helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
Sign in to follow this  
Followers 0
daisy1963

Great news for my friend

3 posts in this topic

Good morning all,

Just wanted to share some great news. My friend (45, 15yrs in), had her second round DBS yesterday at Vanderbilt; It was a long road to get there, but the doctor said she had the best response he has seen! Her primary symptoms are severe dystonia and the value of her sinemet had been pretty much exhausted; it caused violent dyskensia. The relief and happiness from those around her were extraordinary. My hope that all find some relief from this terrible disease. Namaste

1 person likes this

Share this post


Link to post
Share on other sites

Great news indeed daisy ! I was thinking about your friend, not only because she is so young, but also because she is a mother struggling to raise small kids while having such a cruel disease. not a small thing at all.

So good for her she had such a great response to DBS. I can only imagine your relief ! She is also very lucky to have such a devoted friend like you ! she must be a pretty special lady.

Best of luck to you and your friend ! Keep writing !

Edited by christie

Share this post


Link to post
Share on other sites

We seldom, it seems, hear the words "Parkinson's Disease" and "great news," in the same breath - so, when we do, it brings tears to my eyes. Tell your friend I'm waving a big flag for her and her team - every win is a coup for us all.

 

Namaste bachatcha!!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0