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I am planning a DBS in January and I am scheduled with my surgeon, so Medtronic gave me a call to meet with me and my wife. I wasn't sure what to expect, but me and my wife got a lot out of the casual meeting at Starbucks. The man was very thorough and was able to go all the technical parts of the surgery. I am glad everything was upfront and very honest. It seemed more simple when the neurosurgeon explained it, but he was more interested in what I needed, now I know why. I didn't know that the surgeon had a choice of GPI or STN based on what works best for your symptoms, but GPI is preferred. STN has a potential side effect that agonists have and that is concerning since I don't deal with agonists well. I am wondering if I can find out beforehand what he wants to do based on my history and symptoms. They want to put a non-rechargeable battery in and I think that's good news since my SCS is already implanted with a rechargeable and taking rechargers on trips or remembering to charge every week can be a hassle after a while (but still worth it). I also heard that Medtronic is about to release a major update to their DBS controllers that give them more options/abilities for treatment. This is in the next 1-2 years. So, when I get a battery replaced in 3-5 years, I will be getting upgraded; which is nice. Has anyone followed this Medtronic upgrade or know much about it?
Hello everyone, Lee Meddin here, diagnosed in April 2010. I have created a news aggregate website at www.parkinsonsnews.com; I personally comb the internet for timely and relevant news and blog entries that would be of interest to the general Parkinson's community, mostly the latest research (but also including new therapies, people profiles, innovations, etc.). Lately there has been some VERY promising research for PWPs so visit www.parkinsonsnews.com and join in the optimism. Email me at firstname.lastname@example.org to let me know what you think of the site, make suggestions, and forward news items that you find. Thank you all--keep the faith. Lee