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john14505

question about sudden exhaustion

9 posts in this topic

Hi,

I went hunting with my son saturday and did well climbing the hill we hunt. I had no shortness of breth or leg burning .I did have problems with stiffness after I sat for awhile.About four hours later on my way down I felt totaly exhausted.I had to walk with a crutch to keep going.It took me over a hour when it usaly took me 15 min at the most..I felt ok when we got to the car and only suffered leg cramps while driving ,no fatigue.Wondered if something like this is normal for pd and also why it happens.

I have posted here before and am doing well except for this episode.I am not taking any meds now and plan on starting the big lsvt therapy next month.Taking it easy now and avoiding overdoing.

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I have had the same thing happen. All of a sudden Im just completely exausted. Im not sure what to do about it except I do keep my walking sticks ready.

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Hello Johnys...

 

I do have a similar experience. I am alright first thing but if I stop, I become very exhausted and ache real bad. I have a hard time getting up and getting going again. When I was working we would sit on the floor or ground for lunch. I had to do the "Roll and climb" ( lay down and roll to my belly then climb to a standing position) to get up and the rest of the day was rough.I just finished cleaning and vacuuming the house (7 hours) and I am literally beat!! I don't know if it is PD related or not but it is one of the symptoms included in my diagnoses.

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If I exert myself I will hit the wall and be completely exhausted and disoriented. I've learned to take many breaks for rest no matter what I'm doing, just have to hope I don't get distracted and continue with the original task! I also get sudden onset exhaustion where I will just doze off in the middle of something, usually for a second or less but sometimes minutes at a time. I have had to cutback on driving and will probably have to give it up completely.

Rob

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My husband's MDS says people PD can do most anything - for a little while! She encourages him to pay attention and stop before the exhaustion overcomes the effort. He also finds that sometimes it takes a few days to recover after something big.

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thanks so much for all your replys.Ive slowed down and now I hunt often with a chair.So far Ive had no repeats

If I exert myself I will hit the wall and be completely exhausted and disoriented. I've learned to take many breaks for rest no matter what I'm doing, just have to hope I don't get distracted and continue with the original task! I also get sudden onset exhaustion where I will just doze off in the middle of something, usually for a second or less but sometimes minutes at a time. I have had to cutback on driving and will probably have to give it up completely.

Rob

So sorry to hear about your driving problems.My father who had parkinson also fell aslepp while driving and had to give it up.It was very hard on him to lose it.

So far I only get sleepy while sitting in my recliner,but it does feel different than before the parkinson came.Take care

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So all of this time I've been thinking that I'm just being lazy or simply out of shape has really been the PD?!? I've been wondering why I suddenly get so tired that I can hardly stand it. I was just thinking the other day that my ability to work 12-hour shifts is quickly drawing to a close - I just wear out too fast anymore. After I exericise I have to lay down for 20 minutes to recover, and I too have to roll onto my stomach to get up off the floor. It just irritates me to no end that people keep looking at me and saying, "well....you look fine." Sure, I LOOK like a normal, healthy, 40 year old male - but I FEEEEEEL like a 70 year old. I get so tired of trying to convince people that I really do have problem and I'm not just making this stuff up.

 

Kevin

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Kevin,

Happens to all of us, especially those with young onset disease of the akinetic/rigid type. In the early stages, and especially in the absence of any evident tremor, the signs of our disease can be recognized only by the eyes of an experienced movement disorder specialist! Truth be told, we look much better than we feel. Maybe we should take that as a compliment. We have plenty of time in the future to feel AND look like....well...you know....so, let's enjoy this time of our life when roses are red, violets are blue, and we are nothing more than a crazy bunch of lazy, out of shape hypochondriacs...hahaha...

As long as you work with a good neuro who listens to you, believes you, takes your complaints seriously and answers your questions, you shouldn't even CARE to convince ANYONE else about your problems. Most people don't even KNOW what YOPD is...We didn't until we were diagnosed.

 

PS : "...and i'm not just making this stuff up"....Kevin, you can't be serious ! you have a chronic degenerative disease....officially diagnosed by neurologists ! i so wish you/i and everyone else in the forum were just "making this stuff up"...unfortunately we are not! and, sadly, in only a few years, we will be able to convince even the most ignorant of all people that we are really sick.

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