Jump to content
helplinedonate
friendlysmile

how did your PD symptoms start?

Recommended Posts

Hi, new here! just wondering how your PD symptoms started as I have been experiencing some PD symptoms the last few weeks. Ordinarily, I probably wouldn't think anything of some of the symptoms, but I have been having brief tremoring and twitching. My aunt on my dads side was diagnosed with YOPD about 10yrs ago. Here are some of my symptoms: brief resting tremors and twitching mostly in my left hand (usually involving my forefinger and thumb), but other various areas too, sore/stiff neck, shoulders,and back, very tired, definate changes in my thinking patterns (depression).

 

I would love to hear from others on how their symptoms started and does any of this sound familiar?

Edited by friendlysmile

Share this post


Link to post
Share on other sites

Hi, new here! just wondering how your PD symptoms started as I have been experiencing some PD symptoms the last few weeks. Ordinarily, I probably wouldn't think anything of some of the symptoms, but I have been having brief tremoring and twitching. My aunt on my dads side was diagnosed with YOPD about 10yrs ago. Here are some of my symptoms: brief resting tremors and twitching mostly in my left hand (usually involving my forefinger and thumb), but other various areas too, sore/stiff neck, shoulders,and back, very tired, definate changes in my thinking patterns (depression).

 

I would love to hear from others on how their symptoms started and does any of this sound familiar?

My first symptom was a twitching of my thumb in my left hand. It than moved on to my forefinger. Then it proceded on to a full resting tremor. I was diagnosed 2.5 years ago with YOPD 6 months to the day after my father died from PD. I knew exactly what was happening.

Share this post


Link to post
Share on other sites

First symptom, right foot(parkinson side) "forgot" how to walk. I routinely walked 2 to 3 miles and my one foot quit heel striking and rolling. About a year after that, the toes on my right foot started curling under.

Share this post


Link to post
Share on other sites

Hi,

 

Its nice to have a new "friendly smile" on the forum.

 

My symptom that sent me to a doctor was that I couldn't open my truck door and reach up and around the steering column and put the key in the slot. After being dxd with Parkinson and reading what the symptoms were, I realized a lot of my little quirks were symptoms.

 

Examples:

 

tiny handwriting

no sense of smell,right sided rigidity, no arm swing,

 

Good luck to you, hope you post again soon, jb 8)

Share this post


Link to post
Share on other sites

Hello :-D ,

 

This is what I remember:

1. Left leg started to bounce.

2. Started to shuffle my feet when walking.

3. Stiffness

4. Toes on left leg started to curl under.

5. All with a dash of fatigue.

6. Wanted to walk.... but legs had delayed reaction. ( at times )

7. Feeling depressed.

Share this post


Link to post
Share on other sites

Hi Friendly,

 

Mine started as tremor on right side with movement, like when picking up a water glass, and with certain postural positions, like holding your arm out for something. Also, cold would make hand/arm shake. Next the handwriting got smaller overall. Misdiagnosed as essential tremor.

 

Don't hesitant to ask if you have more questions. Best to you, Lin

Share this post


Link to post
Share on other sites

Hi Friendly:

 

That’s a good question. The symptom that started me thinking something was wrong was tremor in my right hand; however hindsight tells me that excessive daytime sleepiness and depression probably preceded the tremor by several years.

 

It’s interesting how I was willing to tolerate the sleepiness and depression for so long but when I get the tremor—the symptom that probably caused the least amount of trouble for me—I finally seek medical attention. I’m now on Sinemet & that helps a lot but with exercise & Sinemet, I’ve noticed marked improvement in my depression.

 

Good luck with your journey.

Share this post


Link to post
Share on other sites

My right pinky has a mind of its own. I always look like I'm drinking tea lol. Then my hands started with slight tremor. Next came stiffness which I assumed was my arthritis. I then started with severe pain, mostly in my low back and hip. I was taking narcotics and ended up with morphine. I went to 3 neurologists and no one would diagnose PD. I went to pain management doctor and he treated my back pain with steroid epidurals. However, he could tell there was something else wrong. He sent me for 4th opinion with neurologist movement disorder specialist. She finally agreed PD and when I started Sinemet I slowly eliminated the narcotics.

 

Prior to diagnosis, I was so stiff I walked with a cane. My handwriting went down hill and even I couldn't read it.

 

Keep coming here to this forum. These people are great and we are all friends. You can ask us anything. Believe me - I've done it. Good luck to you

Share this post


Link to post
Share on other sites

First symptoms, in retrospect, were depression and anxiety. I was taking medication for that for 10 years, but, since starting Sinemet in April 2010 I haven't needed any psychiatric drugs - go figure. Now I have good reason to be anxious and depressed bit I'm not.

 

First motor symptom was a painful shoulder. Then my arm didn't swing, which we figured was the pain. Then I started to limp, couldn't wear slip on slippers or flip flops because my foot wouldn't stay straight in them, started to have posture that was always tipping forward, was exhausted, couldn't pedal my exercise bike above 20 rpm without shaking, shook when stretching...and through all of these ever worsening symptoms was misdiagnosed over and over with everything from frozen shoulder to stroke to major depression.

 

Now, medicated, life goes on almost as normal as long as I keep pill popping. Yesterday I saw an old friend who I hadn't seen for eight years, and she had heard I was not doing well last year - she was very honest and direct, unusual fir Japanese, and told me she had heard I had something really wrong but I looked totally fine and asked me if what she had heard was true. So medicine is obviously working like a charm.

 

Interesting how many are misdiagnosed, isn't it?

Share this post


Link to post
Share on other sites

Thank you for all your replies:) good to know i'm not alone in this confusing time. this all feels very unfair...I am 32 yrs old with 3 little girls, ages 6, 3, and 1. Some things I have been noticing in the last few days: decrease in arm swing (sometimes it feels like dead weight hanging off the side of my body, but stiff at the same time), left hand curling into weird positions, left shoulder more stiff with clicking, and this afternoon i was very unbalanced. I kept wanting to fall over toward my left side, and if i tried to balance on my left foot i would just couldn't do it.

 

I guess the next step is to ask my regular dr for a neurology consult...any advice?

Edited by friendlysmile

Share this post


Link to post
Share on other sites

Sorry to hear about what you are experiencing. PD doesn't come on in a few days, so there could very well be another explanation. Keep a notebook perhaps of your symptoms so you can easily show your doctor, who may refer you to someone else. The notes can record any changes and/or progression too. Try to relax, though I'll bet that's challenging with three kids. Make an appointment to see your doctor and take it one step at a time.

Share this post


Link to post
Share on other sites

Hi Friendly,

 

I agree with the excellent suggestion about recording your symptoms. Also, the nurse at the Movement Disorder Specialist office was happy when gave her a copy of my medical history. She said it saved her a lot of time. Kim is right about taking things one step at a time. Found spending fun time with my daughter helped keep my mind off things and relax a bit. Best wishes, Lin

Share this post


Link to post
Share on other sites

good ideas, i will try to keep track in a notebook or something. unfortunately, reading my posts i can see how you would think this has all happened to me very recently, but i feel like i can track some of the symptoms back at least 6mo ago. the fatigue, depression, neck and shoulder stiffness started first. the tremors/twitching, balance issues, and left arm stiffness have all been within the last 3 weeks. i really hope that i do not have PD and that this just some temporary phenomena, but my fear is that it is not. still waiting for my dr to call back about the neurology consult.

Share this post


Link to post
Share on other sites

good ideas, i will try to keep track in a notebook or something. unfortunately, reading my posts i can see how you would think this has all happened to me very recently, but i feel like i can track some of the symptoms back at least 6mo ago. the fatigue, depression, neck and shoulder stiffness started first. the tremors/twitching, balance issues, and left arm stiffness have all been within the last 3 weeks. i really hope that i do not have PD and that this just some temporary phenomena, but my fear is that it is not. still waiting for my dr to call back about the neurology consult.

Ask for a referral to a movement disorders specialist, not just a neurologist. The first neurologist said for sure I had PD. The MDS said it might only be Parkinsonism, which doesn't progress. I am waiting for a DaTScan to determine which it is, PD or Parkinsonism. When I told my first neurologist that he said, "CATScan?" and I had to explain to him what a DaTScan was!

Share this post


Link to post
Share on other sites

Hi, new here! just wondering how your PD symptoms started as I have been experiencing some PD symptoms the last few weeks. Ordinarily, I probably wouldn't think anything of some of the symptoms, but I have been having brief tremoring and twitching. My aunt on my dads side was diagnosed with YOPD about 10yrs ago. Here are some of my symptoms: brief resting tremors and twitching mostly in my left hand (usually involving my forefinger and thumb), but other various areas too, sore/stiff neck, shoulders,and back, very tired, definate changes in my thinking patterns (depression).

 

I would love to hear from others on how their symptoms started and does any of this sound familiar?

Share this post


Link to post
Share on other sites

The first symptom for me was a less effective sense of smell. I had no idea, at the time, that it was any kind of symptom of a larger condition. Similarily so with my next symptom: a frozen shoulder. By the time I hit 52 years of age my symptoms list was exactly identical to yours. Additional symptoms developed like clockwork.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×