Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
Sign in to follow this  
Golden01

Surgery - What to Expect

Recommended Posts

Learned today that my husband with PD will need rotator cuff surgery. He's checking with his MDS as we know he will need to be his Azilect before the surgery before we set the date. They are telling him that full recovery could take up to six months. Does anyone have experience with this or similar surgery? We've found any injury seems to take longer to recover from because of the PD. Any suggestions for sailing through this smoothly? We have the medicine kit for going to the hospital from NPF.

Share this post


Link to post
Share on other sites

I just had this done in December. It was a much bigger emotional and physical strain than I expected, although it might have been lessened by less stress already occurring in other areas of my life. Be SURE to prepare your Aware in Care information. One of the first possible calamities that being prepared and having the Safe w/PD meds list along prevented was being given the wrong anesthesia! Make sure to discuss everything directly with the anesthesiologist, not the nurse anesthetist or any assistant! And do be prepared for a longer than usual recovery period. I have yet to begin passive range of motion after nearly 6 weeks.

Share this post


Link to post
Share on other sites

Oh my! We do have the Aware in Care Info and will get further instructions from my husband's MDS today. They told him to expect 6 months before he is back to his regular activities (bike riding, etc.). Thank you for the info. Do you go to physical therapy? Was yours an in-patient or out-patient procedure?

Share this post


Link to post
Share on other sites

Mine was an inpatient procedure because I am on a walker full time and my PD is fairly advanced. I spent two days in the hospital and several weeks in rehab facilities receiving OT & PT. I am currently on my second admission to the hospital for depression and have not yet been "home," wherever that may turn out to be. If I had the choice to do it again, I absolutely would not. Your husband's disease sounds much less severe than mine, and I'm guessing his will be an outpt procedure with few complications.

 

Another suggestion: If your husband spends any time in the hospital or a rehab, ask the doc to write an order that you or he can keep his PD meds at bedside so that you can give them to him on time.

Share this post


Link to post
Share on other sites

Thanks for the tips, especially about keeping your own medicines. They are planning on an out-patient procedure. Hospitals stays can be hard on people as you learned with your medications.

Share this post


Link to post
Share on other sites

My husband's surgery is scheduled for today. He's come down with a cold so don't know if it will be a go or not. We have all our "Aware in Care" papers ready to take along. It is a terrific kit. A week without his Azilect (had to stop for the surgery) is showing. I hope he can have the surgery as planned so he doesn't have to go longer without the medicine. I'm holding off on making the jello in case he doesn't have the surgery but have everything ready for the chicken soup which would be good for him today either way.

Share this post


Link to post
Share on other sites

Thanks for the good wishes. The doctors gave him a go for the surgery even though he had a cold and he came through with flying colors. They felt staying off the PD medications would be more problematic and he was cleared for receiving anesthesia. The shoulder repair turned out to be less than expected so rehab should go quickly. The "Aware in Care" info was appreciated by the hospital staff and the nurses were very receptive to my suggestions on offering directions in post-op to help him swallow more easily (drink slowly, tuck your chin). He's moving slowly here at home but I'm confident he will improve now that he is back on his PD medications.

 

If you haven't ordered a NPF "Aware in Care" kit, I encourage you to do so today!

Share this post


Link to post
Share on other sites

Thank you! He is recovering well. I head back to work today but am confident he'll get along fine. Hooray for my long weekend! My sister came and stayed with us over the weekend too. She is a great help.

  • Like 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Sign in to follow this  

×