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harry

Agent Orange Parkinsons

2 posts in this topic

I'm 65 years old and served my country in vietnam. In the late 1990's i started having resting tremors that progressively got worse and at night i get a sensation like something crawling up the inside of my legs and arms and i would have to shake my legs and arms or get up and walk around to get the sensation to stop. also, my arms and legs jerk. I also get terrible cramps in toes , on top of feet, ankles, calfs and thights. later on i started having problems with my balance, walking, anxiety attacks, depression, muscle stiffness and pain, severe constipation, couldn't sleep at night. Then in September 2006, while at work in office i got this feeling that something was going on in my body (at the time i was under alot of stress) so, i went next door to another office and my friend looked at me and asked if something was wrong and the next thing i knew, i was on the floor with my hands flapping against my chest at an incredible speed and my legs and shoulders would jerk. Went to emergency room they gave me something that calmed me down. This happened two days in a row. Saw a neurologists, was admitted to hospital. Had mri, spinal tap, lots of blood work and things put on my head to monitor me overnight. I did not have seizure they said i had myoclunus or an unknown movement disorder. In april 2011, veterans adminstration neurologists diagnosed me with parkinsons. I then saw a VA neurologist/movement specialist and belives i have had parkinsons for at least 15 years. Sinemet helped the parkinsons. I tell you this history, because since sept. 2006, my not sleeping at night continues and the fatigue, no energy and tiredness continues to get worse. i'm so tired of being tired. I'm useless, I can't work around the house and most important of all enjoy my grand children. Thank you for any suggestions.

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Thanks for the question. If there is any doubt on the diagnosis it could be helpful to get a DAT. Honestly the flapping on the ground episode is not consistent with PD, but the other symptoms and response to levodopa are consistent. You may have more than one thing going on. You should consider a sleep study as that may help the symptoms of fatigue during the day and sleeping at night-- sleep disorders are common in PD.

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