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Found 11 results

  1. Recently my Dr mentioned a new group they were thinking of forming to deal with anxiety, depression, etc, based on a “new” therapy that was proving effective with a low level of recidivism. It’s called Mindfulness, based on Taoism philosophic principles. She thought with my taking tai chi and my interest in psychology etc that I might be helpful in the group. I told her that I already use one of the techniques – observing my flow of thoughts and feelings without identifying with them. I consider my life-long interest in psychology and health to be helpful in living with PD, as it’s provides me insight into both – and first-hand experience of the relation between mind and body. After thinking about Mindfulness relating to PD and sickness in general I thought it could be very helpful - but I can only see it being helpful to people who believe that there is more to life than meets the eye -- whether it be religion, philosophy, cosmic forces or whatever. For without this belief I can’t see how or why anyone would derive satisfactory meaning (or reason) from observing their negative and painful experience of anything..... Since my Dr mentioned it I have noticed more articles on mindfulness...
  2. I am a 53 yr old male diagnosed with PD in early 2015. My current symptoms are minor tremor in the right arm and fairly severe anxiety. My anxiety comes on routinely at early to mid-morning building up as the morning progresses. I am usually able to get in about 40 minutes of aerobic exercise in on my noon lunch break. This almost always has a calming effect through the rest of the day. I’m currently taking Cymbalta and Klonopan for the anxiety without much effect and Wellbutrin for depression. The anxiety started three months before I was diagnosed. My question is, could sleep or time of day I take my medications have an effect on these morning bouts of anxiety? Additionally how does exercise alleviate the anxiety?
  3. My mom is 74 years old. She was diagnosed with Parkinson's 9 years ago. She was taking 3 different medications Sinemet, Neupro patch, and Amantadine. She was having horrible edema in her feet and ankles. The Parkinson's symptoms weren't bad at this point. Because of the swelling the doctor decided to take her off of the Amantadine since that can cause swelling. When she eliminated that medication the swelling didn't go down but the muscle spasms in her face, causing her to stutter went away, which was good. She is still off the Amantadine. So the doctor decided to take her off the Neupro patch. That did it.....all the swelling is gone. But the bad news, all those Parkinson's symptoms that weren't so bad got a whole lot worse. For starters, she is a lot weaker and moves a lot slower. She is down to one medication, she only takes a half a sinemet pill 5 times daily. Anything more than that makes her really nauseous. She is very little anyway 5'2 and 90 pounds and is obviously very sensitive to medications. Ever since going down to one medication, she has terrible anxiety, some depression and her blood pressure either gets too high or too low. She is taking blood pressure medicine to treat that symptom. I'm just wondering if all this anxiety, depression and blood pressure problems have to do with "off" times because her sinemet isn't lasting long enough. She is reluctant to go on another medication because of the side effects like nausea and edema. Just wondering if anyone else has had these problems and what medications work best for them.
  4. My mom is 74 years old and was diagnosed with PD 9 years ago. Recently she was on Sinemet, Neupro, and Amantadine. Her PD symptoms were minimal, but she was having severe edema in her feet and ankles. The doctor took her off of the Amantadine, and the swelling was still there, but the muscle spasms she was having went away so she never went back on the Amantadine. The doctor then took her off of the Neupro patch, and that did it, no more edema in her legs. Having gone off two PD medications her PD symptoms are now a lot worse. She has a lot of anxiety and spikes her in her blood pressure throughout the day. She is on two different blood pressure medications, plus clonidine to help with bringing the BP down immediately. And she takes clonazepam to help with the anxiety. She takes a half a pill of sinemet 5 times a day. This is the only PD medication she is on right now. If she takes a whole pill or takes it any more than 5 times a day she says she is nauseous. I'm assuming the blood pressure and anxiety has to do with not getting enough sinemet? What do we do to get the sinemet to last longer without all the nausea? Is there another medication she can take that won't interact with her other medications or make her nauseous? She has taken azilect before without any problems but I am afraid it might make her too drowsy with the anxiety medication. Any help would be appreciated. Thanks. Tricia
  5. Hi Mark My mom was diagnosed with Parkinson's 9 year ago, she is now 74. She was on Sinemet, Neupro, and Amantadine, but the doctor took her off the Neupro and Amantadine because of serious edema she was having in her feet and ankles. She is now only on the Sinemet. You can imagine going off that much Parkinson's medicine has made the Parkinson's symptoms much worse. She is a lot weaker and has a lot of anxiety where she didn't have any anxiety before (she takes Klonopin for the anxiety). I think all of this is because she is on the minimum amount of medication and has more "off " times than "on" times. She only takes a half a pill of sinemet 5 times a day. If she takes a whole pill it makes her really nauseous. She takes it with food but that doesn't seem to help. Is there anything she can take to help with the nausea? I'm not sure if changing to an exended release would help the nausea or make it worse. Any advice you can give me would be greatly appreciated. Thanks, Tricia
  6. Hello everyone, This is my first post on here. I don't officially have a diagnosis of PD yet, but my neurologist basically said it is 50/50 whether I have PD or Dopa-Responsive Dystonia. The more and more I think about it I feel it is PD. I'm 22 and I just got my first job out of college as a reporter in Southern Idaho. I love my work, but between my symptoms, which seem to be slowly worsening, and knowing absolutley no one here I am very depressed. I don't know what to do. I'm trying to find a doctor down here, and I have a neurological appointment set for April, but everyday I feel like I'm sinking. I have no friends here. I like my coworkers, but they're all much older than me. I was living with my girlfriend, who is amazingly supportive. She was working and things were good, but then she got hit really hard with M.S. like symptoms that have made it difficult for her to function. Now she's in Seattle to see a doctor, and I worry that she isn't going to be able to come back. I feel like I have no real friends anymore, certainly none that understand what I'm going through. I love to get out and take photos, but its cold and the roads are treacherous so I am unable to really go anywhere. I'm scared to go out alone becuase I could easily become stranded on the roads or anywhere else if I mistime my dose. The last couple days I've been incredibly depressed. The only thing I get any enjoyment out of my job, and I worry that sooner or later I won't e able to keep up, especially when I screw up my dosage, which has been more frequent lately. It seems like Sinemet is starting to lose its effectiveness. I'm sick of being frozen when I mistime my dose. I'm sick of almost always being uncomfortable. I'm tired of being alone. What I hate most of all about this whole situation is the fact that it's taken my dreams from me. I no longer feel that my career aspirations are possible for me. There is no way I can devote the time or energy needed to get where I want to go. I want to start a photography business but how realistic is that really? I feel uncomfortable moving too far from my parents because I feel that I'll ultimately have to move in with them. Thankfully they love and support me, but obviously I'm not thrilled about this. I'm scared of what will happen when they get older. What if they fall ill? What happens when they die? I'm terrified of ending up on disability because I feel that my benefits would be the first thing on the chopping block when the government tries to balance the budget. I apologize for the length of this post, and for the abject hopelessness of it. I'm sure that many of you felt this way when you were first diagnosed. How did you get through it? What keeps you going in the face of this terrible disease? How do you cope with the isolation and lonliness of living with it? And how do you cope with the horrible wearing off periods?
  7. Good morning! I wanted to reach out to fellow caregivers on this topic on behalf of my mother....well...and myself, too, because we are both going insane. My father, our PWP, is becoming more and more anxious. We know that depression and anxiety can come with PD, and we are going to talk about this in his upcoming neuro appt, but I am wondering if any of you have dealt with this. My father has to be going somewhere...all the time. For instance, he woke up this morning at 1am, shaved, got dressed and was ready to leave the house. He was eager to make an appointment this afternoon but he wanted to leave four hours early. In between scheduled appointments, he has to be leaving or going somewhere. He cannot sit still for more than 10 minutes. My mother has to drive him to and fro and be with him now 24/7. During a one hour business meeting she had yesterday, he called her three times. We're worried that he might be afraid to be alone...maybe he's worried about choking or falling...but that doesn't explain his restlessness. Growing up, I remember my father was always kept busy, and he didn't like to stay at home all day long, but he did know how to rest and be in one place for awhile. Any input is appreciated! Thanks!
  8. My 80-year old mother has Parkinson's, but probably at a fairly early stage with symptoms that are generally well-managed with Sinemet, energetic walking and other voice and physical exercises. However, since the death of my father a couple of months ago, she has experienced frequent (1-4 / wk) episodes of early morning (3-4 am) waking with a feeling of breathlessness, something like a pressure on her chest. She has to sit up and concentrate on breathing, and then has difficultly going back to sleep. This does not appear to be related to muscle spasms, rigidity, restless leg, need to urinate, nightmares or other sleep-related disorders commonly associated with Parkinson's. However her heart and blood oxygen levels appear to be normal and her doctor and cardiologist are convinced it's not a problem with her heart or lungs. She is able to get to sleep normally in the evenings and can nap during the day without a problem, and when she does sleep normally, she wakes feeling normal and rested. Since it seems to have become an issue since my father's death, and she is now living alone, we wonder if this might be some caused by a feeling of anxiety or depression, or if this sounds like a problem that could be related to Parkinson's, and we are desperately looking for ways to identify or at least narrow down the cause and possibly alleviate the symptoms.
  9. I am new here. And looking to find out if anyone else has friends/family that have been diagnosed prior to motor symptoms. My dad can't smell anything - and hasn't been able to for the last two years. He is losing weight, has REM disorder (which supplies our family with hilarious stories of him dreaming he is wrestling with his brothers only to be found on the floor wrestling the dog or waking up my mom in a panic telling her the floor is lava). His facial expression has changed, he blinks less often - which makes it look like he is staring while his face is super lax - kind of scary. He has bouts of crippling anxiety - so much so that he has begun to avoid going out though on the side he is a drummer in a band and loves to socialize. He watches It's a Wonderful Life every year, but the last two years he has cried through the whole thing. But he's not 'depressed' in the technical sense - it is more anxiety and the wrong emotional or too much or too little emotional output. His interest in food has waned - he used to finish all the food on the table - he would have all the serving dishes in front of him by the end of dinner - now he finishes what is on his plate most of the time. He can't keep weight on. He says he feels like he can't swallow, but he's been to the doctor who sent him to a neurologist who only diagnosed the REM disorder, but ignored the other issues. He's definitely getting worse and it is affecting his relationship with my mom and his ability to handle the world. Has anyone here had a family or friend diagnosed prior to tremors or other motor symptoms of this disease? Does anyone have advice for talking with a neurologist to get them to 'rule out' Parkinson's? We would love to see him get this anxiety under control, but conventional psychotherapy and medication do not work. Thank you all and I wish that you have a wonderful week.
  10. Hello, Last month I had a moment in which time stopped. It was during my class in which we were learning about the neurotransmitter dopamine. The power point flashed with a description of symptoms: loss of sense of smell, anxiety, depression, trouble swallowing or a feeling of difficulty swallowing, REM disorder, personality change, loss of facial expression... All of which completely describe my dad's issues which have gotten significantly worse over the last two years. He's already been to a neurologist who only diagnosed him with REM disorder, ignoring all the other symptoms he has been having. They live in Buffalo, NY - and I think he should see another neurologist, but I don't know where to start. I've been searching online but all I see is doctors who are working with motor symptoms - but it seems that even though the literature states that NMS are often present years before motor symptoms doctors are not diagnosing until motor symptoms are clear and present. The shear amount of anxiety he is having is starting to wear on the entire family and the personality changes and inability to concentrate are exhausting. The REM disorder is getting worse and becoming a danger - which he then feels even worse about though he can't remember what he did in his sleep. We really want him to get some sort of relief to the point where he can enjoy life more than he does now - he just turned 53 today. My question is how do I find a doctor who can assess non-motor symptoms and start him on some kind of treatment to alleviate some of the issues? What do we look for in a doctor? How do we talk to the doctor about our concerns?
  11. My 91-year-old mother-in-law has had PD for 10 years. For the past 18 months she has been in a skilled nursing/nursing home facility. For many years she has dealt with UTI's, and for the past year she has had frequent ones. Most recently she was hospitalized for two weeks receiving two different antibiotics through an IV. During her stay in the hospital she did not experience anxiety or freezes, her voice was strong and she ate very well and left the hospital stronger and better than she had been for months. Upon returning to the nursing home, she immediately experienced anxiety, freezes, a great deal of writhing (not present in the hospital), agitation, weak voice, dementia and is once again not eating very well (all of these were present before going to the hospital). Her neurologist and psychiatrist are located out-of-town but we are working with them to regulate medications. The agitation and negativity is our greatest concern at the present; these were not issues for the two weeks she was in the hospital. She is once again resisting medications and help from the CNA's. Tonight we got a call from the facility requesting we come over to encourage her to take an Ativan. She was accusing her son of punching her (which did not happen) and occasionally when she is like this the calls we receive from her are accusing the staff of killing people and giving lethal injections (when in actuality they are dispensing insulin shots). She has called the police on a couple of occasions in the night to report what is going on at the facility. We do not know what to do; we visit her every afternoon so are alert and sensitive to her actions and behaviors. We are going to request another UA tomorrow even though she just had one a week ago that was clear. We want to be able to help her and advocate for her but are out of ideas. We feel truly helpless and are obviously exhausted. Where do we turn for help?