Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Search the Community

Showing results for tags 'constipation'.



More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Forum Information
    • Discussion Corner Announcements
    • PF Forum Member Service Center
    • Frequently Asked Questions - How Do I...???
  • Medical Questions
    • Ask The Doctor
    • Ask The Surgical Team
    • Ask about Nutrition
    • Ask the Pharmacist
    • Pregúntele al Médico
    • Talk To A Speech Clinician
  • Unmoderated Discussion
    • Open Forum
    • Newly Diagnosed
    • Caregivers Forum
    • Young Onset Forum
    • DBS Forum

Found 12 results

  1. Constipation

    I am a 72 year old male diagnosed about two years ago with early stage PD. I suffer mostly non-motor symptoms, the worst being constipation. It is accompanied by a bloated feeling, cramps and some flatulence. It is severe enough to be a quality of life issue. I've noticed that when this condition is at its worse my other PD symptoms seem to be magnified. While I am aware that constipation is common among PwPD, my question is, is this severity a common experience among other PD sufferers? I've done some research to discover that there may be a link with the presence of alpha-synuclein in the gut. I have also experienced some pain and numbness in my left foot that seems to be aggravated by this condition. I would like to rule out other medical conditions.
  2. My aunt is 66 years old. She has had Parkinson's since 2007 and has been taking medications regularly (gradually increasing) with physiotherapy and daily walks. Her Parkinsons was getting noticeable, especially in last couple of years but she had decent health, walked regularly and was reasonably mobile, involved in minor household work. Basically, she was doing ok about a month back, fell ill after heat wave (during which she fasted for 5 days, but stayed inside the house). Tremors, sleep, constipation/upset stomach were all a huge issue till few weeks back but all are much better. Can even walk a bit in the morning. But still very weak as the day goes by. But if only could lessen her weakness, she could be almost back to normal. I want to know why did her situation deteriorate (due to heat wave or change in medicine?? ) and how will she get overcome issues mentioned below. 1. As she wakes up in the morning, she is ok. As the day goes by, she continues to get weak and by afternoon/evening, can barely more on her own and has to be helped in movements of moving on the bed. Is this normal? 2. I think it has to do with some of the activities that she does during the day. She takes a lot of time and energy to urinate and clear bowels. It takes at least 15-30 minutes each time and she comes out exhausted. She keeps feeling as if some more is left due to which she continues. When she comes out she is exhausted. Why is this happening and what medicines or massage etc to manage this. 3. When she eats, she has difficulty breathing for some time, then she is ok. How to manage this or what medicine for this? 4. She has had fever for a few weeks now. Is it because of weakness or parkinsons? How to manage this? Medicines and illness history for last month A month back doctor asked her to take another tablet Stalevo in place of Sinemet but it didn't suit her. So she discontinued it after 2 days since tremors due to this had increased significantly. Then she reverted to Sinemet-plus 3 tablets every 8 hours on doctor's advice. While tremors improved, it increased weakness which is still persisting. She was already taking Requip 2mg, 3 times a day along with Jumex 5 mg 2 times daily. Doctor has now increased its does by o.5 mg twice over last 2 weeks. Since she has blood pressure, she was taking cotasme 40/12.5mg once a day. Taking Lexotanil for sleep at night.
  3. My aunt is 66 years old. She has had Parkinson's since 2007 and has been taking medications regularly (gradually increasing) with physiotherapy and daily walks. Her Parkinsons was getting noticeable, especially in last couple of years but she had decent health, walked regularly and was reasonably mobile, involved in minor household work. Basically, she was doing ok about a month back, fell ill after heat wave during which she had fasted for 5 days (though she remains within the house). Tremors, sleep, constipation/upset stomach were all a huge issue till few weeks back but all are much better. Can even walk a bit in the morning. But still very weak as the day goes by. But if only could lessen her weakness, she could be almost back to normal. I want to know what basically happened (was it the effects of heat wave or something else) and how to make her better on below issues? As she wakes up in the morning, she is ok. As the day goes by, she continues to get weak and by afternoon/evening, can barely more on her own and has to be helped in movements of moving on the bed. Is this normal? 1. I think it has to do with some of the activities that she does during the day. She takes a lot of time and energy to urinate and clear bowels. It takes at least 15-30 minutes each time and she comes out exhausted. She keeps feeling as if some more is left due to which she continues. When she comes out she is exhausted. Why is this happening and what medicines or massage etc to manage this. 2. When she eats, she has difficulty breathing for some time, then she is ok. How to manage this or what medicine for this? 3. She has had fever for a few weeks now. Is it because of weakness or parkinsons? How to manage this? 4. She has restless legs, due to which we have to put a lot of pillows and weight on her body to soothe her. Any way to manage or treat this? Medicines and illness history for last month A month back doctor asked her to take another tablet Stalevo in place of Sinemet but it didn't suit her. So she discontinued it after 2 days since tremors due to this had increased significantly. Then she reverted to Sinemet-plus 3 tablets every 8 hours on doctor's advice. While tremors improved, it increased weakness which is still persisting. She was already taking Requip 2mg, 3 times a day along with Jumex 5 mg 2 times daily. Doctor has now increased its does by 0.5 mg twice over last 2 weeks. Since she has blood pressure, she was taking cotasme 40/12.5mg once a day. Taking Lexotanil for sleep at night.
  4. My father was diagnosed with Parkinson's 2 years ago and had some symptoms, he thinks, for at least the year before. I wanted to share this in case it could help others and friends & family. Liovi has helped my father's constipation symptoms. He was given a small sample from an acquaintance of the company and the very next day after he drank Liovi, his constipation was relieved! He drinks the Liovi probiotic drink daily now and he continues to have much nicer DAILY bathroom trips! (Such an improvement over one per every 3 days or so.) Liovi has the B-30892 probiotic strain. I've heard Liovi can assist people similarly with IBS too. For my dad, this has truly made a difference every day in his life.
  5. Is Chia Seeds a safe alternative to meet the daily fiber intake to help with constipation that comes with Parkinson’s? It has lot more fiber compared to the fiber supplements in the market and lot cheaper. Wonder if it’s safe to take every day to meet daily fiber requirement. Also wanted to congratulate on your award for Champion of Change for Parkinson. Your contribution is invaluable for Parkinson patients and caregivers around the world. This forum has been a wealth of knowledge.
  6. This could serve as a breakfast or a hearty snack. One serving has 355 calories and 7 grams of fiber Five Minute, No-Bake Vegan Granola Bars Gena Hamshaw Food52 February 2015 This bar can be whatever you want it to be. Add different kinds of dried fruits, different nuts, or different nut butters. It's all good. Mix, wrap, and enjoy! - Gena Hamshaw YIELD: Serves 10-12 Ingredients2 1/2 cups rolled or quick oats 1 cup raw pumpkin seeds (pepitas) 1/2 cup raisins 2/3 cup peanut or almond butter 1/2 to 2/3 cups agave nectar or brown rice syrup (adjust based on how well things stick together) 1/8 teaspoon sea salt (adjust based on which nut butter you use) Read more: http://www.epicurious.com/recipes/food/views/five-minute-no-bake-vegan-granola-bars-51261730
  7. To achieve fiber goals and relieve constipation, aim for around 2 grams of fiber per 100 calories consumed. At 2000 calories total per day, that will amount to 40 grams fiber daily. This recipe provides 341 calories and 8 grams of fiber per serving. Wheatberry Salad with Radishes, Asparagus, Walnuts, and Spring Onions Gena Hamshaw Food52 February 2015 An easy grain salad that's a perfect mixture of hearty and bright. If you like, you can cook your wheatberries a day or two in advance of preparing the salad. - Gena Hamshaw Cook Reviews (1) YIELD: Serves 4 Ingredients1 cup hard spring wheat berries Sea salt 1 pound asparagus, trimmed and chopped into 1 1/2-inch pieces, tops and stems separated 5 white or red radishes, sliced very thinly into rounds 1/2 cup walnuts pieces 2 spring onions, white and green parts included, chopped 2 tablespoons sherry vinegar 5 tablespoons olive oil (plus more, as needed) 1 teaspoon lemon juice 1 teaspoon Dijon mustard Black pepper, to taste Read more: http://www.epicurious.com/recipes/food/views/wheatberry-salad-with-radishes-asparagus-walnuts-and-spring-onions-51262030
  8. How can a Parkinson's patient get back to normal GI functioning after undergoing a colonoscopy? For example, are certain foods or medications recommended for avoiding constipation? Would probiotics be helpful?
  9. Hi Kathrynne, I really appreciate your kindness and desire to help in regards to my mother who is diagnosed with atypical Parkinsons. 1- Last week, she was constipated for 3 or 4 days. My father gave her Miralax and it didn’t quite help- her stool was stuck. She went to emergency room and she got enema which cleaned out her bowel system. They x-rayed her belly and it looked fine. The doctor recommended giving my mother a teaspoon of benefiber each day. They also recommended bran muffins and organic oatmeal cereal. Do you think it’s a good idea to have this amount of fiber? How should we deal with future constipation issues? 2- My mother has delayed swallowing it takes a while. She coughs on big chunks of food, thin liquids, and with saliva build up. We are very concerned about this. She coughs at night in bed and we think it might be coughing on saliva build up. Do you have any advice about this? 3- My mother had incontinence- doesn’t realize when she has to go to bathroom. Is there anything that can be done about this? 4- What do you think of the vitamins and supplements my mother is taking? (see above) - Are there any additional vitamins/supplements she should take? - Should she change any of those vitamins/supplements? 5- Here are typical foods my mother is currently eating: Salmon, gefilte fish, mashed potatoes, Yogurt, apple sauce, oatmeal, soup Egg salad/swiss cheese sandwich (cut up in pieces) Coffee with three spoons of coffee ice cream (to thicken the drink to prevent coughing) Smoothie- 8 chunks honey dew, 8 chunk cantaloupe, 8 chunks pineapple, mango juice 8 ounces, 2 ice cubes, and 2 table spoons of apple sauce What do you think of these foods? What type of diet or specific foods would you recommend? 6- What other nutritional advice would you recommend? Thank you so much and I look forward to hearing from you!
  10. Hello. Well, here I am. Still up at 3AM knowing that there isn't anything I can do but learn to live with this disease. I was so angry and so frustrated that I flung myself to the floor and threw the biggest, loudest and most unsightly temper tantrum. Any two year old would have been proud. About 10 years ago I noticed that my memory was slipping. Little and (big) things like what day it was or renting the same DVD six times because I thought I hadn't ever viewed it before. Then about 5 years ago I started having trouble with walking. It felt like my feet were just too heavy and I struggled to just keep up a "normal" pace- pick em up and put em down. Then 2 years ago, my ring and pinkie finger on my right hand felt numb and cold on the outside but the bones in both fingers felt like frozen steel and hurt bad. Maybe I slept on that hand? Nope it didn't go away. But instead was joined by the ring finger on the left hand wagging and making tiny circles all of the time. 2yrs ago that's when I weighed 159 lbs and I went to my Dr. Passed on to Neurologist who had MRI done and then another MRI with contrast. Blood work. Tagged with Bilateral Tremor and treated with Klonopin -1x a day. Had check up 6 months later weighed 135 lbs with both hands and all fingers shaking and twitching Dr. upped Klonopin to 4x a day. I saw the Neurologist a few more times and was told as long as the Klonopin was maintaining it's "hold" they weren't prepared to say it was Parkinsons. Meanwhile, I needed to have surgery done by Urogyno. Hysterectomy, bladder mesh, etc. Surgeon would not operate until he got a letter of clearance from Neurologist. Surgeon said that if I have Parkinsons he would need to use different method to put me under. Neurologist gave him the clearance letter. Surgery was April 3, 2014. Surgery went fine. But I went into full on Parkinsons within 6 weeks. Stuttering, freezing, falling, fainting, tremors, cannot swallow REALLY SCAREY and I now weigh 91 pounds. I am on carbidopa-levodopa, amantadine, temazepam, clonazepam, Colace and my thyroid replacement med levothyroxine. I use a walker. My 80 year old mother gets my groceries, pays my bills, gives me a bath and dresses me, feeds me. I cannot drive, open a water bottle, button or zip clothing. My right arm is frozen against my upper body bent at the elbow as if to shake your hand. It really hurts all the time. My right foot is the one most likely to freeze and send me falling face first if I try to shuffle without the walker. And constipated OMG I hate it, hate it, hate it! All of it. Not just what is happening to my body but to lose control of every aspect of my life. And so darn fast. On April 3, 2014 I had bilateral hand tremors. Then was diagnosed with full blown Parkinson May 28, 2014. I don't know much about "rate scale" but mine is 4-5. Someone told my mother 5 is end stage. How can that be? I got a call from Behavioral health at 8:30 am. She wanted to do a phone assessment of my mental stability. First question was - are you depressed? I managed a stuttered FFFFFFuuuuuuu. That's when I had my all out, throw down, crying, twitching, pity party of a tantrum. Are you depressed? Seriously? Ok, if anyone reads this I want you to know that I am a fighter and not about to give up. I have an appt. with a Parkinsons Specialist the 8th of July and I know that I'm only on 2 Parkers meds. There are all kinds of treatments and combo meds to try. I know this. I want to thank NPF for providing this forum. I needed to vent tonight. Thank you so much.
  11. Acidophilus

    I was told to take acidophilus and eat yogurt while on doxycycline by a physician. I'm wondering if it increases constipation. I have been taking miralax every other day. I take sinemet 25/100 and sinemet SA during the day as well as selegiline twice a day. Thanks
  12. Funny but not

    I just saw this shirt and thought I would share it with my Parkie buddies, because I know most of us have the problem of constipation. We all need to find the lighter side of this disease or we're in trouble. http://tshirts.thlog.com/i-pooped-today-2/
×