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Found 3 results

  1. Medication/Food/Symptom tracker

    I've been looking for something that will help me track how food and medications are affecting me. I really want to know specifically how different foods affect my symptoms, and I also need to be better prepared for when I have my MDS appointments. I appreciated Mark Comes medication schedule in the Pharmacy forum, but it doesn't take into account what I'm eating and how I'm feeling. After months of scouring, I decided to take his and expound on it. So far, it's been nice to print several out each day and have them in different parts of the house so I don't have to carry it around with me. I'd like to share it here in case anyone else might find it useful but I'm not sure how to do that. Any techies out there willing to instruct me? I created mine in Google Sheets but I've also got it saved as an Excel file.
  2. Dear Doctor, First off, thank you so much for being so available to all of us who are going through this together. Parkinson's is so tough, and I never dreamt our family would be in this position. I want to do everything I can to help my dad and make it easier on my mom to care for him. My dad has Parkinsons, is in about his 12th year or so of the disease, maybe longer. My family is trying to figure out his dosing schedule, as he is no longer having any really 'good on times.' Any input would be tremendously helpful and appreciated. I know a lot of it is trial and error. I am reading everything I can on Parkinson's and just ordered your book as well. A typical day: Morning is typically his best time, from 8am to about 11am. During this time he will do about 10 minutes on a recumbent bike (he just starting doing this the last few weeks, before that, exercise was minimal). He says he feel just okay, but at least he is pretty alert. After he takes his 10:30 dose of pills he starts to go down hill and falls asleep. He sleeps on and off throughout the day in between his doses. He also shakes. I have noticed that sometimes before his next dose he seems funky and out of it (I'm guessing the dopamine has worn off). Also, he is freezing a lot now and it takes a good 10 minutes for him to get moving again. My dad has an Essential Tremor in addition to Parkinson's. He has had this since his early teens, he is now 70. My mom tries her best to space out the food, especially if protein is involved. She also tries to keep a dosing journal to write down side effects but is getting confused as to whether the tremor is the essential tremor, an 'off time' tremor, or too much dopamine tremor. When he goes to bed, he usually will wake up continually, it's rare for him to sleep. There was a time for years where his dr. prescribed 4 pills, 3 times a day. We have changed that within the last 6 months because obviously that was not working at all. His current pill schedule: -Carbidopa 25 mg-levodopa 100 mg tablet. Currently, my dad is taking: 1 pill at 7am 1 pill at 10:30am 1 1/2 pills at 1:30pm 2 pills at 4:30pm 2 pills at 7:30pm 1 pill at 10:00pm 1 extended release at 11pm right before bed When he wakes up in the night, my mom gives him 1 levodopa usually around 4am. -For his Essential Tremor he takes Primidone 50mg a day and Propranolol 320mg a day extended release. Recently, we are trying to cut down the Propranolol to 240mg a day, he has been doing this now about 2 weeks, but he still seems really sleepy. -For a mild A-fib, he takes Warfarin 5mg (1 1/2 on M,W,F. 1 on S, S, T, Thurs.) -The rest of these pills I'm assuming are blood pressure from what I can figure out triamterene 37.5 mg-hydrochlorothiazide 25 mg tablet, 1 tablet daily K-Tab 10 mEq tablet, extended release, 1 tablet daily Losartan 100 mg tablet, 1 tablet daily Amlodipine 5 mg tablet, 1 tablet daily Vitamin D2 5,000, 1 tablet daily I would sincerely appreciate any advice, suggestions or tips on this schedule. It's just so sad to watch the progression. I want to leave no stone unturned and try everything possible to help. Thank you so very much, Amy
  3. Hi Everyone, I am new to this forum, though have been referencing it for years. My dad has Parkinsons, is in about his 12th year or so of the disease, maybe longer. I am so sorry to everyone out there who is so frustrated and disabled by this disease. It is so hard. My family is trying to figure out his dosing schedule. Any input would be tremendously helpful and appreciated. I know a lot of it is trial and error. I have always wondered if his other pills make the Parkinson's medicine less effective. Additionally, he wakes CONTINUALLY in the night shaking violently. This has become a terrible problem as he wakes up every hour. My dad has an Essential Tremor in addition to Parkinson's. He has had this since his early teens, he is now 70. His current pill schedule: -Carbidopa 25 mg-levodopa 100 mg tablet. Currently, my mom is trying: 1 pill at 7am 1 pill at 10:30am 1 1/2 pills at 1:30pm 2 pills at 4:30pm 2 pills at 7:30pm 1 pill at 10:00pm 1 extended release at 11pm right before bed -For his Essential Tremor he takes Primidone 50mg a day and Propranolol 320mg a day extended release. -For a mild A-fib, he takes Warfarin 5mg (1 1/2 on M,W,F. 1 on S, S, T, Thurs.) -The rest of these pills I'm assuming are blood pressure from what I can figure out triamterene 37.5 mg-hydrochlorothiazide 25 mg tablet, 1 tablet daily K-Tab 10 mEq tablet, extended release, 1 tablet daily Losartan 100 mg tablet, 1 tablet daily Amlodipine 5 mg tablet, 1 tablet daily Vitamin D2 5,000, 1 tablet daily My dad does do a recumbent for 5-10 minutes a day and knows to try not to eat protein with his pills. I would sincerely appreciate any advice, suggestions or tips on this schedule. Thank you so very much, Amy
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