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Betho

Should I be diagnosed?

6 posts in this topic

Hi. I am a 37 year old woman with a grandfather and father with Parkinson's. I feel as though I have early symptoms, but my doctors have brushed them off saying it would be unlikely as a woman in my 30's to have Parkinson's. I know that I have the same gait as my father and grandfather, and occasionally a resting tremor. My main symptom is when I get up from sitting I have to take 8-10 steps before I can raise myself straight up from a hunched over "L" position. I am in pretty good shape and work out, but I experience this being "stuck" whether I've worked out or not. I also feel like I have trouble swallowing at least a few times a day. I know I don't have very severe symptoms, but I wonder when I should really bring it up seriously with my doctor or see a neurologist. Any thoughts?

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My vote is yes see a Neuro. What can it hurt? To not do so... will drive you nuts. You might not have PD, but something is going on... if not... then you know. (PS Tell your doctors to brush up on their YOPD facts.)

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I agree with Luther, go see a neurologist or MDS (Movement Disorder Specialist), my doctor gave me the same brush off and I am 42, if your health insurance doesn't require a referal to a specialist, don't tell your doctor your going, I didn't, then I fired my Primary Doctor.

 

Also regarding Dad and Gradfather, what ages where they when initially diagnosed? My understanding is that the odds of PD being genetic increase if the PD in other generations is also YOPD.

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I agree with Luther and Donald that you should go to a Neurologist. I had the same worries before I went to get my checkup. There's a helpful article on the questions you should ask during your Neurologist visit that I found extremely useful: http://bit.ly/1fS4FJt

It's best to go and get all the worries out of the way.

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I agree. See a neurologist. My mother has PD, and I started suspecting I did when I lost my sense of smell 5 or 6 years ago. I was reassured by my primary care physician that it was nothing, and it wasn't until I lost my left arm swing a year and a half ago that I was finally diagnosed. I don't know that an earlier diagnosis would have helped in any way, but in your case since you have family history and possible symptoms it would be reassuring to see someone with more knowledge. The thing about unlikely occurrences is that they do happen. Apparently the odds of my having PD at my age are around 1 in 20,000 or so. Very unlikely, but I beat those odds!

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