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csullivan11

Pregnant with parkinson plus syndrome

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I am 43 years old and 15 weeks pregnant. I have searched the internet for info and it is very limited. I was diagnosed at 39 with atypical parkinsons and sent to a movement disorder specialist. I could not move my left arm or open my left hand until I began taking Sinemet. I also had difficulty with my left leg and stumbling, stiffness and horrible cramping pain only on the left side. Now that I am pregnant, which was a surprise, my Sinemet has stopped working. I tried to wean off due to the unknown effects on the fetus, but my body would not cooperate, Just trying to find any insight to get through the next 5 months. Thank you.

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First I would be suspicious that you may have young-onset PD and not atypical PD (although that is possible). You may want to pursue genetic testing for PD. You may be simply under-medicated. I would speak to your doc, but you may need a higher dose and more frequent dosing of sine met. It is really unknown if this will have harmful effects on the fetus both most docs will educate and keep pregnant PD patient medicated with levodopa. This should be a discussion with your doc.

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This is really very stressful situation for you and your family.

I would suggest to you that with the reply of Dr. Okun and all medical information you might have

about your health go to nearest University affiliated hospital Emergency Service and ask them to arrange for you

to be seen at their Department of Family Medicine. I am sure that they will help you to resolve the situation and

they will also enrich their teaching program for students, interns an d residents. Good luck.

gmk

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I would like to share my own experience with pregnancy and PD. I was 34 years old when I was first diagnosed with Parkinson’s. When I became pregnant (I was 39 years old), I was taking 25 mg bromocriptin and 250 mg levodopa-benserazide. Bromocriptin was stopped as soon as pregnancy was known but levodopa was kept all through pregnancy. I experienced a slight worsening of symptoms towards the seventh month of pregnancy. I gave birth to a healthy boy who will be 20 next Christmas and is doing beautifully. I had no trouble whatsoever when the treatment was fully reinstated and my neurological situation was restored as pre-pregnancy.

I am able to give you precise indications of my treatment because my neurologist wrote a case report on my experience and gave me a copy !

Regards,

 

Mireille

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