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I've been looking for something that will help me track how food and medications are affecting me. I really want to know specifically how different foods affect my symptoms, and I also need to be better prepared for when I have my MDS appointments. I appreciated Mark Comes medication schedule in the Pharmacy forum, but it doesn't take into account what I'm eating and how I'm feeling. After months of scouring, I decided to take his and expound on it. So far, it's been nice to print several out each day and have them in different parts of the house so I don't have to carry it around with me. I'd like to share it here in case anyone else might find it useful but I'm not sure how to do that. Any techies out there willing to instruct me? I created mine in Google Sheets but I've also got it saved as an Excel file.
Bluestorm posted a topic in Open ForumHello, I'm a young male from Sweden with a grandmother with Parkinson Disease. I belive she recieved her diagnosis quickly 15 years ago at the age of 60. It started with pain in one of her arms and a week later the arm started to shake. Then she went on L-Dopa medication and the "shaking" disappeared and have yet to return. During these years she has been very functional and i got very surprised i was told she had it 8 years ago or something. She showed no signs like shaking limbs or involuntary movements, She may have had other symptoms others couldn't see though. She has been living alone for 8 years since my grandfather died. She lives very close to me and family though. However i fear her condition has gotten worse recent 3 years, especially in the recent year. She has developed more pain symptoms ( I guess it started when fell on icy ground a few years back and broke her left arm ), She has developed alot of involuntary movement when she is sitting still, She is forgetting more and more easily, She has the feeling "walking on clouds" which i know she has had for a few years atleast. She has taken L-Dopa medication for 15 years, started with 5 pills i belive, now she takes 10 or more ( depends on days ) She tried 2 other medications out, but had to stop becuase she got hallucinations from those. She is going to meet a doctor next week i belive. We will see what kind of plan they have for her then. Questions Do you have any advice what she should bring up to the doctor? Any tip or advice what we could do to improve her symtoms ? such as pain etc Have seen different stages of parkinson has been discussed on here, what stage do you belive she is in? Have anyone experienced hallucinations from Parkinson medications, especially taken closely onto pain meds? I feel bad i haven't joined a parkinson forum or similiar for her earlier, I just recently got the idea. I'm struggling with my own neurological issues ( which i belive isnt Parkinson though ) and been totally isolated in my mind. I hope i am allowed to write on this forum even though i am from Sweden ( If not, my apology ). I appericate all replies i get. I know there was more questions on my mind, i will make an update later with them when i remember. Robin.R