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Found 20 results

  1. depression

    http://www.pdf.org/en/depression_pd Depression For people with Parkinson’s, depression is quite common and disabling—and it is the symptom most often overlooked. Up to 60 percent of people with Parkinson’s experience mild or moderate depressive symptoms. In fact, research suggests that the disease itself causes chemical changes in the brain that may lead to depression. Parkinson’s affects many parts of the brain that are important in controlling mood. One of these is the area that produces serotonin, a brain chemical implicated in depression. Another part of the brain important in regulating mood—the frontal lobe—is known to be under-active in Parkinson’s. Commonly prescribed antidepressants can help. In addition to medications, cognitive-behavioral therapy has also been shown to help some people with Parkinson’s . Other researchers have found that people with Parkinson’s who were depressed had more trouble with daily activities, and were more likely to begin medication for motor symptoms sooner than those without depressive symptoms. Depression decreased their quality of life and made their motor symptoms worse—but treating the depression, rather than the motor symptoms, improved both quality of life and movement. If you feel you are doing very poorly, yet your doctor finds only mild physical impairments during your exam, you may be depressed. Depression can range from feelings of sadness and discouragement to extreme hopelessness. These feelings generally are different from the grief and frustration you may feel as a result of your diagnosis. Tell your doctor if you are having these symptoms.
  2. http://mailchi.mp/davisphinneyfoundation/new-blog-post-making-your-voice-heard-in-washington-859517?e=36e4c9ebdf
  3. Depression

    Hello, I am a 58 year old male, diagnosed with PD 2 years ago. Initially my symptoms were minor and I was able to perform daily tasks with virtually no problems. Recently, my symptoms in my left arm have worsened. I am having challenges with my increased dosage of medication making me feel nauseated. Yet, without my medication I cannot perform simple tasks. So I feel trapped and hopeless at this time. Prior to my PD diagnosis I was extremely active- I enjoyed running, skiing, tennis, cycling etc and I held an executive position. Now, I am unable to perform my executive job duties because I cannot get my symptoms under control though I would very much like to work. Depression Feeling useless because I can no longer work, play tennis with my son, etc. Constant anxiety about how quickly the PD will progress Decreased sex drive Ashamed to tell people about my condition so I avoid going out I have also recently begun to withdraw from my family and closest friends Current Medication Carbidopa/Levodopa 25/100: 2 pills, 3 times per day (*Note: I take 1 pill 3 times per day to avoid severe nausea) Praipexole Dihydro: .25 mg, 1 pill 3 times per day Questions I currently run about 20-25 miles per week and I am outdoors regularly working on rental properties I own Any non-prescription medications I can take to help combat the depression? Any diet that could help? Thank you for your support!
  4. Recently my Dr mentioned a new group they were thinking of forming to deal with anxiety, depression, etc, based on a “new” therapy that was proving effective with a low level of recidivism. It’s called Mindfulness, based on Taoism philosophic principles. She thought with my taking tai chi and my interest in psychology etc that I might be helpful in the group. I told her that I already use one of the techniques – observing my flow of thoughts and feelings without identifying with them. I consider my life-long interest in psychology and health to be helpful in living with PD, as it’s provides me insight into both – and first-hand experience of the relation between mind and body. After thinking about Mindfulness relating to PD and sickness in general I thought it could be very helpful - but I can only see it being helpful to people who believe that there is more to life than meets the eye -- whether it be religion, philosophy, cosmic forces or whatever. For without this belief I can’t see how or why anyone would derive satisfactory meaning (or reason) from observing their negative and painful experience of anything..... Since my Dr mentioned it I have noticed more articles on mindfulness...
  5. anxiety and depression

    First, I cannot thank you enough for this forum. It has proven most helpful. My wife was diagnosed with PD in November 2014 but she had symptoms like reduced arm swing possibly as early as 2012.I did not know know what PD was until that November. My wife passed away a few months ago. As I patch together the "whys" of her death I keep coming back to one thing. It was only after her passing that I found that she had 6 of the 8 warning signs of depression about two weeks before her passing.Since her passing I have not kept up with what has been going on with PD research with the exception of two things. A Canadian doctor with 1,500 PD patients in his program was promoting the need for depression to be assessed at the very beginning of a patients treatment. There was also an announcement, I think, by Michael J Fox Foundation to put more emphasis on anxiety and depression research as little as a month ago. My point is this. For my wife, depression and anxiety were the worst of the PD symptoms. Tremor was minor and dyskinesia was but two hours a day. I think it extremely important to make this problem known at this critical first meeting. I think a mental health care professional should be an integral part of any PD team. Lastly, although there my be some ethical prohibition to this effort, I would suggest a separate appointment be arranged for each caregiver. The appointment should be tailored to what and how to make observations regarding the love ones mental condition. When I raised the issue of high anxiety with the intern who was treating her condition, his response was 50 to 70 percent of PD patients have anxiety. If I had known about the depression, I might not be posting this topic today.
  6. My mom is 74 years old. She was diagnosed with Parkinson's 9 years ago. She was taking 3 different medications Sinemet, Neupro patch, and Amantadine. She was having horrible edema in her feet and ankles. The Parkinson's symptoms weren't bad at this point. Because of the swelling the doctor decided to take her off of the Amantadine since that can cause swelling. When she eliminated that medication the swelling didn't go down but the muscle spasms in her face, causing her to stutter went away, which was good. She is still off the Amantadine. So the doctor decided to take her off the Neupro patch. That did it.....all the swelling is gone. But the bad news, all those Parkinson's symptoms that weren't so bad got a whole lot worse. For starters, she is a lot weaker and moves a lot slower. She is down to one medication, she only takes a half a sinemet pill 5 times daily. Anything more than that makes her really nauseous. She is very little anyway 5'2 and 90 pounds and is obviously very sensitive to medications. Ever since going down to one medication, she has terrible anxiety, some depression and her blood pressure either gets too high or too low. She is taking blood pressure medicine to treat that symptom. I'm just wondering if all this anxiety, depression and blood pressure problems have to do with "off" times because her sinemet isn't lasting long enough. She is reluctant to go on another medication because of the side effects like nausea and edema. Just wondering if anyone else has had these problems and what medications work best for them.
  7. Broken Heart

    Hello Tonight I have cried until I have nothing left. I have been crying at the change in my husband, the man I knew has disappeared into this PD black hole. I can't blame it on meds this time, it is the disease. Somewhere locked up inside he resides, but I haven't seen him in weeks, oh he is here with me, I can see him, but that is all. Friends, what a joke they are, always giving advice, but never offering to help, and then one by one they disappear, no more emails, or letters, or phone calls. Their reasons.......I just must be to busy to want to talk. Fine then I say, just go away! Truth is, they don't want to hang around with someone who is devoted to their spouse, just put him away they say, get on with your life. Then I have to hold my tongue, when I would like to just tell them what is really on my mind, what I really think of them.. I have decided that people are cruel, truly cruel, no one gets it, not because they can't, but because that don't want to. Lazy and worthless! I cry for a life I have lost, a life my husband has lost, a life we have lost together. Caregivers get it, I know that, but we are all so busy, trying to work, trying to do it all, is it really so much to ask of "normal" people to just spend a little bit of time with a caregiver, just to be there. Then I think maybe something is wrong with me, that I am not a nice person to be around, that something is wrong with me. Sad part is I think maybe there is now, maybe I am the one that no one wants to be around, maybe I have just lost myself in the role, I don't think so, but who am I to judge. I do know that my husband is part of me, and I a part of him, we are one, and my heart continues to break. Don't tell me that tomorrow will be a better day, there have not been better days in a long time. I despise this disease, and I despise even more that it continues to progress, and nothing I can do or say will slow it down. Tomorrow is another day, but nothing will be different, not for my heart anyway. Sure nurse will come, people whom I have to pay will come to help, but a friend.............not a one. I'm not sure a broken heart can be fixed. Sorry for this pitiful rant! It really isn't who I am.
  8. Finding meaning

    After an ER scare in Southern Idaho I'm now living at home with my parents in Kennewick, WA. I left my job to come home and am not really working again yet. I'm dealing with a lot of anxiety and depression after the recent confirmation that I do have PD. I have some appointments to address my depression this week, but I lack motivation day to day because I feel like I have no control over my future. The life I wanted is clearly not going to happen. So my question here is what did you guys do to find meaning and come to terms with your new life with PD?
  9. Hello everyone, This is my first post on here. I don't officially have a diagnosis of PD yet, but my neurologist basically said it is 50/50 whether I have PD or Dopa-Responsive Dystonia. The more and more I think about it I feel it is PD. I'm 22 and I just got my first job out of college as a reporter in Southern Idaho. I love my work, but between my symptoms, which seem to be slowly worsening, and knowing absolutley no one here I am very depressed. I don't know what to do. I'm trying to find a doctor down here, and I have a neurological appointment set for April, but everyday I feel like I'm sinking. I have no friends here. I like my coworkers, but they're all much older than me. I was living with my girlfriend, who is amazingly supportive. She was working and things were good, but then she got hit really hard with M.S. like symptoms that have made it difficult for her to function. Now she's in Seattle to see a doctor, and I worry that she isn't going to be able to come back. I feel like I have no real friends anymore, certainly none that understand what I'm going through. I love to get out and take photos, but its cold and the roads are treacherous so I am unable to really go anywhere. I'm scared to go out alone becuase I could easily become stranded on the roads or anywhere else if I mistime my dose. The last couple days I've been incredibly depressed. The only thing I get any enjoyment out of my job, and I worry that sooner or later I won't e able to keep up, especially when I screw up my dosage, which has been more frequent lately. It seems like Sinemet is starting to lose its effectiveness. I'm sick of being frozen when I mistime my dose. I'm sick of almost always being uncomfortable. I'm tired of being alone. What I hate most of all about this whole situation is the fact that it's taken my dreams from me. I no longer feel that my career aspirations are possible for me. There is no way I can devote the time or energy needed to get where I want to go. I want to start a photography business but how realistic is that really? I feel uncomfortable moving too far from my parents because I feel that I'll ultimately have to move in with them. Thankfully they love and support me, but obviously I'm not thrilled about this. I'm scared of what will happen when they get older. What if they fall ill? What happens when they die? I'm terrified of ending up on disability because I feel that my benefits would be the first thing on the chopping block when the government tries to balance the budget. I apologize for the length of this post, and for the abject hopelessness of it. I'm sure that many of you felt this way when you were first diagnosed. How did you get through it? What keeps you going in the face of this terrible disease? How do you cope with the isolation and lonliness of living with it? And how do you cope with the horrible wearing off periods?
  10. I was 41 when I developed a slight tremor in my left baby finger. I was already loosing dopamine up to 10 years earlier. I managed to work full time, take care of my husband and twin sons, grow a large vegetable garden, hike the trails in the Smokey mountains on weekends, and have lots of family visit and cook for large parties. For at least 10 years I did not feel much different. But it started to become difficult every year. When my husband of 35 years died of sudden heart attack, I was so lonely. I cried in my pillow for 6 months and went nowhere. To add to this , my twin sons now 34, who live close and I see almost everyday, will not talk to me anymore when there Dad died. We were always so close, I am devastated by this. My 41 yr old brother John died 4 months after my husband. My Mom dies 2 months after her son John died. All were untimely deaths. I was close to all and spoke or saw my Mom daily. She was my 911 Mom. It has been almost 3 years now, my sons wont talk, despite all the effort I give. MY Parkinson's has spirerolled out of control. I have not seen a neurologist in 2 years. I take 24 tabs a day of 25/100 carb/levo and 8 200mg of entacapone daily. It last only 2 hours and I tremor so violently, my breathing becomes irregular, and my arms are flailing. I am rigid and stiff and in pain. I try to wait out 2 more hours, but can barely make 3. And then it takes 45 minutes for meds to start working. I am so relieved when I get some dopamine in the brain. I do not take any other medication. I am strong, try to stay busy, and not feel sorry for self. But if there was a door I could open and be on he other side I would. It is just my time, I am ready, a fact of life. My grandmother had PD, but died in surgery. Her son David, my uncle had PD and died from complications of PD. I worked in the tobacco fields when I was 14, They would spray over us in the fields and I had nicotine covering my arms all day. I used seven dust and grew up in a factory town, where the water glowed and oozed from chemical from factories. I just need to hear your stories now, please share with all. It does help, because this disease is unexplainable to the normal person. Thank you for reading, Chris Ledford
  11. Azilect and Depression

    My husband is recently diagnosed with Parkinson's and is on Azilect. He is also taking lamatrigine and Xanax XR. He suffers from depression. What antidepressants can he take with Azilect and his other medications?
  12. Suicide

    Understanding Suicide and Parkinson's Disease RoyProp 19 hours ago - Aug 20 2014 The Parkinson’s Disease Foundation (PDF), has been alerted to questions surrounding the impact of medications used to treat Parkinson's disease (PD) on risk of suicide. Such concerns have been raised on social media in reaction to the news that Robin Williams, well known actor and comedian, was living with Parkinson’s disease. This has, in turn, raised many concerns amongst people living with PD and their families. PDF would like to address your concerns with the facts below. We also encourage community members with questions about suicide and PD to contact our HelpLine at (800) 457-6676 or info@pdf.org. Research, although limited, has consistently shown that suicide rates for people with Parkinson’s disease are the same if not significantly lower (up to 10 times lower, according to a study found here) than the rates for the general population. A person newly diagnosed with Parkinson’s disease is typically prescribed medication that falls under one of three main classes: levodopa (to help supplement the dopamine that is lost), MAO-B inhibitors (which keep dopamine from breaking down), or dopamine agonists (drugs that mimic the action of dopamine). All three classes of medications have a very safe profile with limited side effects, with no evidence linking them to suicide risk. Dopamine agonists infrequently can lead to the development of an impulse control disorder, e.g., compulsive shopping, gambling, eating or sexual behavior. However, these side effects are well documented, are pleasure seeking, and suicide is not one of them. In fact, dopamine agonists have a documented antidepressant effect. If people with PD or loved ones notice the signs of depression (listed below), please contact a health care professional. "Although a Parkinson’s diagnosis is full of doom and gloom, it is, fortunately, more gloom than doom,” added James Beck, Ph.D., PDF’s Vice President, Scientific Affairs. “People are more likely to face depression than to commit suicide. Awareness of depression and Parkinson’s, combined with prompt treatment can help go a long way to alleviate that gloom.” 10 Signs of Depression in Parkinson’s 1.Excessive worrying 2.Persistent sadness 3.Crying 4.Loss of interest in usual activities and hobbies 5.Increased fatigue and lack of energy 6.Feelings of guilt 7.Loss of motivation 8.Complaints of aches and pains 9.Feelings of being a burden to loved ones 10.Ruminations about disability, death and dying www.pdf.org/en/media_pr/rel...
  13. Talk to any group of people with neurological symptoms and you'll hear the same story repeated over and over again. A person with no history of mental illness goes to see the doctor with a laundry list of physical neurological symptoms. The doctor doesn't know what the neurological symptoms mean, so he tells the patient that he is depressed and he prescribes anti-depression medication. Did the doctor diagnose depression in the patient or did he CAUSE depression in the patient by convincing him that he/she is depressed and hooking them on anti-depression medication??? By the way, I didn't finish the end of the story. Only years later does the true cause of the physical symptoms become apparent and the patient is finally diagnosed with whatever neurological disease that they had all the time. Of course, by this time, their disease is significantly advanced and they may have missed out on years of treatment - all because of that initial mis-diagnosis.
  14. It's hard to not tell people the truth when they ask "how are you doing". What's that line from " A few good men...Truth you can't handle the truth". So it's come to me that we have to do a little dance, sometimes give them a little snippet of what's really going on to just outright lying and tell them everything is fine. Because who wants to be "Debbie Downer" all the time. Now I'm not saying that I don't have a wonderful circle of friends that I know would listen whenever I needed them, but I find myself on bad days going thru my Rolodex in my mind thinking who can handle this little tidbit and help me get thru this bad experience. I also have really stopped talking about my problems with my friends because I don't want them to start avoiding me or not answering my calls because its human nature to avoid problems or negativity. Does anyone else have these emotions?
  15. I have tried twice in the last month to go up on dosage of generic Effexor ER, from 37.5 mg to 75 mg, without success. Both times it seemed within 4 days I was worse off. As in, more depressed, more hopeless, crying, and fearful. I know I need more med as far as depression goes, so what next?
  16. Collection of symptoms Dad

    I am new here. And looking to find out if anyone else has friends/family that have been diagnosed prior to motor symptoms. My dad can't smell anything - and hasn't been able to for the last two years. He is losing weight, has REM disorder (which supplies our family with hilarious stories of him dreaming he is wrestling with his brothers only to be found on the floor wrestling the dog or waking up my mom in a panic telling her the floor is lava). His facial expression has changed, he blinks less often - which makes it look like he is staring while his face is super lax - kind of scary. He has bouts of crippling anxiety - so much so that he has begun to avoid going out though on the side he is a drummer in a band and loves to socialize. He watches It's a Wonderful Life every year, but the last two years he has cried through the whole thing. But he's not 'depressed' in the technical sense - it is more anxiety and the wrong emotional or too much or too little emotional output. His interest in food has waned - he used to finish all the food on the table - he would have all the serving dishes in front of him by the end of dinner - now he finishes what is on his plate most of the time. He can't keep weight on. He says he feels like he can't swallow, but he's been to the doctor who sent him to a neurologist who only diagnosed the REM disorder, but ignored the other issues. He's definitely getting worse and it is affecting his relationship with my mom and his ability to handle the world. Has anyone here had a family or friend diagnosed prior to tremors or other motor symptoms of this disease? Does anyone have advice for talking with a neurologist to get them to 'rule out' Parkinson's? We would love to see him get this anxiety under control, but conventional psychotherapy and medication do not work. Thank you all and I wish that you have a wonderful week.
  17. It's been a while since I have been on the forums, I've been busy trying to work through some job and financial issues but seem to have only made them worse. I decided that the best way for me to take care of my family and shield them from the financial hardships of my ending up on disability at some point in the near future was to take a positon as a travel nurse. SO, l packed up my truck, said goodbye to my wife and kids, and left Tennessee for Washington state for a 13-week assignment. My plan was to sign on for another 13 weeks after this assignment, and then go to California for another 6 months before driving back home with several bills paid off and some extra cash in savings. My wife was to fly out every 3 months and spend several days to a week with me (kids are grown and out on their own). HOWEVER, what I wasn't expecting was to get out here and in within 48 hours of moving into my apartment breaking down crying in a severe episode of depression and anxiety that refused to go away no matter how much I tried to distract myself and "think positive." I called my wife who, trying to be strong and encouraging, gave me a pep talk and reminded me of the fact that if I came home I would have no job and we would be in severe financial trouble. I managed to get through that day, but I'm still struggling with the depression which goes from a mild undercurrent to severe episodes from one day to the next. I feel....I guess, less "manly" because I can't seem to get a grip and defeat this. I have dealt with depression before, but nothing like this. My wife doesn't understand it at all and says that she could come out here and do this with no problem - I just have to stay busy to keep my mind off things. The problem is that we are short of cash so I can't spend money on hobbies and such, I'm working nights so I sleep all day and wake up at night when everything is closing (i.e. nothing to do),and the sun never seems to shine in WA (IF I were awake to even see it). The stress on me is getting to the point where I'm experiencing constant neck stiffness with resultant headaches, stomach aches, and diarrhea. I'm taking 20 mg of citalopram (Celexa) daily and 0.5 mg of clonazepam (Klonopin) every other day for sleep (alternating with Lunesta). Has anyone else experienced this? How are you coping with it? Any tips for getting through the next 11-1/2 weeks until I can go home? Thanks, Kevin
  18. Hello, Last month I had a moment in which time stopped. It was during my class in which we were learning about the neurotransmitter dopamine. The power point flashed with a description of symptoms: loss of sense of smell, anxiety, depression, trouble swallowing or a feeling of difficulty swallowing, REM disorder, personality change, loss of facial expression... All of which completely describe my dad's issues which have gotten significantly worse over the last two years. He's already been to a neurologist who only diagnosed him with REM disorder, ignoring all the other symptoms he has been having. They live in Buffalo, NY - and I think he should see another neurologist, but I don't know where to start. I've been searching online but all I see is doctors who are working with motor symptoms - but it seems that even though the literature states that NMS are often present years before motor symptoms doctors are not diagnosing until motor symptoms are clear and present. The shear amount of anxiety he is having is starting to wear on the entire family and the personality changes and inability to concentrate are exhausting. The REM disorder is getting worse and becoming a danger - which he then feels even worse about though he can't remember what he did in his sleep. We really want him to get some sort of relief to the point where he can enjoy life more than he does now - he just turned 53 today. My question is how do I find a doctor who can assess non-motor symptoms and start him on some kind of treatment to alleviate some of the issues? What do we look for in a doctor? How do we talk to the doctor about our concerns?
  19. Hi everyone. My dad is 82 and has Parkinson's along with Orthostatic Hypotension. My mother, siblings and I recently decided that my mom could no longer safely care for him in their apartment. They live in a retirement community with a Health Center so he is living there (down the hall from their apartment). I am writing for advise on how to help him deal with this change. He is very angry will all of us. This anger has also caused a roller coaster of depression for him. Some days, his memory is so poor he is asking my mom if he is coming home on Saturday. As my mom recently had a fall herself (with a 6wk recovery), I am trying to make sure all their affairs are in order in case my mom were to 'pass away' before my dad (he was the financial guy). This recent financial step (my idea) has not made my dad very happy with me. He is feeling as if we are ganging up on him. I would love to hear from anyone that could offer some advise on how to handle all this. The ups and downs have been very hard to handle recently. Thanks.
  20. My parent's are in their 70's - My father was diagnosed about 8 months ago and extremely is depressed. He will not shower, he will not leave the house. He sees one doctor - but he will not get a second oppinion. I am the only child, and I would like him to specifically ee this new doctor, because he deals with the symptoms surrounding Parkinson's. He will NOT go. What can I do? Please help me help him. Thank you.
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