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Found 3 results

  1. Wrkjnky13

    Dr Glickman

    Has anyone used Dr Glickman in Las Vegas Nevada? Due to the size/ shape of my head , I need a frameless procedure. Dr Glickman uses the nexframe design. Looking for some background information on him and the nexframe design. Due to a failed procedure and a lack of options he is the only option besides traveling. Im trying to avoid another failed procedure Go figure Dr fails to measure my head and procedure gets cancelled and my insurance gets bulled 13k. In which I have to pay the deductible and coinsurance. And pay for sn additional procedure Any help is appreciated Don Las Vegas Nevada
  2. Last October I posted about a problem I had with severe freezing of gait. It started with pain in my lower back from a pinched nerve. Allowing it to go on for months was a mistake. Eventually "traction" at the local hospital physical therapy clinic has stopped the pain and I maintain relief with an inversion table. But...once the freezing habit was embedded in my mind I couldn't let go of it. Tight, narrow places to walk were the most difficult. DBS in 2011 and again in early 2014 (second side) have blessed me with incredible results. 25 down to 5 meds per day, for example. When I turn one of the stimulators off, now in less than 1 minute I can't move the fingers on one hand at all. So, I went to my programmer at Cleveland Clinic, and then to the University of Toledo Medical Center to see if a programming change would help with the freezing. After 3 different sessions I was beginning to believe that DBS simply couldn't help with a freezing problem. In fact, I read online where in some cases DBS could sooner help induce or support freezing. At that point someone on this forum (PatriotM) helped greatly by mentioning David Zid (author of the Delay the Disease program). A one hour session with David in Columbus worked miracles for me...for 2-3 days. Then the effectiveness faded. I was convinced that David's therapy worked, but I needed more of it, for a longer time period. (Signed up for LSVT, or the BIG therapy. Just finishing my first week, I'm confident this is going to take care of the "embedded memory" problem.) Then, online I read an article that was titled "Adjusting Deep Brain Stimulation Can Ease Swallowing and Freezing of Gait in Parkinson’s". My stimulators had been set a 130 herz (like the article said) since the beginning. I sent the article to my programmer at Cleveland and made an appointment. A couple of days ago she changed the herz settings on both stimulators from 130 to 100. The results are SIMPLY AMAZING. The freezing tendency was reduced tremendously instantly. Due to me embedding the habit for so long the LSVT is still necessary, especially at night when I'm off meds for 12 hours, 6 to 6. But the other thing that is blowing my mind is I feel more "settled". It's like there's a subtil stimulation that was happening inside of me that has settled down. It's fascinating how you read someone else's post, and can't at all relate...yet. For example, early in PD (diagnosed 13 years ago now) when someone would talk about "on/off" I had no idea what they meant. Oh boy, did I ever come to understand later! "Freezing" was also something I couldn't imagine. Now I do. The PD journey continues. Thanks to all of you who's posts have been so valuable to me as we all continue to learn together and do the best we can with what we've been given. Obviously, we are all very unique. I wanted to post this in the rare case that there's someone else out there dealing with the same challenge that this may also help. And, thanks for people in the medical field who are not only knowledgeable, but also humble enough to partner with us. My programmer at Cleveland could have resented my input if she had a big ego. She said she was considering going there (lower herz settings) anyway, and I believe her.
  3. Last October I posted about a problem I had with severe freezing of gait. It started with pain in my lower back from a pinched nerve. Allowing it to go on for months was a mistake. Eventually "traction" at the local hospital physical therapy clinic has stopped the pain and I maintain relief with an inversion table. But...once the freezing habit was embedded in my mind I couldn't let go of it. Tight, narrow places to walk were the most difficult. DBS in 2011 and again in early 2014 (second side) have blessed me with incredible results. 25 down to 5 meds per day, for example. When I turn one of the stimulators off, now in less than 1 minute I can't move the fingers on one hand at all. So, I went to my programmer at Cleveland Clinic, and then to the University of Toledo Medical Center to see if a programming change would help with the freezing. After 3 different sessions I was beginning to believe that DBS simply couldn't help with a freezing problem. In fact, I read online where in some cases DBS could sooner help induce or support freezing. At that point someone on this forum (PatriotM) helped greatly by mentioning David Zid (author of the Delay the Disease program). A one hour session with David in Columbus worked miracles for me...for 2-3 days. Then the effectiveness faded. I was convinced that David's therapy worked, but I needed more of it, for a longer time period. (Signed up for LSVT, or the BIG therapy. Just finishing my first week, I'm confident this is going to take care of the "embedded memory" problem.) Then, online I read an article that was titled "Adjusting Deep Brain Stimulation Can Ease Swallowing and Freezing of Gait in Parkinson’s". My stimulators had been set a 130 herz (like the article said) since the beginning. I sent the article to my programmer at Cleveland and made an appointment. A couple of days ago she changed the herz settings on both stimulators from 130 to 100. The results are SIMPLY AMAZING.
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