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I was diagnosed with idiopathic PD 15 months ago. My diet at the time of diagnosis consisted of organic, non-GMO foods, no salt or sugar, high fiber, NO processed foods, and, most importantly, low carb. This last thing was my take on Atkins/SouthBeach/Paleo/etc. I was able to lose 30 lbs. in one year. I can still afford to lose 70 more pounds to get to an appropriate weight. All my systems are in great shape (labs, B/P, EKG, etc.). However, my musculoskeletal system is the pits, and I've just had my second back surgery, so I have to start all over with exercise. In learning about living with PD, I understand now how important nutrition is to PD, and I'm trying to find out what kind of regimen will keep me healthy with regards to PD AND allow me to lose weight. LOW CARB was working great until my first back surgery, and I've gained most of the weight back. So my question is: what kind of diet/nutrition regimen should I follow that will keep me healthy vis-a-vis PD and also allow me to lose weight. I know this is a large question, so links, articles, references, or pointers will suffice. I'm a good researcher. Many thanks in advance...
Hello. Well, here I am. Still up at 3AM knowing that there isn't anything I can do but learn to live with this disease. I was so angry and so frustrated that I flung myself to the floor and threw the biggest, loudest and most unsightly temper tantrum. Any two year old would have been proud. About 10 years ago I noticed that my memory was slipping. Little and (big) things like what day it was or renting the same DVD six times because I thought I hadn't ever viewed it before. Then about 5 years ago I started having trouble with walking. It felt like my feet were just too heavy and I struggled to just keep up a "normal" pace- pick em up and put em down. Then 2 years ago, my ring and pinkie finger on my right hand felt numb and cold on the outside but the bones in both fingers felt like frozen steel and hurt bad. Maybe I slept on that hand? Nope it didn't go away. But instead was joined by the ring finger on the left hand wagging and making tiny circles all of the time. 2yrs ago that's when I weighed 159 lbs and I went to my Dr. Passed on to Neurologist who had MRI done and then another MRI with contrast. Blood work. Tagged with Bilateral Tremor and treated with Klonopin -1x a day. Had check up 6 months later weighed 135 lbs with both hands and all fingers shaking and twitching Dr. upped Klonopin to 4x a day. I saw the Neurologist a few more times and was told as long as the Klonopin was maintaining it's "hold" they weren't prepared to say it was Parkinsons. Meanwhile, I needed to have surgery done by Urogyno. Hysterectomy, bladder mesh, etc. Surgeon would not operate until he got a letter of clearance from Neurologist. Surgeon said that if I have Parkinsons he would need to use different method to put me under. Neurologist gave him the clearance letter. Surgery was April 3, 2014. Surgery went fine. But I went into full on Parkinsons within 6 weeks. Stuttering, freezing, falling, fainting, tremors, cannot swallow REALLY SCAREY and I now weigh 91 pounds. I am on carbidopa-levodopa, amantadine, temazepam, clonazepam, Colace and my thyroid replacement med levothyroxine. I use a walker. My 80 year old mother gets my groceries, pays my bills, gives me a bath and dresses me, feeds me. I cannot drive, open a water bottle, button or zip clothing. My right arm is frozen against my upper body bent at the elbow as if to shake your hand. It really hurts all the time. My right foot is the one most likely to freeze and send me falling face first if I try to shuffle without the walker. And constipated OMG I hate it, hate it, hate it! All of it. Not just what is happening to my body but to lose control of every aspect of my life. And so darn fast. On April 3, 2014 I had bilateral hand tremors. Then was diagnosed with full blown Parkinson May 28, 2014. I don't know much about "rate scale" but mine is 4-5. Someone told my mother 5 is end stage. How can that be? I got a call from Behavioral health at 8:30 am. She wanted to do a phone assessment of my mental stability. First question was - are you depressed? I managed a stuttered FFFFFFuuuuuuu. That's when I had my all out, throw down, crying, twitching, pity party of a tantrum. Are you depressed? Seriously? Ok, if anyone reads this I want you to know that I am a fighter and not about to give up. I have an appt. with a Parkinsons Specialist the 8th of July and I know that I'm only on 2 Parkers meds. There are all kinds of treatments and combo meds to try. I know this. I want to thank NPF for providing this forum. I needed to vent tonight. Thank you so much.
saw6560 posted a topic in Ask The DoctorI was diagnosed with Sinemet in May of this year and have been on the starting dose of Sinemet since that time. I have experienced weight lose and am trying to determine if this is a common side effect of taking Sinemet. Also, the Sinemet has not been as effective in controlling my tremors as it was at the start and my Neurologist just switched me to Stalevo for a trail period of 30 ays. Do you feel Stalevo is any more effective that taking the basic Sinemet?