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michelleee

Duodopa

13 posts in this topic

Dear Dr.

I'm very excited to read about the Duodopa option out on the horizon!!!

But, I'm very confused as to the procedure availabilty in the US.

 

Can you provide information on when this may become available here in US?

 

We are located in San Francisco (near Stanford, UCSF, and the Parkinson's instute located in Sunnyvale)

 

 

Thank you,

Michelle

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Thanks for the question. Studies have had some nice data in the USA but it is not FDA approved at the moment. You will need to look at a website like clinical trials.gov to see where the trials are ongoing. There is a trial for example here at UF. It has been available in Europe for many years.

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Thank You for your reply Dr. Okun.

Sounds like the procedure is a way off yet.

 

Happy New Year!

Michelle

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It is being performed in the US under study and probably not far off, as the main study has been completed.

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I see, so the main study has been completed. I wonder how far in the future we're talking?

 

I'm just a bit anxious to get so help for my husband!

Thanks again,

Michelle

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I do not have the crystal ball on that one, but will post as soon as I know something!

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Try Tea leaves--works much better then any crystal ball I've ever used! hehehe!

Yes, It's anyone's guess at this point.

 

Thanks again for all your help and I do look forward to hearing from you on this topic!!

Best regards,

Michelle

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My MDS, Dr. Alida Griffith at the Booth-Gardner Parkinson Center of Excellence in Kirkland, WA will soon be starting Phase II of the Duodopa pump trials. She can be reached at 425-899-3123 Her nurse is Amy; the scheduler's name is Tina.

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Clinicaltrials.gov will have all the information posted. I believe Ramon Rodriguez at University of Florida will also be doing it.

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Dear Dianne,

Small world story: My husband's first Dr. upon first diagnosis of Parkinson's disease way back in 2002 just happens to be Dr. Alida Griffith at the same location you mentioned!! My husband has since moved from Washington to California closer to the family. We both really apprecate your reply about duodopa. Are you involved in the trial. This new procedure, as it's turning out, may be the only hope for many Parkinson's sufferers!

Best wishes,

Michelle and Michael Bechtol

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Dear Dr. Okun,

 

Wonderful information!

Thank you for all you do to help those with PD!!

Michelle and Michael

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