so sure I'd be told I was crazy. It is so worth it to see specialists in the area; the neuro I've seen is so well respected in the field of MS but this just wasn't his area and I am thankful he also referred me on! I feel like I know what I'm fighting now and that actually feels great!
This post is also in Young Onset Forum My Doctor suspects Parkinson's and wants me to take Carbidopa Levadopa to make final determination: How will drug effect me if this is not Parkinson's disease? What will it do if I have PD? How long/ how many doses will it take before I should notice a difference? So far at 1/day for past two days, increasing to 2/day next week, and then 3/day until follow up visit. Feel dizzy and tired for an hour after taking and then feel calm and more stable for a few hours, and then return to base-line so far. Additional Details I did ask my doctor pretty much the same thing, and was told if it is PD the medicine will help me improve, if it is not it won't. Also said that if I get worse to stop taking and call immediately. Looking for someone with first hand experience, preferably with early onset PD as I am in my 30's and finding it hard to believe I have an incurable disease that will slowly make life more difficult.