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Hello, I am studying design and technology in year 11 at Catherine McAuley High School and am currently designing a product to enable those who are diagnosed with Parkinson's Disease to live a more independent life. My main focus is on designing a tool which makes the everyday task of hanging out the laundry much easier. The following questions are part of my research in order for the design to suit personal needs and be successful in improving the lives of those who suffer from Parkinson's. Any questions that you don't feel comfortable completing can be left blank. Click here to complete the survey. Thank you for helping in the process of allowing those diagnosed with Parkinson's to become more independent.
Hello, I am studying design and technology in year 11 at Catherine McAuley High School and am currently designing a product to enable those who are diagnosed with Parkinson's Disease to live a more independent life. My main focus is on designing a tool which makes the everyday task of hanging out the laundry much easier. The following questions are part of my research in order for the design to suit personal needs and be successful in improving the lives of those who suffer from Parkinson's. Any questions that you don't feel comfortable completing can be left blank. https://www.surveymonkey.com/r/X8BHVC5 If there are any problems or queries feel free to message me x
Dear Caregivers Forum, I've been lurking for a few weeks now, trying to find answers to my questions and seeing what a kind and helpful group this is. I am so grateful to have found it. My mother is the PWP, and I think is moving from stage 2 to 3. I'm an almost 50yo daughter with 3 kids who are still young. She lives about 10 minutes away in an independent living apartment building. I think she's losing her ability to live independently and I'm trying to figure out what to do next. She recently gave up driving, and I handle her bills and appointments now because she's often confused about all of that. I fill her pill boxes but she's starting to take things at the wrong time, skip doses, think she's already taken them or that she hasn't yet taken them and why is the box empty?, etc. All of a sudden in the last few days she's having bouts of not being able to walk. The worst thing is panic. Any little thing can make her panic, and when she does her legs get very weak and she can feel debilitated for hours or even days afterwards depending on how bad it is. There are few options for help around here for people who are in a low middle income range. She doesn't have enough money to move into one of those high end places where you can gradually increase assistance. I can hardly stand to walk into the less expensive places I've seen around here. They look and smell awful and they get bad reviews. There's an in home replacement for skilled nursing called Pace, which in some ways would be wonderful. They send someone in the morning who helps the PWP get dressed, have breakfast, and so on, and the same thing at evening, but during the day they take you to an adult day care. Mom is still way too sharp to be happy in that. She's still reading the New Yorker, going to lifelong learning courses, etc. And the time when she really needs some care is at night and they don't provide that. We could hire some one to stay with her at night, but that will quickly use up all her savings. At that point there will be no options except a Medicaid waiver or nursing home. I've thought about her moving in with us, but we have a small house. I don't know where she would sleep. My oldest son is autistic, so putting the boys together in a room would be hell for everyone. Plus, I'm hesitant to have her live with us anyway. I'm trying to hang on to the time I have with the kids now, and I don't think I would have any if she lived here. For instance, last night a friend stayed with her because she was feeling so awful, but even though she had someone with her, she called me over and over with questions about meds, updates about how she felt, etc. It feels like a level of executive functioning is gone and I'm her security blanket. She wants to have me with her constantly. Anytime I'm in her apartment she talks without stopping the whole time I'm there. It's hard to just clean the kitchen or take out the garbage because I'm going back and forth to talk with her every few minutes. If you have any advice about how to handle this transition I would be grateful. I love my mom and I want her to feel safe and well cared for, but I don't know how to provide that and also take care of my kids. R