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Anna Rentmeester

CBD Parkinsonism

5 posts in this topic

I know it is more rare form but so hoping to connect with some others with this diagnosis. If you are or know of someone with this variation please post! Thanks.

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Livingwithtau...I'm so sorry for your diagnosis.

 

You may also find this site helpful   http://www.psp.org/   (Foundation for PSP | CBD and Related Brain Diseases)

 

This is the link for the PSP/CBD forum  http://forum.curepsp.org/viewforum.php?f=5&sid=a68f546541fe86b2c2c37ea8fd165f24

 

Please remember that CBD is a very rare disease, meaning that the  progression/prognosis in the individual patient is almost impossible to predict. Don't compare yourself to anybody else cause really there isn't much to compare! Statistics don't apply to individuals with so rare diseases...Try stay positive, never give up, and never lose hope.

 

You can also hang around whenever you want and share with us your fears and thoughts...

 

Keep in touch !

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