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Kristakj78

Neck Pain?

55 posts in this topic

Has anyone had bad neck pain with their PD? I have had quite a battle with it. At one point a year and a half ago I couldn't even turn my neck. I've had PT, an MRI of my neck, Naproxen, and muscle relaxers, and nothing seems to work when it acts up. It did go away for a while, but it's been back again for a week, and is so painful. Anyone have a similar issue? Solution?

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This is one of my most persistent symptoms, especially when I am off. I purchased a cape-shaped heavy neck and shoulder cover that you can either freeze or heat in the microwave, depending on the need. Someone at a local PD support group told me about. She did offer one warning: Do not heat for 20.00 instead of the recommended 2.00! It will be destroyed!!

The label on mine reads Therapy for Body and Soul. Don't remember which site I got it from. I've discovered that Amazon may have different prices in different divisions of their site. I also find Biofreeze helpful. Best wishes!

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I have dealt with stiff (frozen) sore neck for years. I recently had an MRI done on it but haven't seen the doctor yet for the results. I also have terrible jaw pain. My jaw freezes and won't open, usually when we have steak for dinner. I did crash my motorcycle about 12 years ago landing on the top of my head with my feet to the sky. I had always thought that was the reason for the pain. For me looking up is a killer!

Heat helps a little bit along with a Jack and Coke.

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Lol, I will try heat with a nice glass of wine or hot green tea :)

 

A nice cup of tea sounds wonderful! Although I do believe we have four or five bottles of wine waiting to be un-corked. :mrgreen:

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The assistant manager of Lake Pleasant RV Park, Ed, and his wife Dianne made my day brighter by responding to a request for assistance easy to swallow protein packed food so it is quite likely that I will have even more energy to be witty tomorrow. My irrepressible spirit has been in no way affected by the Recent Series of Unfortunate Events that did it's best to extinguish my joy. I laugh in the face of Forces Determined to Convince Me I am Unworthy of Love and Consistent Unconditional Positive Regard. HA! HA HA HA!!!

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I've been telling my docs about the dreadful neck pain I seem to suffer with on a persistent, but intermittent basis for years! I, too, have had an MRI and was eventually told I have degenerative disc disease and there is nothing can be done about it but to apply alternately hot/cold compresses. Most interesting.

 

(Hmm... I think we may have a consensus - PD IS a PAIN in the NECK!!)

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I Have horrible pain in upper back shoulders and neck. It progressively gets worse as the day moves on. By dinner sometimes I have difficulty sitting and lifting my fork. My MDS has recommended Botox injections into the the muscle as it should block some of the trigger signals causeing the muscles to tense. I looked into it and am going to try it. I will let everyone know how it goes. First injection should be in a few weeks. The effects can last up tp 6 weeks according to the literature.

 

Heres hoping for relief!

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I go to a pain management doctor and get steroid epidural injections (like the ones recentlyl linked to meningitis)

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SOOOO bad that I can't sit up in bed or roll over at night. Unbearable, and I'm soooooooo sick of meds, and the Naproxen makes me sick, ugh, I don't know what's worse, the symptoms or the side effects of the meds (aside from the Sinemet, which I am on my hands and knees thanking God for the creation of). I went to my physical therapist last night, and got extra heat and stimulation with those electric vibrations things attached to my neck, and am on my way to my MDS now...but OUCH!!!!!!!!!!!!!! I'm sure the rush of Halloween, my personality with always pushing myself, my three kids (four if you include my husband, lol, their friends AND that darn hurricane didn't help things!!!! We didn't have power for three days, and we were the "lucky" ones.....many still without, but still.....gosh, my three year old didn't sleep much, scared of the wind and the dark - or the candle shadows.....and boy is my neck and upper shoulder area/upper back paying the price. OUCHHHHHHHHHHHHHHHHH!

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My neck gets stiff and tight,limited movement to the left normal to the right.

This in turn gives me headaches ,for me i first try a warm shower and relax i find helps more often that not..............but pain meds are a must at times.

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I got a call from my MDS today! :huh: It is Saturday Right??? He wanted to let me know the results from my neck MRI. It turns out that I have a bulging disc at the c5-6.

 

He said he wants me to talk to a surgeon over in the Puget Sound about it. I haven't met anyone yet who had back or neck surgery that went well. I passed on back surgery in 2002 due to my brothers surgery going wrong and have been just dealing with it. Sighhhhhh..... What to do.......

 

 

Hey Dianne!!!!!! Maybe I will get to meet you!!!!!!! :-)

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I had a bit of bulging found on my neck MRI too, but my MDS told me it was not causing the pain, and was probably from a previous accident, as opposed to the PD. I wonder if there's different types of bulging, hmmmmm...

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I know exactly when I caused the bulging. Riding my dirt bike down the side of a mountain in Idaho and tried to pass my nephew. I went into some tall grass which was hiding a log... Over the bars I went and landed right on the top of my head with my feet to the sky! Jumped up and raced to get by him again! Man I miss riding my bikes...

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For at least two years prior to my diagnosis this past February I had severe neck pain at the base of my neck. It was so bad I could hardly turn my head and it even hurt when I would lay in bed. I still have the pain but not as often. I believe the meds, sinemet and requip XL, I was prescribed help. I also got a tens unit and use it as often as I can. I also get a lot of cramps in my back, chest and shoulder and the tens unit helps with it also.

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I have been having the stiff neck and pain between my shoulder blades for over a year now. It causes severe headaches if I let the sinemet wear off too long. I injured my lower back a few weeks ago trying to lift an extension ladder into the attic by myself, and the MRI showed degenerative disk disease and bulging disks in my lower back. There's no telling what they'd find if they checked my thoracic or cervical spine. lol I was hoping to go at least five years without making any major changes in my life, but it looks like I'm going to have to start reducing my work hours. I just can't take the pain, stress, and fatigue any more. PD really sucks, but what sucks even more is that the worst of my symptoms can't be seen on examination. I really hate everyone looking at me like I'm a hypochondriac.

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I really hate everyone looking at me like I'm a hypochondriac.

 

My last boss called me a Hypochondriac right before he lay'd me off. He has since apologized after he heard that I in fact DO have the issues that I had been complaining about. In another post you said that you are in Washington, is it Washington State?

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To quote the RN

 

"I really hate everyone looking at me like I'm a hypochondriac"

 

Hah, I used to worry bout being at social functions and people view my walking as being "oh looks like Bushy has had a few too many drinks"

 

Unfortunately, our lives are filled with perceptions and observations as we form opinions of others. What we need is a user manual for Parkys that outlines all things happening and may happen to our minds and bodies for the general public information.

 

I rode my bicycle to the neighbours the other day and he is surprised that I can ride a bike and not fall over. It is different than walking though, right? We understand. Certain things like signing my name at a guest book make me look like a trained chimp that some how can scratch out his name but other times I write pretty good. The shakes, lack of strength, the I just have to sit down for awhile, trouble swallowing and the list goes on making us a funny breed that is hard to explain, much less understand by a non Parky. So yes, we likely come across as fakers sometime. But we aren't.

 

BillyG I think RN Kevin is in Washington State cause

 

he is a long way from home in Tennesee

he may go on to California

and he said it rains everyday

 

signed Sherlocke jb Holmes. No, jb Columbo, no no signed Jb McGarret Five oh

Edited by jb49
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To quote the RN

 

"I really hate everyone looking at me like I'm a hypochondriac"

 

Hah, I used to worry bout being at social functions and people view my walking as being "oh looks like Bushy has had a few too many drinks"

 

Unfortunately, our lives are filled with perceptions and observations as we form opinions of others. What we need is a user manual for Parkys that outlines all things happening and may happen to our minds and bodies for the general public information.

 

I rode my bicycle to the neighbours the other day and he is surprised that I can ride a bike and not fall over. It is different than walking though, right? We understand. Certain things like signing my name at a guest book make me look like a trained chimp that some how can scratch out his name but other times I write pretty good. The shakes, lack of strength, the I just have to sit down for awhile, trouble swallowing and the list goes on making us a funny breed that is hard to explain, much less understand by a non Parky. So yes, we likely come across as fakers sometime. But we aren't.

 

BillyG I think RN Kevin is in Washington State cause

 

he is a long way from home in Tennesee

he may go on to California

and he said it rains everyday

 

signed Sherlocke jb Holmes. No, jb Columbo, no no signed Jb McGarret Five oh

 

You couldn't have said it better, JB!

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So glad I found this thread. Only my right arm has shoulder/arm pain, limited mobility (can't reach behind my back), and writing like that trained chimp you mentioned is what started my journey over a year ago. I started with a chiro, then an orthopedic, then a neurologist before the P word was mentioned. I have mentioned this searing pain to two neuros and they never seem to address the issue. Sinemet has somewhat helped the handwriting, but not the pain and limited mobility. Some days are better than others. The symptoms have not increased, thankfully, but some relief would be nice from the constant pain. X-rays did show the beginning of arthritis but I never know what to blame on the PD. PD definitely filters your view of everything, absolutely everything.

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