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invisable

PATIENTS LIKE ME

11 posts in this topic

Just wanted to let everyone know about a very good support group (on-line) called PATIENTS LIKE ME.

 

Good quality support and information.

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It asked if I wondered why I was having a crummy experience, I thought it was cause I have PD and typing was a pain in the Butt, but apparently it was cause my browser is out dated, I updated my browser, still have PD and shaking, so it wasn't my browser after all, I did that the good people at patientslikeme for suggesting the browser might be the problem but let them know the browser did nothing for my PD.

 

On a more serious not, the site looks cool, I'm alittle nervous about how much info they let you put in regarding your medical history, but none the less cool site

Edited by Donald Ennis

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I was posting on PLM, but after a few months I found it to be a bit depressing and too much like a facebook page......plus they changed the entire set up( look and design of the site). Kinda went in a different direction for me. Maybe it's improved.

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I would give it another chance, the people are very knowledgeable and inspiring. I wouldn't say depressing, but they are realistic in what they have to say, I have learned a lot from them.

1 person likes this

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i never really disclosed this theory in the forum, but I have to (and badly want to) believe that there are many of us Parkies who are hghly functional and don't really participate in the forums

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In my opinion being highly functional has nothing to do with participating or not participating in forums.

 

A support group in my opinion is a place where one can receive understanding from people that one could not receive from others that do not share the same circumstances (for example having Parkinsons.)

 

We can learn from each other while supporting each other, which hopefully will result in us becoming even more functional.

 

btw - Here you are on a forum! just sayin......

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I use Patients Like Me to track symptoms, mood, treatment effectiveness, weight, quality of life and many other measures they offer. It allows me to print out a summary for my MDS visits.

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I wouldn't want to be a member of a group that would even contemplate me becoming a member!!

 

And yet here you are...... a member of this forum/group.

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This is a great group of people. It's not a forum, it's family! Love you guys

2 people like this

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